I do not want to die…Christmas Eve 2012


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2012

A year ago today my heart was filled with profound sadness.  I knew that it would be our last Christmas as a complete family.  I knew that, a year later, I would again battle with Christmas Eve.  I knew then that I would be filled with sadness the next time we sat under a Christmas tree.  I knew that never again would Vic open a gift, sit on Santa’s lap…  

I remember Vic’s last minute shopping and how difficult is was for my precious baby girl to buy her gifts.  She had been too ill to shop in advance.  I remember my impatience with Vic in Edgars.  I knew she was looking for my gift and that she was wearing her little body out trying to find something appropriate for her mommy – my final gift.  I knew that the effort was just too much for her dying body.  I vividly remember her refusing to use her wheelchair.  I remember Jared helping his mommy – literally holding her  upright in the queue.  I remember my anger at the department store because it took so long to process the sales…. I knew that Vic would pay the price for shopping later that day and I wanted a perfect Christmas Eve… An evening embedded in our memories as the best Christmas Eve ever.

Christmas Eve 2010
Christmas Eve 2010

A year ago I posted this:

It is Christmas Eve.  It is a warm, and sunny-day, and my heart is cold.

This is our last Christmas as a complete family.

Vic has been vomiting non-stop.  The acid has burnt the inside of her mouth.  Her derriere is so lumpy, black and blue from the constant injections.  Sr Siza popped in.  She examined Vic and started drawing up a Clopamon and Morphine injection.

“Please Sister, not my bum.  Please do it on my thigh.”

Vic no longer has an appetite.  She is sleeping at least 20 out of 24 hours.  Vic is very warm to the touch and appears flushed.  The thermometer reflects a temperature of 37 degrees C.

“Do you understand what your body is telling you Vic?”  Siza asked

Vic nodded and whispered “I do not want to die…”

“Nobody wants to die, Vicky.  We all will walk this path.  Some sooner than others… You have a degenerative illness and your body is tired…”

“You must surrender your body to God.  It is time for your brain to make peace with what is happening in your body.” Siza said.  “Where is your Bible?”

Siza read from Ecclesiastes 3 – New International Version (NIV)

3 There is a time for everything,
and a season for every activity under the heavens:

2     a time to be born and a time to die,
a time to plant and a time to uproot,
3     a time to kill and a time to heal,
a time to tear down and a time to build,
4     a time to weep and a time to laugh,
a time to mourn and a time to dance,
5     a time to scatter stones and a time to gather them,
a time to embrace and a time to refrain from embracing,
6     a time to search and a time to give up,
a time to keep and a time to throw away,
7     a time to tear and a time to mend,
a time to be silent and a time to speak,
8     a time to love and a time to hate,
a time for war and a time for peace.

Siza prayed for Vic and the family for peace and grace in this time.  Vic cried and Danie gently held her.

Danie, and I walked with Siza.  Her eyes were sad when she said “Her body is shutting down.  It could be quick or it could be a few weeks.”

The rest of Christmas Eve passed as if I was in a daze.  Lani and the kids arrived, my dear friend Judy arrived after a marathon charity event and the smell of gammon and roast lamb permeated the house.  The tables looked festive, and there were tons of gifts under the tree.

Vic handed out the gifts.  The kids shrieked with delight.  A  lot of thought went into the gifts.  The gifts were truly gifts of love.

3 There is a time for everything,
and a season for every activity under the heavens:

   a time to be born and a time to die,

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Vic, Lani and Tom

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A time to be born and a time to die…


A ton of gifts ....
A ton of gifts ….

It is Christmas.  It is a warm, and sunny-day, and my heart is cold.

This is our last Christmas as a complete family.

Vic has been vomiting non-stop.  The acid has burnt the inside of her mouth.  Her derriere is so lumpy, black and blue from the constant injections.  Sr Siza popped in.  She examined Vic and started drawing up a Clopamon and Morphine injection.

“Please Sister, not my bum.  Please do it on my thigh.”

Vic no longer has an appetite.  She is sleeping at least 20 out of 24 hours.  Vic is very warm to the touch and appears flushed.  The thermometer reflects a temperature of 37 degrees C.

“Do you understand what your body is telling you Vic?”  Siza asked

Vic nodded and whispered “I do not want to die…”

“Nobody wants to die, Vicky.  We all will walk this path.  Some sooner than others… You have a degenerative illness and your body is tired…”

“You must surrender your body to God.  It is time for your brain to make peace with what is happening in your body.” Siza said.  “Where is your Bible?”

Siza read from Ecclesiastes 3 – New International Version (NIV)

There is a time for everything,
    and a season for every activity under the heavens:

    a time to be born and a time to die,
    a time to plant and a time to uproot,
    a time to kill and a time to heal,
    a time to tear down and a time to build,
    a time to weep and a time to laugh,
    a time to mourn and a time to dance,
    a time to scatter stones and a time to gather them,
    a time to embrace and a time to refrain from embracing,
    a time to search and a time to give up,
    a time to keep and a time to throw away,
    a time to tear and a time to mend,
    a time to be silent and a time to speak,
    a time to love and a time to hate,
    a time for war and a time for peace.

Siza prayed for Vic and the family for peace and grace in this time.  Vic cried and Danie gently held her.

