I thought Sunday to Wednesday was a nightmare but boy oh boy come Wednesday morning and my child became a terror! The “my son really needs me” adrenaline kicked in and Vic was uncontrollable!
She was out of bed, marching into Jared’s ward as if she was the healthiest person in the world! I was at a total loss. My dearest friend Gillian wrote me a message: “What a wonderful mom. Her child comes before her illness. Will not let go until her kids are okay. You can be very proud of your daughter”… My reply was: “Yeah – too cross with her to give her any credit at this stage”
Vic cannot pace herself. Like on Sunday, she will be like a jack-in-the-box and when the moment is over, crash! In this super human effort to be there for Jared she causes so much stress to everyone around her. Jared stresses because she fusses around him, I stress because she is overdoing things again and I know there is a severe penalty to be paid for that, Jon-Daniel stresses for both them! Danie stresses for me… I get irritated with Danie for trying to protect me…. It is a vicious cycle of nerves!
Jared’s operation went very well. The poor baby was in so much pain but stoically brave! Not a whimper!! I am so proud of this beautiful boy. I was a little concerned for his emotional well being after Sunday. He cried with fear and frustration for his mother.
Vic was up and down the passages last night checking on her son! This morning Jared said “Oumie I am so tired. Mom kept coming in and touching me…” Vic means so well! She wants to be there for her children but often does not understand that she is the sick one. Her actions stress us out. On the other hand, I must admit, that I was more at ease knowing that Vic was in the same hospital as Jared and able to check on him…
It is such a heart wrenching situation. Vic wants to be a mother and I want her to be a child!! When she is okay she can be whatever she wants’ to be. When she is ill I want her to become my baby again… Vic is an amazing mother. She loves her boys with every fiber of her body. She has fought to stay alive for the boys. Who am I or anyone to deprive her of this wonderful privilege? At the end of the day it is her reward for surviving the odds…
On Monday the physician cancelled the bloods he had ordered and agreed that palliative care was the only route to go… I don’t think he thought she would leave the hospital alive… On Wednesday Vic was looking out for her son…What a brave woman my child is.
Vic was discharged from hospital this morning. It is Thursday.
Vicky is super-human!
Today was a day out of hell for Vicky. She is deadly pale – she actually has a ghost like appearance. She was so ill that she was unable to take pain medication and now her pain is out of control.
If I am having a hard time with this how must this poor child feel? HOW CAN SHE CARRY ON???
Jared has withdrawn completely! Rene, Jared’s councillor managed to speak to Jon-Daniel today. He is in total denial! He said “My Mom is a miracle. She was not supposed to live past the age of 12 The doctors said she would die when she fell pregnant with my brother and me and she is still alive. Lots of times they said she would die…She will get better again”
At first I was filled with disbelief and then I realized with a shock that Jon-Daniel is right! A couple of weeks ago I bumped into an ex-business partner. When he inquired after Vic’s health I said that she was desperately ill and that I thought that the end was near. Frik laughed and said “that is what you said 15 years ago when she was pregnant with her eldest son…”
Vic has been on death row all her life. I know we start dying the day we are born but for most of our lives we are oblivious to the fact. At funerals we may think of our own mortality but for the rest of it we think we are invincible. Jon-Daniel thinks his Mom is invincible.
A colleague asked me earlier today what he should pray for when he prays for Vic. I replied “Mercy”. When I got home tonight and I saw this tiny, pitiful little bundle doubled over from the pain, I panicked and thought to myself “What if Jon-Daniel is right and she gets better again?”
If there is a God He will release my poor child from this dreadful life! It is an inhuman existence that not even an animal deserves. If Vic had been an animal she would have been put out of her misery a long time ago!! God does not have to heal her. He does not even have to take all her pain away. If she could just have SOME quality of life…some pain free time with her boys… Please God hear my prayer!