Our Hearts Will Always Touch


Forever in my heart Angel Child

tersiaburger's avatarVic's Final Journey

Our Hearts Will Always Touch by Ranja Kujala (Changed)

When I laid there beside you,
Could you feel me there?
My arms were wrapped around you,
And I was stroking your hair.

I was talking about all the good times,
For me they were every single day.
I wanted you to feel love and comfort,
Be happy in some way.

I watched your every breath,
And prayed that each one wasn’t your last.
The time we got to share together,
Went by too quick…Too fast.

I wanted you to wake up,
Please Vic…Open your eyes.
Tell me this is a nightmare,
And not our goodbyes.

As your last breath grew closer,
We lay there peacefully together.
My heart continually breaking,
Because I wanted you forever.

Then there it was,
Your final breath of air.
I didn’t want to believe it,
It was so cruel and not fair.

I held your beautiful face,
And…

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Pain Clinic 11.9


I have started forgetting…. How merciful!

tersiaburger's avatarVic's Final Journey

Urghhh!  Yesterday was a horrible day!

Vic was fine but it was Pain Clinic day…………. I start stressing about the Pain Clinic the day before.  Although it is on an appointment only basis, it is also first come first serve……

With the amount of morphine Vic takes, she needs to be assessed on a monthly basis by a pain specialist.  Vic was not able to go with yesterday morning so I set off on my own.  By now the Pain Team knows me well.  Even when Vic goes I am actually able to give them more succinct feedback on Vic’s pain control than she is.

Generally I do not have a problem in getting her script even when I am on my own.  I walked in just before 8am and the waiting area was packed!  My heart dropped into my shoes.  It was going to be a longggggg day…..

Surprise…

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Vicky Qualifies as a Hospice Candidate…


tersiaburger's avatarVic's Final Journey

Schedule 6 medication – 28 days supply

Just seconds ago I was thinking “What a glorious wonderful day…” when the thought crossed my mind “Hang on a minute…. It is a glorious day because Hospice have agreed to evaluate my sick child????”

Hello!!! How sick is that that our lives has degenerated into a hellhole where Hospice is good news!!

This morning Christa, an internationally acclaimed pain expert, came to evaluate Vic at home. She spent a lot of time with Danie and me to build up a case history on Vic. Christa works for Janssen Pharmaceutical Company as a “Medical Scientific Liaison: Pain”… Part of her responsibilities is to liaise and advise the Pain Clinic and Hospice as an expert!

It was as if a floodgate opened. I rambled on about Vic’s (health) background, history, symptoms, operations, treatment and decisions. I showed X-Rays and photo’s of Vic abdomen…

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Something to think about …. “Define priorities or stop pretending”!!


I have to share this….

Dr. Rex's avatarIt Is What It Is

RefugeesEggs

~~September 9, 2015~~ 

THE EGG IS IMPORTANT … TOSS THE KID AWAY?

The Devastation Wrought By ISIS Has Forced 4,000,000 Into Camps

These families have witnessed horrors beyond belief.

Had they remained they would have been slaughtered.

Now they live in tents, with limited access to food water. Supplies are limited and tens-of-thousands are fleeing to Europe.

Even in this crisis, food is being cut off to 200,000 refugees.

~~SOURCES~~

http://www.refugees.org/our-work/child-migrants/?referrer=https://www.google.com/

~~GRAPHIC SOURCE~~ 

https://www.facebook.com/ReligiousFreeWomen

BLine

In my humble opinion, this graph addresses several topics. All of them controversial.

There are religious people who stand strong in their belief that an unborn child, a zygote, a fetus, should be protected at all costs.

Others have expressed their negative opinions towards refugees in this global movement caused directly by the conflicts and wars in the Middle East.

Many governments in the European Union have turned their back on them.

It’s the people of…

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Vic’s 3rd birthday in Heaven


Monday, the 31st of August 2015 was Vic’s third birthday in Heaven.

It was difficult….

It was the most difficult birthday to date…..

From the second I opened my eyes waves of grief crashed over me. My only conscious thought was to breathe. This too would pass.

Minutes before the clock struck 12 I thought “Now there are merely minutes left of this birthday. Tomorrow the mask is back in position. The world will see what they want to see.”

“I will indulge and consciously soak in this heartbreak for another couple of minutes. I remember the way Vic embraced her birthday. She loved every second of the day…. But now this day is mine – a day of reflection, a day of gratefulness, a day to celebrate the miracle of my daughter’s life and to mourn her death.”

From the first second I learnt I was pregnant I starting thinking, planning and fantasizing about my child’s life. I imagined a sport star; a brilliant academic… a family of my own exactly like my family. I dreamt of being a mother like my mom was. In my mind I created a beautiful world for my little baby.

Then my beautiful little baby daughter was diagnosed with Osteogenesis Imperfecta. My world crashed into a million pieces.
“Your daughter will not live beyond the age of nine…”

I thought I would lose my mind. I started spending every spare minute of my life researching Osteogenesis Imperfecta…finding a doctor that would help and cure my child. Thirty seven years after Vic’s diagnosis Vic finally died.
Hundreds of hours in theater; years in hospital, more years filled with pain, indignity and suffering has passed.

The beautiful world I dreamt of for my child was just that….. A dream…..a nightmare.

The death of a child is a pain so deep that it cannot be expressed in words.

The death of a child is life changing.

The loss of a child is a loss that the parent, no matter how much time goes by, will continue to mourn for their entire life. No matter how much support there is or isn’t, it is a journey a parent travels alone.

In the first year I was scared. I felt the madness gnawing on my soul. Today, I am better. I can breathe.

DSC_0911-001

But, I will NEVER stop grieving for my beautiful angel child.