I am Vic’s mother!


Child-loss is a black hole of grief and sorrow in which every emotion is compressed and compounded.   It is an inescapable vortex.  

Vic was the centre of my emotional cosmos. My world revolved around my precious child. Vic was my past, my present and my future. When she died it felt as if my life ended.


For the first time in 38 years I cried. I truly cried and called to the heavens. It was as if 38 years of pent up fear, anguish and stress was released. I screamed, I sobbed, I wept… Did you know that there is a difference between weeping and sobbing? I clung to my child. I stroked her hair. I washed her little body and dressed her in her favourite pyjamas. I sprayed her favourite perfume on her.

Grief is a strange journey.

When I embarked on the Journey of Mourning it was a strange road. I had lost people I love dearly before. My mom, my dad, BFF’s, colleagues and family had died. Of course grandparents too… But I had never lost a child. This is a road I had never travelled before. I did not only lose my precious child but I also lost the person I was.

Within a millisecond I ceased to be a mother. Wait – I became a “bereaved mother.” The hope I had clung to for 36.5 years was lost! The fight in me was gone.

The second my child’s soul left her body my heart shattered into a million pieces.

The hardest thing I had to do in my life was say goodbye to my child; listening to her breathing getting weaker and weaker…. knowing that her last breath was so close.


Then I thought nothing would match my pain watching my precious baby leave our home for the last time in a plastic sheet on a gurney until I had to stand and watch the hearse drive away with my precious, precious child lying in a cold hard coffin – her destination a crematorium!

No matter how prepared I thought I was for Vic’s death – I wasn’t! People seem to think I should be grateful Vic is dead. Just as people did not want to listen to me talking about Vic’s terrible suffering they now don’t want me to talk about Vic after she died. They ask you how you are doing hoping you won’t be honest and answer…

It is almost surreal to see that the world has carried on with its business; that the heavens are unchanged; that life has continued. I look at myself and I think that people that don’t know me would never guess that my life ended 6 months ago… People pat me on the back and say “You are so strong…”

We are nearing Vic’s 6 month anniversary and I have learnt to breathe again. I have learnt to stay strong for the boys. My life will and must mirror Vic’s strength and courage. Her dream of a Hospice will continue to live on in me…Her goodness will continue to spread to the community and the world!

I raised Vic to be strong, courageous, and brave. Vic taught her sons that she is their mother not their excuse…


I am Vic’s mother – she is my reason; not my excuse!


Always the lady


Exactly one year ago Vic had a Brazilian Blow-dry. This is what I posted then…

Today I took Vic to the hairdresser and she had a Brazilian blow-dry treatment.  Now, for those of you who are as ignorant as I was, this is a “hair straightening” process.  Four hours!!

Shame Vic was sleeping in the chair…poor baby!  She is exhausted but it will make her life so much easier for many months ahead.  Vic will not wash and leave her hair – it has to be sleek…Now with this Brazilian blow-dry thing we can wash her hair and leave it!  Bliss!!

I never saw my late Mom not immaculately dressed with her hair beautifully done.  No matter how ill she was, Mom went to the hairdresser three times a week.  Her nails were always immaculate and Mom would get very annoyed with me if I wasn’t wearing make-up and had my hair in a ponytail.  “Always the lady” was her motto.  As it is Vic’s.  I find it absolutely amazing that she insists on getting dressed most days.  Well, certainly before the boys get home from school.  She does not want the boys to see her in pyjamas. When we wash her hair it must be blow dried…She will not scrunch it or put it up in a ponytail, plait or pin…Vic’s hair has to be sleek…No matter how ill she is.

Her little body is so swollen from the cortisone.  Her face looks like a little chipmunk’s!  It happens from time to time.  What is worrying is that Vic’s blood pressure is steadily increasing.  Addison’s symptoms include low blood pressure…so why is Vic all of a sudden developing high blood pressure?  And Madam will not see a doctor!  What to do?

