Dying is a lonely journey. Not only for the sick person but also for the family. As hard as we may try to avoid death, the truth is that we do a lousy job of it. Science and medicine will certainly postpone it, even staying healthy might seem to delay it, but the harsh reality is that death does not wait for you, it does not ask you, and it does not listen to you. Death ignores your feelings and wants; you do not matter to death…Death is the only certainty in life! We need to remember that our existence here is fragile, and we never have as much time with people as we think we do. If there is someone or someones out there that you love, don’t neglect that and don’t put off engaging with them because waits for no-one… Vic's Journey ended on 18 January 2013 at 10:35. She was the most courageous person in the world and has inspired thousands of people all over the world. Vic's two boys are monuments of her existence. She was an amazing mother, daughter, sister and friend. I will miss you today, tomorrow and forever my Angle Child.
“Who is it that loves me and will love me forever with an affection which no chance, no misery, no crime of mine can do away? It is you, Mother” Thomas Carlyle
This is an amazing post that articulates Rebecca’s journey after her son, Jason, died. I could replace the words “son” with “daughter” and “Jason” with “Vic”… I blogged on my battle with my faith and the church. https://tersiaburger.com/2013/07/05/i-think-god-hates-me/
As most people know, it’s not uncommon for a parent to have a crisis of faith following the death of his or her child.
What is a crisis of faith? One definition is “periods of intense doubt and internal conflict about one’s preconceived beliefs*”. The key words here are “intense doubt” and “preconceived beliefs.” Basically, it’s when we thought we knew something for certain (or perhaps took something for granted) in the realm of our faith in God (what we “see” with our spiritual eyes or experience and understand in our spiritual lives or believe to be true in the spiritual realm); but when it differs so drastically from what is the reality of our lives (what we “see” with our physical eyes or experience in our physical world), we question everything we believed. Our preconceived beliefs don’t jive with what we’ve just experienced. Trying to reconcile the two opposing concepts when they are at extreme odds with each other can lead to a crisis of faith.
One of the things I miss most since Jason died (besides Jason and my life as I knew it before my world was shattered) is my unquestioning faith in God. I remember times when my heart was so full with love for God that I thought it would burst. I don’t feel that way any more, at least for now. I remember standing by the cassette player (yes, cassette player) with my eyes closed, singing my pledge of devotion to God along with Andrea Crouch or Clay Crosse. I remember being so moved by a song as I sang in the choir that I could hardly get the words out. “Though He slay me, yet will I trust Him” (Job 13:15) was my anthem. I would have died for my faith, for God.
But what happens when it’s not you who are “slayed” and it’s your child who dies? What happens when you have to face life without your child, when you have to figure out how to go on living without your child? Then it’s not quite so easy to say, is it? I doubt that there isn’t one parent whose child died that gladly wouldn’t have taken his or her child’s place. I would much rather take the brunt of something awful FOR my children than it happen TO any of them. I would gladly have died in Jason’s place.
There are parents who seem to find a “greater good” or a “higher purpose” or find solace that God is in control of their child’s death. I just haven’t been able to do that. I woke up nearly every night, went downstairs to kneel in front of the couch and pray for my family, for my kids and their friends. I prayed with all my heart and all my being for my kids’ lives and their protection. And still Jason died. And still our family has had to walk through so many hard things, just a fraction of which I would tell most people. How do I reconcile those two?
I have had a crisis of faith. Does that mean I don’t believe in God? No. It just means it seems that what I thought I knew about God wasn’t accurate. It means that what I thought God would “do” for me, He wouldn’t or didn’t do. I thought that if I prayed for my kids that they would be protected. I thought that if I served God with all my heart and tried to do the right things God would make things right for me. I believed that God heard my fervent prayers, that my prayers “availed much” (James 5:16) in the kingdom of heaven and on earth, and that God answered my prayers. I believed God protected my family. I guess I sort of saw God like my own personal genie who could grant me whatever wish I wished for if I wished hard enough for it. That’s not faith; that’s wishful thinking.
