Two years today


Our last coffee shop outing...
Our last coffee shop outing…

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My precious Angel Child

Two years ago I lay next to you listening to your laboured breathing. You lay motionless in your bed. Your hands and feet were ice-cold. Your body was burning up with fever. Daddy and I counting the seconds between your breaths. My hand on your little heart and my head next to yours.

I remember whispering how much I love you; that there was nothing to be scared of…I felt your heart beat getting weaker and weaker; your breathing becoming more shallow by the minute.
When your little heart stopped beating my heart broke into a million pieces. As your soul soared mine plummeted into a hell hole of grief and despair.

I knew that it would be hard but nothing in the world could have prepared me for the pain that followed. My heart aches for you and I would give anything to hold you one more time. To hear that mischievous giggle…

We miss you so much. Our family will never be the same again.

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Time to say goodbye


Time to say Goodbye is a beautiful song and I especially enjoy the André Bochelli and Sarah Brightman version. It was the boys and my theme song on this holiday. A Time to Say Goodbye and heal….

As we toured Europe we lived Vic’s dream. It was her dream to go to Italy, stand in the Cistern Chapel, drink cuppachino’s on the streets of Rome, wander through the Christmas Mart stalls savouring the smell of Gluhwein and melted cheese….

I am filled with profound sadness every time I think of my child. Even if she lived Vic would never have been able to make the trip. The flight would have been too long, the cobblestone streets impossible for her wheelchair, the bus trips too long…

I cried when I saw the Pietà in the Cistern Chapel. This beautiful piece of art in a convoluted way symbolised Vic and my lives…

Both Mary and I were child brides. She was much younger than I was when she gave birth to Jesus – it is written that Mary was 12 years old at the time of her Son’s birth. Her child filled with wisdom and teaching as was mine… I once again realised, on this trip, how infinitely wise Vic was. She knew that I would have to remove myself from everyday life to heal.

She made me promise to do this trip with the boys.

Looking at the Pietà I saw a mother holding the body of her lifeless child. Tears filled my soul when I remembered holding the body of my lifeless child. For a fleeting moment I felt the heat that radiated from her fever wracked little body. I could hear the thundering silence from her breathing that had stopped…

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I saw the lonely sadness of a mother isolated from the world in her grief. I recognised that isolation that I experienced at the second of Vicky’s death.

I stood there and realised that it will never change. I will always be isolated in my grief and longing for the child that I lived for. No one in the world could possibly love her the way I did. She was blood of my blood.

She loved her boys the way I loved her. She loved her boys with every fibre in her body. Her thoughts, fears and sorrow centred on her sons until she breathed her last breath. The blood of her blood. Her future…

Standing in front of the Pietà I realised that the closest bond is the bond between a mother and a child. Not a child and a mother…. Children move on and live for their children

Walking the streets of Europe I was filled with an all-consuming anger. Anger at God, anger at careless doctors; angry at a horrific disease called Osteogenesis Imperfecta. I was angry at the fact that my child was robbed. Robbed of a life with her boys. That I was robbed of a lifetime with my child.

As the old Year is edging towards the New I am filled with trepidation and horrific sadness. Not only for my Vic but for the many who crossed my path this year and who are enfolded in their own grief.

So much pain, longing and sadness as we look to starting another year without our loved ones.

I have survived my birthday, Christmas Eve, Christmas Day and Jared’s birthday. I have cried on my own, in the shower, in shops. I have been filled with rage and despair when I saw all the Christmas cards “For my Daughter”… I will never buy another card for my precious child. I will never be able to open gifts with her under the Christmas tree. Nothing will ever be the same again.

In three weeks’ time it will be Vic’s 2 year anniversary. Two long years without my child, my best friend…

I read that it gets worse as time goes by. It does get worse. The raw sadness has dissolved into a steady all-consuming pain. The longing to hold her one more time overwhelming.

And, although I know that it is Time to Say Goodbye I know I will never move on.

Our Hearts Will Always Touch


Our Hearts Will Always Touch by Ranja Kujala (Changed)

When I laid there beside you,
Could you feel me there?
My arms were wrapped around you,
And I was stroking your hair.

I was talking about all the good times,
For me they were every single day.
I wanted you to feel love and comfort,
Be happy in some way.

I watched your every breath,
And prayed that each one wasn’t your last.
The time we got to share together,
Went by too quick…Too fast.

I wanted you to wake up,
Please Vic…Open your eyes.
Tell me this is a nightmare,
And not our goodbyes.