Danie, and I walked with Siza.  Her eyes were sad when she said “Her body is shutting down.  It could be quick or it could be a few weeks.”

The rest of Christmas Eve passed as if I was in a daze.  Lani and the kids arrived, my dear friend Judy arrived after a marathon charity event and the smell of gammon and roast lamb permeated the house.  The tables looked festive and there were tons of gifts under the tree.

Vic handed out the gifts.  The kids shrieked with delight.  A  lot of thought went into the gifts.  The gifts were truly gifts of love.

There is a time for everything,
    and a season for every activity under the heavens:

   a time to be born and a time to die,

Vic doing the Santa thing
Vic doing the Santa thing
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Vic, Lani and Tom
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Love is family…
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Our dear friend Judy, with Vic, and I. How beautiful is baby Izak?
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Danie and I with Vic

Danie – the “Wind Beneath My Wings”!


Today my beloved Danie turned 74.  He is an absolutely amazing person.  He has the wonderful ability to love and to be loved.

I met this amazing man through mutual friends 24 years ago.  It was two weeks before his 50th birthday.  I casually asked whether he was going to have a big party and he said “no”.  He was newly divorced and did not feel up to a party.  In a moment of pity I said “Well, nobody should be alone on his birthday.  If you are not doing anything pop around for a glass of wine…”

He duly popped around for a glass of wine.  After a couple of glasses of wine I asked him if he had dinner.  He said “No” and I said I would see if I could throw together a tuna salad…  I opened my fridge and it was pretty empty.  Some salad stuff, milk, apples and a couple of bottles of wine…

I managed to put a salad together but I could see the birthday boy was not overly impressed.  I was not concerned at all.  He was far too good looking and newly divorced so I did not want to get involved with him.  I had been divorced for many years and Vic was used to it just being the two of us.

I dodged all Danie’s advances for more than a year.  On the 8th of December 1989 I accompanied Danie to a black tie event.  At the function I could not help but notice the reverence his colleagues had for him.  He danced like a dream and remembered that it was my birthday at 12 O Clock….  It was truly a fairy tale night and I fell hopelessly in love.

Vic immediately sensed that there was danger!  She referred to him as “that man”…. She cried a lot and wanted to come home from boarding school.  Vic made a 360 degree turn around.   She went from wanting to go to boarding school to wanting to move home… from independent to needy… from being a difficult teenager to being an impossible teenager.

I met Danie’s children.  I was terrified!  I did not know or like children.  My life was structured, neat, organized and perfect.  I was totally committed to my career.  I had property, a business, lots of friends, a healthy bank balance and my own toolbox.  I did not need any complications in my life!!

I prayed so hard so direction… I explained to God that I was so scared of making a mistake that would affect so many people’s lives.  I asked for a clear scripture!

I opened my Bible and the scripture that jumped up at me was Ecclesiastes 4:9-12 “9 Two are better than one, because they have a good reward for their toil. 10 For if they fall, one will lift up his fellow. But woe to him who is alone when he falls and has not another to lift him up! 11 Again, if two lie together, they keep warm, but how can one keep warm alone? 12 And though a man might prevail against one who is alone, two will withstand him—a threefold cord is not quickly broken.”

I immediately went back on my knees and prayed again.  “God, thank you for the scripture you gave me but what about all the children?”

I opened my Bible and it fell open on page 793 of the Old Testament.  Isaiah 54:1-17 “Sing, O barren one, who did not bear; break forth into singing and cry aloud, you who have not been in labor! For the children of the desolate one will be more than the children of her who is married,” says the Lord. “Enlarge the place of your tent, and let the curtains of your habitations be stretched out; do not hold back; lengthen your cords and strengthen your stakes. For you will spread abroad to the right and to the left, and your offspring will possess the nations and will people the desolate cities. “Fear not, for you will not be ashamed; be not confounded, for you will not be disgraced; for you will forget the shame of your youth, and the reproach of your widowhood you will remember no more. “

Barren? That was me…  The day after Danie’s 52nd birthday we were married.

So tomorrow this wonderful man and I will celebrate our 22ND Anniversary.  We have managed to create a “home” for our five children.  The children, I feared, I now love as my own.  Two of the four call me “Mom”.  Their children are MY grandchildren.  They allow us to be part of the children’s lives and do not discriminate between the grandmothers.  From the day we were married Vic has called Danie “Daddy”.  Danie’s four children are her siblings.  They are our infrastructure.

Danie has been so absolutely amazing with Vic and her illness.  When my dad moved in with us Danie just accepted it as part of our journey.  He was incredibly patient with my Dad who suffered from Alzheimers.  He is my back-up system.  His selfless, caring nature has allowed me to pursue my career.  I am able to travel internationally for my work as he is home…..he is my back-up.  He fetches and carries the boys.  He checks on Vic and loves her and the boys unconditionally.  He shops and manages the home in my absence.  He thinks I am beautiful and smart.

This beautiful man is more than I deserve.  I love him with every fiber of my body.  I am grateful to him for the gift of his children and grandchildren every day of my life.  I am grateful that he taught me the biggest commandment of all – love!

So tonight I salute a wonderful man, husband, father and grandfather.  He is my best friend.  He is an amazing father to Vic.  Thank you God!

He is truly “The wind beneath my wings”  http://www.youtube.com/watch?v=c9ZMDPf9hZw&feature=colike