Right after Jason died, I remember praying and praying that God would make something good come out of Jason’s death. I didn’t want Jason’s life and death to be for nothing. Both my husband and I felt, from the moment Jason was born, that God had great plans for his life. We felt that he was to do something great for God. And then God didn’t protect Jason and he died. After he died, I prayed that Jason’s life would be like a pebble dropped in a pond, that the ripples of his precious life would be like concentric rings and reach far and wide. Surely, there had to be more to Jason’s life and his living than he would die at the age of 19 before he barely was into adulthood. Surely, “all things work together for good to them that love God, to them who are the called according to his purpose (Romans 8:28),” don’t they? I guess I’m still looking for the “good” to come out of Jason’s death, as I can’t say that I’ve seen it yet.
I felt God’s presence incredibly close after Jason died. I felt the prayers of people who knew us, lifting us up before the Most High. Somewhere along the line, it seemed as though God wasn’t paying attention any more, that He really didn’t care about the anguish we were going through. Somewhere along the line, I felt like God had abandoned us. I felt like the heavens were brass and my prayers weren’t even reaching the ceiling. I felt that people were no longer praying for us. Somewhere along the line, it seemed as though God’s people didn’t care so much any more. God’s people abandoned us.
Honestly, I have to say that being left so alone by nearly everyone we knew added exponentially to my crisis of faith. Who were most of the people we knew? Christians. People in the church. People we had served and had served with in the church and homeschool community. Christian people I thought of as friends, as extended family since our own families were more than halfway across the country. I thought of Christian people as extensions as the hands and feet of God. I looked to them for support; I expected them to be there for us. Not only did God seem so very far away, out of reach and uncaring, so did nearly everyone else we knew. When you’re hurting so badly, it’s easy to confuse God, the church, and God’s people. It seemed that not only had God let us down and left us alone, so had His people.
I know I have beat this drum a lot in writing my blog – “we were alone, we were alone, nearly everyone left us.” “Nobody loves me, everybody hates me, guess I’ll go eat worms,” right? If that’s what you think, you’re missing the point. Many bereaved parents feel so very alone at the time they most need support. Many bereaved parents ARE left alone at the time they most need support, kindness, hugs, and an ongoing expression of God’s love. We ARE the hands and feet of God on this earth. We need to remember that.
I wrote in an earlier post about reading and relating to the Book of Job. Job suffered great losses. His “friends” came by to “comfort” him – more like confront him – in his grief. They accused him of sinning. He felt deserted by God, his friends and his family. He didn’t understand why God was doing this to him. God had been good to him, and now he felt like God was punishing him for something he didn’t do. He didn’t understand. He had a crisis of faith.
Is a crisis of faith a sin? No. It’s an opportunity to grow. It’s an opportunity to look carefully at what we believed and what we thought we knew, throwing out the wrong while trying to find the right. It’s an opportunity to learn that our ways aren’t God’s ways, as hard as that may be to accept or understand. It’s an opportunity to remind ourselves that now we “see through a dark glass (I Cor. 13:12).” It’s an opportunity to remind ourselves that we walk by faith, not by sight. We don’t know it all. All we know is what we can see with our finite eyes, and all we can understand is what our finite mind can comprehend. The rest has to be taken on faith.
I still struggle greatly with my faith. I still have more questions than answers. I feel like my faith is so small, and my ability to believe and trust in a God that seems to have let me down is small. I no longer see “the church” as a source of comfort or a source of friendship and support. I have very little desire to attend church. I need God to answer prayers for me right now. I need to see that he hears me and cares for the struggles my family and I are going through. I hope that He hears me more than I have an assurance that He hears me. I am worse for wear.
But, I know that this isn’t the end of it. I pray, though not with the fervency and unquestioning devotion as I once did. I try to water that root of faith I have had since I was a child. I know that root of faith goes deep, although most of the above-ground, visible manifestation of my faith may have been pruned. More often than not, in my prayers I remind God, “Lord, I believe. Help my unbelief (Mark 9:24).” I remind myself of what I know for certain. I believe in God. I believe in heaven. I believe Jason is in heaven with his hands lifted in praise to the Most High, even as he was the Sunday before he died. I know that the grave was not Jason’s final destination. I know I will see him again. I know that someday I will join Jason before the throne of God, and then I understand. And that’s as good a place to start as any.
For further reading on Job, I recommend this post: The Trial of Job.
On Sunday I surrounded myself with my Steel Magnolia friends and loved ones. Everyone tried so hard to make things better and easier for me. The little girls especially were so sweet. Jon-Daniel was very quiet and avoided me. Jared was gentle and loving.
