Vicky’s final journey – Foreword


I am a 60 something wife, mother and grandmother.

I am married to a wonderful man.  He is my best friend and soul mate.  If I had to dedicate a song to him it would be “Wind beneath my wings”.  His support allows me to have a career.

I have one biological child – Vicky, aged 37.  I have four stepchildren that I love as if they are my own.  I am grandmother to eleven grandchildren.  Two are biological and nine “love grands”

Vic was born with Osteogenesis Imperfecta.  The original prognosis at the tender age of 18 months was that she would not survive her 12th birthday.  Vic is such a brave warrior!  She has fought to live and surprised all…

Dying is difficult.  People do not die from pain.  People do not die from the indignity of illness.  They even survive doctor error.  All you have to do is throw money at the problem.  Somehow the doctors will find a way to keep terminally ill patients alive.

Vic stopped breathing on the 18th of January 2013.  I continue to breath but I died when she stopped breathing

 

 

37 thoughts on “Vicky’s final journey – Foreword”

  3. I’m not sure whether to say sorry about your daughter because somehow it feels that it would come across as an insult, she is obviously a very strong women and to have exceeded way beyond the doctors expectations is remarkable.

    Best wishes to you Vicky and all of your family.

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  4. Just a question if you don’t mind me asking, does she have type I OI? I have type III. Thanks for visiting my blog. I’ll be sure to come back here and pay another visit.

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    1. Yes she has Type 1. By her third birthday Vic had fractured 41 times. She is definitely fracturing more as she is aging. The Addison’s and use of cortisone is not doing her bones any favors. At any given stage she has at least 6 compression fractures of the vertebrae.

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  5. being in your situation is one of the most difficult things to do and what you have done for your child is utmost courage… only a great mom like you could have taken such good care of your children… i truly admire your love and dedication and I want to pray for your family’s happiness… deep from my heart. I have a darling sis and I love her like my child sometimes, and I can truly feel your emotions and believe me I can understand. your child is lucky to have you and I am sure Vic would bravely survive the disease for longer than expected and just ask her to pray and believe in a higher source… that will give her the strength and hope to fight through. give her my best wishes.. with love and warm hugs…

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    1. Thank you so much for your beautiful words and good wishes! Vic has lived 26 years longer than the 1st prognosis we got!! You is a true warrior and yes I believe that love has brought her this far. Your sis is lucky to have you!

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      1. your happiness must be her greatest strength and a daughter so courageous is the rarest of gifts.. I am too weak that way, but its admirable that she has survived this journey and is putting up the fight.. your recent post mentions her asking about death, please ask her to not think about it… life is too precious to waste away in such thoughts… ask her to be happy and give her lots of hope, her heartfelt joys will heal her better than most medicines in the world.. believe me. :)
        take care tersia, you are an amazing person and I am glad to have met you here through words… my best to you always :)

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      2. Thank you so very much! I will convey your message and read your beautiful poem to her. I am trying to go into your blog but I keep getting a message that reads: unceasingrhythms.wordpress.com is no longer available. The authors have deleted this blog. I want to post your poem but I want to link it back to you. Please let me have your blog address.

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      3. i have changed the name of the blog to mysticparables.wordpress.com… no worries then, :) i am glad you liked the poem, it was heartfelt and just for you and Vic… take care :)

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      5. Life is so hard for her. Vic is in terrible debilitating pain and has reached a stage in her journey where death is no longer the enemy. Living or rather breathing is… Thank you so much for your compassion! I too am so happy to have met you.

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  6. I just don’t know what to say, as I cannot imagine the agony all of you suffer in different ways. I feel you when you say the doctors keep terminally ill patients alive at any cost. Of course death is not the enemy for Vicky, but leaving all of you in grief is so much worse. I’m truly sorry.

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  8. Pingback: New Kinds of Smiles « The Smile Scavenger

  9. What an unusual and touching blog…Mom to mom -I cannot imagine what it must be like knowing your child is terminal and there is absolutely nothing you can do to stop the train wreck. My heart goes out to all of you. God’s blessings and peace to you…

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  10. reading this shows that its painful no matter the age of the parent/child… i have been following rockstar ronan… how horrid… then i read this… I’m so sorry for your pain…
    I still have my 3 babies but did lose one before the 3 I have now… also my youngest is DeafBlind… I have empathy for you… I’m so sorry!!!

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    1. Thank you so much for your kind words. I am sorry I am only doing this now but you may know that Vic died on the 18th of January… I will now check on you. Hugs!

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    1. Oh Rachel I am so sorry that I am only responding now. Vic’s death has been all consuming and I neglected my “reply’s”. I humbly accept and will post over the weekend! Thank you.

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  13. I picked you up from a comment on another blog.

    I often feel guilty for putting my parents through everything they have been. Thing is, they wouldn’t have it any other way. I have no doubt that Vic recognises and appreciates everything you do for her.

    I think mums caring for their unwell children are so brave. I know my mum passes her strength on to me.

    Wishing you all the best

    Steven

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    1. Thank you dear Lucia. An award from you is extraspecial – you are such an amazing blogger!!!! I will post my acceptance by next weekend! Blessings and hugs Tersia

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  16. Vic was blessed to be surrounded by such a loving and giving family. Your daughter has taught others about compassion and bravery and will continue to do so as you blog about your love for her and coping with the inevitable grief of it all. God bless you and your family.

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  17. Yes, she has blessed me so very much already. She has connected us by a pathway of which we cannot understand but one day we will. Have faith in that. Blessings from Brandon’s Mom.

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