I started this blog because I don’t trust myself to talk. If I start crying I may not stop. Actually I don’t have too many people to talk to. For the past 10 years we have been waiting for Vic to die. Initially, I think, people believe, that holding a dying person’s hand in the final hours is “romantic” but then the person doesn’t die…and the world moves along. People carry on with their own lives. That is just the way it is. People battle to handle the emotion, the waiting, the suffering. And it is okay for them to move on.
It is not only other peoples fault’s. I don’t have time to visit, go for coffee, phone… It is a constant juggle between Vic, the boys, work, hospital, pain clinic, family. Many of my old friends must think I deserted them. Maybe I have but time in every which way has deserted me.
I have been moved by old friends and acquaintances sending me messages of support. Thank you all. I had no idea that people would actually read my blog.
Earlier today I read an blog written by Michael Wolff, a writer, where he beautifully articulates this dreadful struggle to die. He writes about witnessing a loved one’s inexorably slow, modern-medicine-propped decline and suffering that endlessly stops short of death. It is so true. I cried. http://www.caring.com/blogs/fyi-daily/the-long-long-too-long-goodbye
Good news! Prof Froehlich phoned yesterday and said that Vic and her situation has haunted her. She will do an experimental “procedure” on Vic next week. Monday to Friday Vic will go to theatre for 5 hours a day for a Ketamine/Lithium/something else infusion. Hopefully it will erase the “pain memory bank” and her body will lose some of its opiate resistance. That will be so merciful!! Vic takes 400mg of morphine, in tablet form, twice a day. She also takes Stilpayne, Panado, Degrenol, Neurontin, Buscopan, cortisone twice a day with 25ml morphine syrup every 4 hours for breakthrough pain. The meds is not what is causing her sleeping.
Vic sleeps 95% of the time. When she is awake it is to whimper or vomit.
Jared has started to display symptoms of severe stress. His school marks are dropping and he doesn’t sleep. Like me, he is awake every couple of hours to check on his Mom. Jon-Daniel doesn’t talk. He just carries on. I worry about him – how will he handle The Day, when it comes?
In the movies the Judge says, when handing down the death sentence: “May God have Mercy on your soul” – I pray that God will have Mercy on our souls. Especially on Vic and the Boys souls…
4 thoughts on “May God have mercy of your soul… 30.5.2012”
Vicky is an Amazing women, mother, friend and I’m sure to u companion. On this day twelve years ago, my little baby Angelique died in my hands ….and I often sit crying..praying that it was all just a dream …I’m sure that at times that is how u feel. Though the journey with Vicky cannot be an easy one …the only way I think to deal with it is “to rather celebrate each day she is alive than wait for her to die” I’m sure you all do that anyway. The Vicky I know has amazing will power and lives for her children in the best possible way . The God I know doesn’t get enjoyment out of any person suffering …but rather gives them the inner strength to deal with any painful situation .. I’m sure that if another dose of morephine meant that Vicky could sit and watch her children play one more game of soccer then I know she would say it was worth it …..to u Tersia …..u must be an incredible person …I don’t think u have given up more than u have received …..and believe me although u may feel like u walking this very difficult journey alone …..You Not! Vickys sons are amazing and it can’t be easy watching Their mother suffer, and that’s where u come in, to be their pillar of strength when the time comes .. And Tersia if u need to cry then cry …the angels will help dry your tears …….
God only put us through as much as we can handle. So the people who struggle the most have been chosen by God to be the strongest ones. I cry everytime I read the blog. I can just imagine the inner turmoil inside of you.
It has been said, ‘time heals all wounds.’ I do not agree. The wounds remain. In time, the mind, protecting its sanity, covers them with scar tissue and the pain lessens. But it is never gone
Tersia, you are the bravest woman I know. I hope you are beginning to heal some. I am so happy to see you here. Hugs and light, Barbara
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