I thought I hid my feelings well. I laughed loud and a lot. When everyone sang “happy birthday” I saw sadness, for me, in my one friend’s eyes. No matter how much I laughed and smiled she saw through my mask…
Some people know our souls. They see our hearts. They care enough to want to protect.
I took a sleeping tablet Sunday night. I normally wake up early enough to see the sun come up. I just lie and watch the light increase through the branches of the big oak tree. This is my “reflection time”. I was determined to sleep for as long as possible.
I still sleep on the sofa in my TV lounge. I have not been able to move back into my bedroom. I still lie on the sofa waiting for Vic to either call me or come shuffling down the passage. I seldom sleep before 2am. That was pain meds time…
Yesterday morning I woke up from a slight noise in the kitchen. I knew it was either Danie or the boys making tea. The next moment I heard people singing. It was my Steel Magnolia friend, Rina, the boys and Danie. She had colluded with the boys and Danie the previous day. She sneaked in with wonderful warm scones, cheese and cream. The boys made tea…
It was a very difficult day. I took no phonecalls…I only spoke with my siblings, the kids and one other friend. I attended the funeral of an old friend. I never cried a single tear.
Last night we went to dinner and movies. We watched a slapstick comedy. When we got home I had to clear out my car as it was booked for a service today. When I emptied the cubbyhole I discovered an old birthday card from Vic… The card was dated 9.12.2000
All the cards I ever received from Vic, Danie, the other kids and grandchildren are in a beautiful memory box. I simply just don’t understand how this card landed up in the cubbyhole of my car.
I am so blessed. It was a good birthday. I was surrounded by love and friendship. I received birthday wishes from heaven!
Thank you my precious Angel Child. I love you with all my heart. It is such a comfort knowing that you are with me. I am grateful that you knew how much I loved you.
As I sit in Heaven And watch you everyday I try to let you know with signs I never went away I hear you when you’re laughing and watch you as you sleep I even place my arms around you To calm you as you weep I see you wish the days away Begging to have me home So I try to send you signs So you know you are not alone Don’t feel guilty that you have Life that was denied to me Heaven is truly beautiful Just you wait and see So Live your life, laugh again Enjoy yourself, be free Then I know with every breath you take You’ll be taking one for me
Late Saturday night Vic’s restlessness was indicative that she was determined to be the first to wish me. At 11.30 pm she came through and said “another half hour….. I want to be the first to wish you Mommy. I just want 30 minutes alone with you on your birthday…”
“No problem angel. I’ll switch the kettle on.” I said
“I will be back in a minute” she said
I made coffee and checked some e-mails. At 12:00pm I expected her to come through singing “Happy Birthday” but no Vicky….
I went through to her room and the poor baby had fallen asleep on her bed…
Jon-Daniel came through and brought me a cup of tea on a tray, with a gift and card and a rose! “Happy birthday Oumie” he said.
He had bought a book I have wanted to read for a while “The Elephant Whisperer” – It is an inspiring, true life drama of a herd of wild African elephants on an African game reserve. The herd is destined to be shot for dangerous behaviour when this special human being, Anthony, intervenes to try to save their lives. I was so thrilled that he remembered.
Just before 01:00 am Vic shuffled into my TV lounge.
“Oh Mommy, I am so sorry I fell asleep. I thought I would just close my eyes for 5 minutes whilst you make the coffee…”
We sat and chatted for a while. Vic shared her good wishes with me and we just sat and spoke. We spoke about our very special mother-daughter relationship. We spoke about years gone by and how blessed we are to have this time together. (I cannot imagine Vic married and living in someone else’s home on her final journey.)
The girls, Esther and Lani, arrived at 10:00am with gifts, a cooked meal, dessert and cake. The grandchildren set the table… My sister Lorraine and dear friend Judy arrived bearing armloads of gifts. The grandchildren had written me letters and cards – it was so special. Vic bravely cooked a pot of rice and had lunch with the family. All the grandchildren swam and played tug-a-war! We laughed and joked.
It was a perfect day.
Esther and Lani planned the day to start early whilst Vic is at her best. As the day progresses so her energy levels decrease. Immediately after lunch Vic went to bed. She was in so much pain and absolutely exhausted.
All the grandchildren wanted to stay.
Sunday evening we Skyped my son and his family in the UK. Vic and Danie spoke. Vic and Danie Jnr have a special bond.