Vic does look so beautiful after her hairdressing marathon.  She is passed out and I know it will take her a week to recover from this outing.  But, it is well worth it!

These are the words Jared wrote for Vic’s funeral letter….

Dear Mommy…

Words could never explain what you mean to me…

It always meant so much to me that no matter how bad you felt or how sick you were, you always went out of your way to do anything and everything you could for us… Always going out of your way to make everyone’s life easier especially mine…

You were always my hero… No matter how sick you were every morning you woke up and got dressed. Even if you didn’t do anything you always looked your best…

I love you so much mommy… You made such an impact on everyone’s life that you will never be forgotten…you will forever live in our memories as the bravest woman and best Mommy of all time…

No one will ever be able to replace you…


Jared

Jared and his Mommy 1.1.2013

Always the lady…

176 days…..4234 hours


In the words of William Shakespeare…

“Time is very slow for those who wait;
very fast for those who are scared;
very long for those who lament;
very short for those who celebrate;                                                                                            but for those who love, time is eternal.”

It is Friday again.  I hate Fridays.  A mere 176 days ago my precious child died.  It seems as if it has been a lifetime.  It makes more sense when I say Vic died 4234 hours ago…

Yet, it seems as if it was yesterday.  292718_395925797163521_948785461_n

There is pain after death



On the 10th of October 2012 I posted this:

Two days ago I reblogged a post “Is there pain after death” written by a Dr James Salwitz. This post elicited some comments – mainly from Vic. Vic has started reading the odd post of my blog. In a way I am truly okay with it but on the other hand I find it difficult to blog my fears and emotions knowing that Vic may read the post. I find that I have become guarded in what I am writing. I am thinking that I should blog about stuff that may allay Vic’s fears….

Yesterday Vic asked “Mommy, I know what we believe in but what if there is more pain after I died?”

“You read my blog?” I asked.

“Yes” Vic replied.

“Sweetie, I believe that when the time comes our loved ones will be our guardian angels and hold our hands whilst we cross over….”

“I know that Mommy but what if I am still in pain… What if the pain does not stop?”

“Sweetie, the pain that continues after death is the emotional pain that belong to the loved ones that are left behind. That is what the post is about…..”

Tears welled up in Vic’s eyes and she said “I know that Mommy but what if I am still in pain… What if the pain does not stop? What if your pain does not stop?”

Andrew, http://lymphomajourney.wordpress.com/, commented as follows… “Even before one leaves, I always thought it more difficult on my family to watch me go through what was pretty aggressive treatment than on me.”

sbcallahan, http://thedrsays.org commented…”this is one of the difficult things about being the one who leaves. to know that your loved ones are going to suffer more than they already have is heartbreaking.”

“how to die? I have watched many die over the years and the range is as you would imagine. there were those that just could not let go and suffered every indignity to their body and soul. of course others went quietly with love around them. I have not decided if I want to be alone or with loved ones by my side. is there a way to make it easier for them? would they rather receive a phone call with the news or be at bedside? either way it will hurt them, not me of course as I am the one leaving. I would be lying if I said I don’t think of how I will miss so much. the thing is I have had so much, so much more than others and it seems selfish to complain. what they will go through is tremendous compared to what I will go through. I will sleep eternally and they will live. the best I can hope for them is peace of mind and future happiness. I want them to think of me and smile as I do now thinking of them.” http://thedrsays.org/2011/03/

I am beginning to think it is easier to be the person leaving than the one being left. I have always known that about relationships and breaking up but now realize that it is the same when someone you love is dying. My husband became suddenly angry and I knew there was something wrong. it is so unlike him to get angry over nothing that I was completely off guard. we had been watching the movie “steel magnolia’s” and he asked me what Julia Roberts was dying from and I told him kidney failure. later when he was able to talk, he shared that it had reminded him of my own kidney failure and near death. we live in limbo waiting each week for blood tests to know if I am back in failure or good for a few more days. I don’t really think about it and when he shared his fear my heart ached. The sad thing is I have no fear and realize more and more how hard this is for him. I know that he will be fine in the end but it is hard for him to imagine he will be fine without me. It is so much harder to be the one being left behind. http://thedrsays.org/2011/03/25/the-one/

