I do not want to die…Christmas Eve 2012


20121208_205424

2012

A year ago today my heart was filled with profound sadness.  I knew that it would be our last Christmas as a complete family.  I knew that, a year later, I would again battle with Christmas Eve.  I knew then that I would be filled with sadness the next time we sat under a Christmas tree.  I knew that never again would Vic open a gift, sit on Santa’s lap…  

I remember Vic’s last minute shopping and how difficult is was for my precious baby girl to buy her gifts.  She had been too ill to shop in advance.  I remember my impatience with Vic in Edgars.  I knew she was looking for my gift and that she was wearing her little body out trying to find something appropriate for her mommy – my final gift.  I knew that the effort was just too much for her dying body.  I vividly remember her refusing to use her wheelchair.  I remember Jared helping his mommy – literally holding her  upright in the queue.  I remember my anger at the department store because it took so long to process the sales…. I knew that Vic would pay the price for shopping later that day and I wanted a perfect Christmas Eve… An evening embedded in our memories as the best Christmas Eve ever.

Christmas Eve 2010
Christmas Eve 2010

A year ago I posted this:

It is Christmas Eve.  It is a warm, and sunny-day, and my heart is cold.

This is our last Christmas as a complete family.

Vic has been vomiting non-stop.  The acid has burnt the inside of her mouth.  Her derriere is so lumpy, black and blue from the constant injections.  Sr Siza popped in.  She examined Vic and started drawing up a Clopamon and Morphine injection.

“Please Sister, not my bum.  Please do it on my thigh.”

Vic no longer has an appetite.  She is sleeping at least 20 out of 24 hours.  Vic is very warm to the touch and appears flushed.  The thermometer reflects a temperature of 37 degrees C.

“Do you understand what your body is telling you Vic?”  Siza asked

Vic nodded and whispered “I do not want to die…”

“Nobody wants to die, Vicky.  We all will walk this path.  Some sooner than others… You have a degenerative illness and your body is tired…”

“You must surrender your body to God.  It is time for your brain to make peace with what is happening in your body.” Siza said.  “Where is your Bible?”

Siza read from Ecclesiastes 3 – New International Version (NIV)

3 There is a time for everything,
and a season for every activity under the heavens:

2     a time to be born and a time to die,
a time to plant and a time to uproot,
3     a time to kill and a time to heal,
a time to tear down and a time to build,
4     a time to weep and a time to laugh,
a time to mourn and a time to dance,
5     a time to scatter stones and a time to gather them,
a time to embrace and a time to refrain from embracing,
6     a time to search and a time to give up,
a time to keep and a time to throw away,
7     a time to tear and a time to mend,
a time to be silent and a time to speak,
8     a time to love and a time to hate,
a time for war and a time for peace.

Siza prayed for Vic and the family for peace and grace in this time.  Vic cried and Danie gently held her.

Danie, and I walked with Siza.  Her eyes were sad when she said “Her body is shutting down.  It could be quick or it could be a few weeks.”

The rest of Christmas Eve passed as if I was in a daze.  Lani and the kids arrived, my dear friend Judy arrived after a marathon charity event and the smell of gammon and roast lamb permeated the house.  The tables looked festive, and there were tons of gifts under the tree.

Vic handed out the gifts.  The kids shrieked with delight.  A  lot of thought went into the gifts.  The gifts were truly gifts of love.

3 There is a time for everything,
and a season for every activity under the heavens:

   a time to be born and a time to die,

IMG_7949

Vic, Lani and Tom

IMG_7913

IMG_7968

IMG_7985

 

I read in the Bible that Heaven is a great place…”


Dr Sue putting up the drip. "If we knew you were going to take a photo we would of had our hair done..."
Dr Sue putting up the drip.  “If we knew you were going to take photos we would have our hair done…”

Sue came in this morning and managed to find a vein.  The vein held for the Perfalgan and she also managed to get a bag of saline into Vic.  This will hopefully rehydrate her.  It has been a rough 24 hours with so much vomiting.  The poor child…

We hooked the saline onto a hanger and it now hangs from her ceiling.  Leon, SiL, put a hook into her ceiling and we have suspended the drip from it.  I have to keep the drip flowing until 12pm tonight when I can run another lot of Perfalgan.  Tomorrow Sue will try to find another vein.