Twenty two years ago I married Danie Sr and his four children; Esther 23, Lani 18, Liza 16 and Danie 11… Danie married me and one, sick, very protected, spoilt brat, Vicky, aged 16. Vic and Danie Jnr were the two kids who lived with us. Vic embraced her new family. (I was petrified of the children!)
Vic’s siblings have been amazing over the years. I could never have coped as well as I do if it was not for their love, support and encouragement. The siblings are fiercely protective of their little sister.
Vic and Danie Jnr spoke for at least 10 minutes last night. It was a sad conversation between a brother and his older, little sister.
“I miss you too Vic. How are you feeling?” Jnr asked
“I am battling Boetie (Little Brother) Vic said
“We are coming to visit in April then I will see you Vic”
“I don’t know if I am going to make it to April” Vic said
“Just hang in there Vic. It is not that long to April…” Jnr consoled her
“I know but I am tired. I am just missing you” Vic cried
“I will fly over for a weekend. I want to see you again” Danie promised
Vic was so tired last night. Her little body cannot handle parties anymore. She tries so hard. This weekend we will have Jared’s 16th birthday. It is only his birthday on the 26th but most of his friends are away for Christmas so we have his friend party an early in December.
I know this will more than likely be another last for Vic.
“The woman who creates and sustains a home and under whose hands children grow up to be strong pure men and women, is a creator second only to God” Helen Marta Fiske Hunt Jackson
Vic raised two magnificent young men. They have beautiful manners, they are respectful to their elders and especially women. They are gentle, compassionate and like their mom they speak badly of no one. They have a wonderful set of values and morals.
Vic had so little time to raise her boys. She spent most of their lives in a hospital bed or in bed at home. The boys grew up doing their homework in her room, helping her cook… Jared was four years old when he made his (and his brothers) bed. “Because Mommy’s back is sore”…
The boys are old souls. They have witnessed so much pain and suffering… They have lived with, and cared for, a dying mother.
There was almost a Godliness to the way Vic raised her boys. Vic taught the boys to love their Lord. It shows in their pure hearts. Her legacy lives on through and in her boys.
I am so proud of you my Angle Child. You did good!
A mother’s love is like God’s love; He loves us not because we are loveable, but because it is in His nature to love, and because we are his children.
Earl Riney
You taught me love. You taught me honesty. You taught me to love unconditionally. You taught me how to forgive and how to be strong. You are the strongest person I have ever known. You gave me strength when I was weak. When times were sad and tough you reminded me to be grateful for the small things in life. You taught me how to be myself. Most of all you taught me about life and how to live.
Sr Siza examined Vic today. She phoned Dr Sue who will be in tomorrow morning. She also brought a script with for Dalacin antibiotics. The cellulitis has spread to all three the subcutaneous sites.
Siza expressed her concern at Vic’s decline…
Last Friday Danie, my husband, came and sat next to me and said “I know everyone says it will be better for Vic to die than live in this pain but I was thinking how hard it will be for us without her…”
That statement really shook me. Up until now death has been a hypothetical issue… Doctors diagnoses and prognosis…predictions… I have never really considered living without my child.
Last week Siza and I met with the CEO of Amcare, a large community project that provide community based feeding schemes, HIV/AIDS Counselling, Home-based care, skills development, ARV Clinic, women and children shelters. We are hoping that they…
“Mom’s hugs are like peanut butter and jelly sandwiches – they’re sweet and they stick with you a long time.” Anonymous
Vic would hug and hold… I hug and release….
Vic once told me I am a lousy hugger. It was said in jest, but I know that Vic loved hugging for that extra couple of seconds (or minutes). She loved feeling loved and treasured.
Vic taught her boys to hug. She taught them to say “I love you”.
Vic hugging her late fatherVic raised “huggers”. I am so grateful!Vic and I always hugged and held hands.Vic hugging her precious son…A precious moment between Vic and Jon-DanielWe come from a family of huggers. Here my Dad and Vic are hugging.
Vic’s love was like a peanut butter and jelly sandwich. It left a wonderful aftertaste and stuck for a long time.
“Motherhood: All love begins and ends there.” Robert Browning
Jared and his Mommy
Vic was born to be a mommy. As a toddler she would “discuss” her babies names with me….