As your last breath grew closer,
We lay there peacefully together.
My heart continually breaking,
Because I wanted you forever.

Then there it was,
Your final breath of air.
I didn’t want to believe it,
It was so cruel and not fair.

I held your beautiful face,
And prayed you’d breath again.
I wasn’t ready for you to go,
I couldn’t admit that this was the end.

But then I realized that you were now in peace,
And not suffering anymore.
You were beginning the life of an Angel,
And your body would no longer be sore.

I held you close and squeezed you tight,
And tried to say goodbye.
I’ve lost my child and my number one best friend,
All my heart could do is cry.

I slowly got up,
I wanted so much to stay.
I leaned over and gave you one more kiss,
It was so hard to walk away.

Vic you were my entire world,
And I miss you so very much.
I wish I could feel your loveable cuddle,
And your soft and gentle touch.

But for now I have to wait,
Until we meet again.
You will always be in my heart and thoughts,
My precious child and best friend.

Always and Forever,
Our hearts will always touch.
Always and Forever,
Baby girl Mommy loves you so much

Source: http://www.familyfriendpoems.com/poem/our-hearts-will-always-touch#ixzz3EphiuOal
Family Friend Poems

In memory of Vicky by Dennis McHale


Tonight I visited the blog of a brilliant blogger Dennis McHale who writes hauntingly beautiful poetry.  I read through a number of his poems, very aware of the man own personal pain, when I came across this tribute to Vic that Dennis posted on the 2nd of May 2013.  Reading it, I was as touched as I was then…  Thank you Dennis.

I hope that one day I will read happiness in your words.

MAY 2, 2013

In Memory of Vicky

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This poem is dedicated to my dear friend “tersiaburger”
In memory of her beloved daughter, Vicky.

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You and I
are touched by one star.

Wherever you are
we stand together in one light
which no depth or height or distance
can ever dim.

Wherever you are
your light shines;
past time and space
past flesh to thought,
I feel your power.

Wherever you go
the day will dawn
and the star will appear;
for you are a child of this light
and it fosters your heavenly dreams.

In this light, I have found ways
to heal, to bind up,
to tear down the feeble structures
of fear of your absence has
carelessly constructed within me.

You and I
are touched by one star.

In its glowing embrace
we find our true selves;
we find our peace.

Today I may stand alone,

missing you with all my heart
be I stand strong.
Through the corridors of our courage
you have helped me to
discover those eternal lines
of love within myself;
my birthright discovered because

Vicky and I are
touched by one star.

http://dlmchale.com/2013/05/02/in-memory-of-vicky/

 

Wave Of Emotions ©Stacy Lynn Stiles


A tidal wave of emotions,
have sent my soul out to sea.
Crashing currents submersing,
what once was you and me.

Drifting afar distantly,
a glimpse of precious time.
While I held you close to me,
singing your favourite rhyme.

Rocking gently back and forth,
arms encircling you whole.
Lips pressed upon sweet innocence,
your cries I did console.

Praying the Lord may keep you;
wash your troubles away.
Hoping a bond forever remains,
the same tomorrow as today.

Splashing scents of adorable purity;
upon your mother’s face.
I draw you closer, your tiny being;
and even tighter I embrace.

Consumed with pure admiration,
at the woman you’ve became.
Beautiful imperfections,
your absence chastised me numb.

Although I know you had to,
spread those vast angelic wings.
I still can hear the laughter,
of a child’s heart that proudly sings.

These crashing, violent riptides;
will soon turn a peaceful wave.
Knowing the life I gave you,
is the life in me which you did save.

This current of my heart, is perfectly;
in synch with every beat.
A perfect bond between us;
without your love, I’m incomplete.

http://www.familyfriendpoems.com/poem/tidal-wave-of-emotions
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Unimaginable pain


When my beautiful little girl exhaled her last breath, it felt as if my heart was ripped into a million pieces.

One year and 5 months have passed and my heart is still in a million pieces.  But, the pain is no longer that same raw pain.  Sometimes it is a sharp, searing pain; sometimes a dull heartbreaking pain.  At times I feel so alone, numb and at other times I am convinced that I will lose my mind with grief.

But, the pain is more “refined”.  It is no longer that raw, unbearable pain.

There are times that I feel that my nerve endings are exploding.  And yet, there any many things I can no longer remember.  I read today that it is my body is protecting me… I am grateful for it.  I am glad that I have forgotten some of the horror of Vic’s death.  I am clinging to the good days.