Vic so often tells me how worried she is about the family. She worries about how the boys, her dad and I will cope. Whether we will cope…. whether we will be able to get over her eventual passing…. Andrew and sbcallahan write about their fears… for their loved ones. It is a fear that all terminally ill people appear to have.

My Mom died a bad death! Two weeks after major surgery she died an agonising death from septicaemia. We could see the gangrene spread…. She was burning up with fever and no amount of pain medication could dull or relieve the pain. God alone knows what went through her mind because she was ventilated. When my Mom finally died we were so relieved. We were relieved that her suffering was over. We were traumatized by the dying process not her death.

As a family we have lived with Vic’s pain and her excruciatingly slow journey towards death for the past eleven years. For eleven years we have heard her scream with pain, moan with discomfort, we hold her hair back when she is doubled up over a toilet bowel, vomiting until she fractures a vertebrae. We have nursed open wounds, changed colostomy bags…. We have watched our daughter and mother suffer the most horrendous symptoms.

So baby, if you read this post, know that we will miss you. We don’t want you to leave us behind but we want your suffering to end. We will continue to love you until we are reunited one day. You have to trust us that you will always be “my baby” and the boys’ mummy. But know that we will be grateful when your little body is freed from its pain and suffering. You will be at peace… You will not suffer more pain after death. We will mourn you but we will also be at peace… We will think of you and smile…

It is okay to let go my angel child.

Preparing for Vic’s death was not easy. It was however a breeze compared to the actual pain after Vic died.

In a way I supposed I almost romanticized Vic’s passing. I knew that I would miss her. What I did not know is how much….I did not know that my mind would block out the suffering beforehand.

I thought I would always remember her cries, her tears, and her pain. I did not realize that I would forget her cries, pain, tears…. I remember her shuffling little footsteps down the passage, her soft kisses on my cheek, her gentle nature, her laughter…

I thought I would be relieved that her suffering was over – Nothing and nobody could have prepared me for the huge void in my life.

Today I know that there is excruciating agony after death. For the living…

I wrote “We will think of you and smile…”

Vic, today I know we think of you and cry… selfishly I don’t have peace.

Chaka’s is not the same without you. Nothing will ever be the same without you my Angel.

I miss you so much!!!

Always Here When Needed Award



This is a lovely award. Vic loved butterflies.

The transformation that the butterfly goes through shows a powerful symbolism and likeness to human beings. The different stages, the difficulties, and finally emerging into a beautiful and colorful butterfly which once was an unattractive crawling creature, also shows the power of human beings to surpass challenges, learn, and then eventually soar to greater heights. Just as the butterfly has to go through some not so attractive stages, a person’s life can through similar situations as well, but ultimately, in the end, reach one’s full potential and become majestic and beautiful.The butterflies that we see in our gardens do not only keep the balance of nature, but for some people, they have a higher purpose. They are souls of departed ones who have come to give blessing, or spending time with you as they wait for their turn to pass through purgatory.

Leaving that aside, to comply with the rules of the nomination, I would like to thank Lucinda Elliot for the award. Lucinda, a published author, writes and lives in mid Wales. She likes gothic, dystopias, historical and steampunk. She has a superb sense of humour and has the ability to make her words “dance”. Lucinda’s blog is beautifully written and can be found on http://sophieandemile.wordpress.com

Five things that make me happy.

  1. My grandchildren and husband
  2. Drinking tea
  3. Walking on the beach
  4. Working
  5. Stepping Stone Hospice

This is so difficult as I have so many wonderful friends who are always there for me. I have taken the five people who comment most on my blog.