“What are you going to be when you grow up Sweetie?” I would ask
“A mommy” she would reply
There were no if’s or but’s about it as far as she was concerned. She started “designing” her wedding dress and planning her family at the age of three. Vic had no ambitions of ever becoming a doctor, lawyer or politician…She only ever wanted to be a Mommy. Vic had no half-measures in life. Whatever she did she did with passion…
She loved and lived passionately.
She revelled in the joy of motherhood. Vic was a passionate mother. Over protective, caring, loving…
Jon-Daniel and his Mommy
Motherhood took a terrible toll on her body. Not once did she regret her decision to have the boys – despite the price she paid.
It is the silly season. The season of madness. It’s the time for holiday merriment with its relentlessly upbeat expectations, sometimes forced, especially for those of us grieving the loss of a loved one.
No matter where I or what I am doing, there is always one thought that is in the forefront of my mind: “My child is dead”. That thought can never be erased. It has become a part of my soul.
I sense an impatience in some people for me to “get over it”, “put it in the past”, “stop dwelling on your loss”, or “move forward”
Yes, I have moved forward, but I can never forget. There is an aching in my soul and a hole in my heart. There is always a part of me that is always aware that “my child is dead.” I will never be complete again. Nothing or no one can fill the place my child had in my life and heart!
Like a drowning person I am grabbing onto symbolic things – an angel garden, burning candles, a memorial light in a tree of remembrance, a Hospice….. These symbolic things simultaneously provides solace, searing pain and anger.
On Friday night the Tree of Remembrance was lit at the premises where our Hospice building is. I was filled with such immense sadness that I was unable to contain my tears. I know that I was not the only one moved by the lighting of the tree. I was flanked by a dear friend who lost her husband nine months ago and a colleague who lost her mother a year ago. Gentle tears ran down their cheeks. Jared, my eldest grandson who stood behind me, put his arms around me and whispered “I miss Mommy too…”
Many bereaved people will pretend this is just another holiday season. It isn’t. I refuse to pretend that it is.
This will be my first birthday, our first Christmas, Jared’s 17th birthday and New Year without Vic. My birthday I hope to ignore. Christmas Eve we will spend at Lani’s house with a lot of people we don’t know. I know there will be no room for thought. There will be a lot of food, gifts, talking, laughing…. Christmas Day I will go to a squatter camp with Reuben and the children in his church. We will provide the poor with a meal. Jared’s birthday – we will all make a huge effort to make special… New Year’s I will remember knowing last year that Vic was dying. That it was her last New Year.
Dick Lumaghi, bereavement coordinator for Hospice of Ukiah says “The depth of a grief is exactly proportional to the depth of attachment; from one perspective, a deep grief is a badge of honour, a big love between two people.”
I do wear my grief as a badge of honour. My precious child was gentle, kind, compassionate, beautiful, loyal and loving. She earned every tear I have ever shed. She earned ever tear I will ever shed. I wish people would understand that it’s total impossible for me to “get over it”, “put this in the past”, “stop dwelling on your loss”, or “move forward”.
I love my child. I miss my child. I want my child home with me.
I still remember my precious child’s eyes. Old, wise eyes filled with pain and fear. I remember the unrelenting nausea and excruciating pain. I remember my beautiful child’s desperate fight to live.
I remember her holding my hand, her tears silently running down her cheeks… The fear in my heart that her suffering would never end.
Now I wish I could hold her one more time; wipe her precious tears away; whispering “I love you angel child”
Hospice has just fitted a subcutaneous driver – again. Vic’s pain has spiralled out of control over the past couple of days.
Vic was in absolute excruciating pain during the night. She battled to breath.
“Help me Mommy! I can’t stand the pain anymore…”
I lay next to her and put constant pressure on the area that hurt most. It was just below her ribcage – liver. “Oh Mommy, it is so sore. Can you feel how sore it is?
As a little girl Vic used to believe that I could “feel” her pain…
“Feel how sore my toe is Mommy…”
As I lay there with my hand on her “sore” I wished with every fibre in my body that I could lay my hand on her sick body and soak up the pain and disease. It cannot be so I look for a new spot on her bum to stick in a needle.
Vic seems calm now and the pain under control. She is sleeping peacefully. She has not vomited since this morning and managed to have a sandwich for lunch.
Please God let the subcutaneous driver work. Please let the tissue hold up! Please God!
I know that you are with me. Feel my love Angel Child. See my heart. Know my heart. Love you yesterday, today and forever. Mommy