I went away with two friends last weekend.  It was amazing.  We laughed until we cried, we spoke about the death of our loved ones, we loved and supported one another.  The empathy stemmed from knowledge.

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On our first night in the mountains I dreamt of maggots.  There were maggots everywhere.  I tried to kill them, but they kept crawling out of everywhere.  I was scared and nauseous.  I am petrified of maggots!

To see maggots in your dream represent your anxieties about death. It may also be indicative of some issue or problem that you have been rejecting and it is now “eating away” at you. You need to confront it for it is destroying your sense of harmony and balance.

Maggots as true to their characters signify similar emotions in real life if appear in dreams. The strongest emotion the maggots dreamer having is the fear of its own death. You can say it as fear or curiosity related to death but the persistent thought of death can be the result of such type of dreams. Maggots in dream also signify that the person is far away from mental and spiritual peace which can prove harmful for him in many ways.
More:http://www.gotohoroscope.com/txt/dream-interpretation-maggots.html

A very common dream of maggots is to see them gathered around you and you are trying to remove them as quickly as possible. This you are trying to do with vacuum cleaner or burner or chemicals. All the dreams suggest the need of your brain to be free from nay complications and guilt. Your attempt to kill them shows that you want to bring thing back in order. This also means that you are facing some troubles in life and standing on your grounds to let it pass
More:http://www.gotohoroscope.com/txt/dream-interpretation-maggots.html

So, which one is it?

I do not fear death.  I fear dying in pain and indignity.  I fear being a burden to my loved ones.

I have often said that when I am dying I want to be dropped off at a hospice.  My loved ones must kiss me goodbye and leave.  I do not want them standing next to my bed watching me gasp for breath… I want a big sign put up above my bed that must read “Do not touch”.

I am facing difficulties in life.  So much has changed in the past 516 days.  I have lost more than my child.  I have lost being a mother.  I lost my best friend.  We lost our laughter… Judy reminisced this weekend about how Vic and the boys would laugh at night when they said goodnight.  I have lost others that I love because our pain collided.

Yet I am alive.  My life goes on despite the terrible void that Vic’s death left.  The boys are so amazing.  Soon Jared will attend his Matric farewell. Next year he will go to university… firsts that his mom will not be part of…I can just imagine the excitement if Vic had been around.

When you lose a child you get caught up in a maelström of grief.  The firsts never end.  Every morning the pain starts all over again.  The grieving never ends.

At a funeral I attended today the minister said “Grieve hard”.

I do.

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If tomorrow starts without me


This played just before Vic’s memorial service started. A deadly silence descended in the church as we all sat crying for this precious child of mine. I listen to this often. I still cry when I hear the words that Vic could have spoken. How I miss my precious child.

If tomorrow starts without me,
And I’m not there to see,
If the sun should rise and find your eyes
All filled with tears for me;
I wish so much you wouldn’t cry the way you did today,
While thinking of the many things, we didn’t get to say.
I know how much you love me,
As much as I love you,
And each time that you think of me,
I know you’ll miss me too;
But when tomorrow starts without me,
Please try to understand,
That an angel came and called my name,
And took me by the hand,
And said my place was ready,
In heaven far above,
And that I’d have to leave behind;
All those I dearly love.
But as I turned to walk away,
A tear fell from my eye
For all my life, I’d always thought,
I didn’t want to die.
I had so much to live for, So much left yet to do,
It seemed almost impossible,
That I was leaving you.
I thought of all the yesterdays,
The good ones and the bad,
I thought of all the love we shared,
And all the fun we had.
If I could relive yesterday,
Just even for a while,
I’d say good-bye and kiss you
And maybe see you smile.
But then I fully realized,
That this could never be,
For emptiness and memories,
Would take the place of me.
And when I thought of worldly things,
I might miss come tomorrow,
I thought of you, and when I did,
My heart was filled with sorrow.
But when I walked through heaven’s gates,
I felt so much at home.
When God looked down and smiled at me,
From His great golden throne,
He said, “This is eternity, And all I’ve promised you.”
Today your life on earth is past,
But here life starts anew.
I promise no tomorrow, But today will always last,
And since each day’s the same way,
There’s no longing for the past.
You have been so faithful, So trusting and so true.
Though there were times you did some things,
You knew you shouldn’t do.
But you have been forgiven, And now at last you’re free.
So won’t you come and take my hand, And share my life with me?
So when tomorrow starts without me, Don’t think we’re far apart,
For every time you think of me, I’m right here, in your heart.

Jared♡ĶįƦƧƳ.Ș♡(1)