Tag: Do not resuscitate

A vicious cycle of nerves


I thought Sunday to Wednesday was a nightmare but boy oh boy come Wednesday morning and my child became a terror!  The “my son really needs me” adrenaline kicked in and Vic was uncontrollable!

She was out of bed, marching into Jared’s ward as if she was the healthiest person in the world!  I was at a total loss.  My dearest friend Gillian wrote me a message: “What a wonderful mom.  Her child comes before her illness. WillVic Accompanying Jared to theater. not let go until her kids are okay. You can be very proud of your daughter”… My reply was: “Yeah – too cross with her to give her any credit at this stage”

Vic cannot pace herself.  Like on Sunday, she will be like a jack-in-the-box and when the moment is over, crash!  In this super human effort to be there for Jared she causes so much stress to everyone around her.  Jared stresses because she fusses around him, I stress because she is overdoing things again and I know there is a severe penalty to be paid for that, Jon-Daniel stresses for both them!  Danie stresses for me… I get irritated with Danie for trying to protect me…. It is a vicious cycle of nerves!

Jared’s operation went very well.  The poor baby was in so much pain but stoically brave!  Not a whimper!!  I am so proud of this beautiful boy.  I was a little concerned for his emotional well being after Sunday.  He cried with fear and frustration for his mother.

Vic was up and down the passages last night checking on her son!  This morning Jared said “Oumie I am so tired.  Mom kept coming in and touching me…”  Vic means so well!  She wants to be there for her children but often does not understand that she is the sick one.  Her actions stress us out.  On the other hand, I must admit, that I was more at ease knowing that Vic was in the same hospital as Jared and able to check on him…

It is such a heart wrenching situation.  Vic wants to be a mother and I want her to be a child!!  When she is okay she can be whatever she wants’ to be.  When she is ill I want her to become my baby again…  Vic is an amazing mother.  She loves her boys with every fiber of her body.  She has fought to stay alive for the boys.  Who am I or anyone to deprive her of this wonderful privilege?  At the end of the day it is her reward for surviving the odds…

On Monday the physician cancelled the bloods he had ordered and agreed that palliative care was the only route to go… I don’t think he thought she would leave the hospital alive… On Wednesday Vic was looking out for her son…What a brave woman my child is.

Vic was discharged from hospital this morning.  It is Thursday.

Vicky is super-human!

Hospice


Hospice.

Eat, Sleep, Vomit 12.6.2012


Today was a mixed day.  Although Vic seems marginally more ill and weaker than yesterday she was more upbeat.  When the boys got home we all had tea with her and the boys joking brought a smile to her beautiful little face.  For approximately fifteen minutes there was easy banter in her room.  What a change – our conversations tend to revolve around bowel movements and the color of vomit.

Lying on her bed with me I realized how small our world has become.  Vic’s days consist of Eat, Sleep, Vomit or Eat, Sleep, Tablets – one of the two combinations.   It is amazing that she has not developed bedsores yet.

The Concise Oxford Dictionary defines euthanasia as being “gentle and easy death;  bringing about this, especially in a case of incurable and painful disease”.

I have a simple theory.  Most people who are terminally ill and of full mental capacity are able of ending their own lives  at one or other stage of the disease.  The terminally ill are able to take that extra dosage of morphine themselves.  The vast majority of people have an incredible desire to live and will live through pain and suffering and continue to breath!  Euthanasia is not the issue… You really want to die, you will find a way to die

In the event of a patient suffering from a disease or illness that incapacitates them i.e. motor neuron disease where the patient is ventilated or the patient was left severely brain damaged from an accident, life sustaining treatment should not be allowed.   If doctors are allowed to prolong lives should they not be allowed to end life?  I firmly believe that doctors do not know when to give up.  Vic’s Dad, Tienie, had severe brain damage after a car accident and yet the ICU team resuscitated him after the brain damage had been confirmed!  Why??? What is the purpose of breathing when you are not able to walk, love, talk, breathe on your own?

Professor S A Strauss in his book Doctor and Patient Law, 1984 edition published by J L van Schaik on page 387 states that “in principle every person is legally entitled to refuse medical attention, even if it has the effect of expediting his death.  In this sense the individual has a right to die’.  All that is required is that the declarant, at the time of making his refusal known, is compus mentus…

In the case of Vic she is on 400mg of morphine twice per day and takes 25ml of morphine syrup every 4 hours for breakthrough pain.  Vic has become morphine resistant and the dosages are increasing to keep her incredible, debilitating pain at bay. Surely the dosages of pain medication that she is on must become lethal?  I know that it is Vic’s doctor’s primary intention to make her life as comfortable as possible by the administration of pain alleviating medicines.   Yet the mercy shown to her may have the side effect of hastening death…  Please do not misunderstand me – If I knew how to pray I would pray for her suffering to end!

Vic has a living will with a DNR (Do Not Resuscitate) clause.  I will ensure that it is enforced if the “need” ever arises.

Sometimes I am scared Vic will not die – that she will continue to live, no breath,  in this hell that we call life.  The bottom line is however that Vic will NEVER take an extra dose of morphine and NO ONE will ever administer an extra dosage of morphine.  We all fear God’s retribution for murder… both the terminally ill and their caregivers.

As my dear friend Mohammed says:- her life is in the hands of her God.  We can speculate as much as we like, we have absolutely NO control over life.

I hate seeing Vic suffer but I so cherish the 15 minutes we had today.  Fifteen good minutes in two months…I know I would have taken that extra dose of morphine a long time ago if I was her her shoes.

The world is filled with evil, bad people.  Why don’t they suffer the pain and indignity that my sweet, loving child suffers?  LIFE IS NOT DARN FAIR!!!!!!!!Image

28 days medication….