I suggested that Vic is mainlined or a stent is fitted.  Sue agreed that it would certainly make life a lot easier.  It would be easier to administer all Vic’s IV medication.  Vic said “Sorry Mommy, no hospitals…”

Vic's drip suspended from the ceiling
Vic’s drip suspended from the ceiling

Her heart rate, even whilst she is sleeping, is constantly above 110.

The IV medication immediately helped.  Vic’s breathing is better.  Vic has not vomited since 11 am this morning!  She even managed to have a bit to eat tonight.

When Sue left today she asked me what is holding Vic back.  Medically and clinically speaking there is no explanation why Vic is still alive…. She said that she has never seen anybody fight death the way Vic does… She asked me whether we have given Vic permission to die…

Sue says that Vic still says we are going to Italy next year…. Her kidneys and liver have failed.  That is what the blood tests show.

What is holding Vic back?  Sue says death happens when one relaxes completely and deeply!  Vic’s adrenaline levels are preventing her from relaxing and dying.

All I want is for my little girl to find peace and her suffering to end.

Esther and Leon brought dinner tonight and just visited.  Vic even got out of bed for a while and had a laugh.  It was great being surrounded by the love of the family.

I wish I knew what to do to make Vic accept the inevitable.  I wish with every fibre of my body Vic will find peace.   That she will find the strength to let go…

Vic has been ill for such a long time.  Maybe she just thinks this is how life is.  Maybe she cannot remember what it is like to feel good, go out, be carefree, move without pain.  To play with her kids, go out for drinks or a movie with a friend.

On Christmas Eve Siza said to Vic “I read in the Bible that Heaven is a great place”….

Here On Earth …, There In Heaven…

Here on earth imperfection, there in heaven perfection
Here on earth discontent, there in heaven content
Here on earth disgrace, there in heaven grace
Here on earth disease, there in heaven ease
Here on earth hatred, there in heaven love
Here on earth war, there in heaven peace
Here on earth decay, there in heaven freshness
Here on earth selfish, there in heaven selfless
Here on earth oppression, there in heaven liberty
Here on earth agonize, there in heaven relax
It’s either on earth, or in heaven
The decision, all yours 

Obed Akuma
vicbaby

 Baby Girl it is time for Heaven…   You have to let go!

10 days to Christmas Eve…


DSC_0037

It has been a crazy week.  Between Vic, final 2012 business meetings, a brochure photo shoot, visiting grandchildren, Jared’s birthday party and Hospice meetings I have run around in circles.  I have not had time to blog or read all the blogs I am following.

Vic has had a reasonable week.  I can see her getting weaker every day.  At night I give Vic a Pethidine, Zantac and Buscopan injection.  The Pethidine makes her sleepy.   During the day she is able to tell me she needs an anti-nausea injection.  At night the drug-induced sleep does not allow her the luxury of early warning.  Vic projectile vomits every day of her life!

Vic has also had a couple of uncontrolled sneezing attacks and lots of hiccups.  I fear she will fracture ribs and vertebrae if we are not able to control this quickly.  I have started giving her antihistamine tablets.  Hospice tells me it is a symptom of the kidney and liver failure and will get much worse.

Her arm is still very inflamed and painful.  We are now on the 3rd round of antibiotics.  The tissue in her derriere is very poor.  It is lumpy and bruised.  It is becoming more and more difficult finding good tissue where I can inject her.

Emotionally it is really a difficult time.  Vic is spending as much time with the boys as possible.  She is doing a lot of what appears to be “lasts”….

It is 11 days to Christmas, and we are looking forward to a quiet Christmas Eve with the family.  Our gifts are not as extravagant as other years.  Our priorities are simply different this year. This year Christmas will be a time of love and togetherness.

It is 10 days to Christmas Eve…