  1. http://prayingforoneday.wordpress.com
  2. http://buckwheatsrisk.com/
  3. http://talktodiana.wordpress.com/
  4. http://thedrsays.wordpress.com/
  5. http://jmgoyder.wordpress.com/

Thank you for always being there for me. Thank you for your kind words of support. Thank you for caring. Thank you for always being here when I need you.

A Mother’s Love for her Sons


A year ago I posted this.  As I said in my previous post – Chaka’s 2012 is a separate story.  I am reposting the separate story…

I have been researching the effect of a mother’s illness on her children.  The boys are two beautiful, well-adjusted, honest and compassionate young men.  Vic’s illness has certainly deprived them of a childhood in the true sense of the word and prematurely matured them into compassionate, caring, young men far too early in life.  At the tender age of thirteen Jared was cooking for the family…  This must certainly have an effect on how the boys perceive relationships with people.

Now according to my research the boys have become what is called ‘parentified’ children. These children solve the problem of sick and inadequate parenting by taking care of their

parents. They in effect become     parents to their parents, giving to the sick parent what they need from the parent. Now the roles are reversed. This seemingly creative solution is unfortunately too self-sacrificing to be healthy in the long run.

“‘Parentified’ sons who take care of their sick mothers in order to cope with their inability to parent, struggle to suppress obvious needs for love and feelings of loss. They learn to work hard taking care of the needs of others and living off of the scraps that come in the form of reinforcements for their competence and reliability. Their needs for love are overlooked and overshadowed by everyone else’s needs.”  The boys, especially Jared, falls into this category 100%.  When his little girlfriend was hit in the eye by a hockey ball, he immediately went into caregiving mode,  At the time I thought it to be extremely unhealthy that he already has this caregiving character trait.  He used to always make the tea and offer to do so much around the house and for his Mom.

I have put a stop to this.  I pray it is not too late for the boys to adjust to a “normal” household…

It is however important for them to realize that death is a part of the circle of life and that it is not something dark and something to be feared but rather, if happening in a timely fashion, something that one can embrace. The boys appreciate and respect Vic as their mother.   Vic has raised her sons to be respectful.

“The power of a mother’s strength comes from her heart, from her unabashed, unconditional, and unwavering love for her child. There is, as J.K. Rowling wrote in her Harry Potter books, a magic in that love. No matter what happens, a mother is always there for her child. A mother’s love is never to be questioned, and – though she may not know it at first – neither is her strength.”

Vic literally rose from her deathbed to be there for Jared with his operation on Wednesday.  When my Mom died I related her final moments to someone jumping from a diving board into a deep pool, reaching the bottom and kicking to rise to the surface of the water for one more breath… only to sink again.  This is what Vic does.

Before Jared was wheeled into theatre he whispered into his mom’s ear.  She took his hand and said “I promise”.

Vic, drip in hand, walking with Jared to theater!

The surgeon said the operation would last two hours.  Vic dutifully went back to bed and rested.  One hour and forty-five minutes later she was, IV drip in hand, standing outside the theatre door, waiting for her son.  I begged her to at least sit on the chair, but she refused.  “Mommy, I promised Jared my face would be the first thing he sees when he comes out of theatre!”

It took a superhuman effort, but Vic’s love for her son drove her to keep her word.  It is true that no mother wants her child to suffer in any way, but life is unfair like that. So, we as mother’s do what we can to provide support, comfort, and protection. And we grow strong enough to bear their hurt as well as our own.  As Vic did.  As I do. Motherhood cuts deeply, brings you to your knees most days; but it also brings a strength that may surprise you.

The vicious cycle of anger truly rose to the occasions on Wednesday.  I got angry with Vic because she was not putting her health first!  I KNOW I would have done the same but it was terrible seeing my child do herself harm to be a Mother.  I want to wrap her in cotton so she would be spared that extra day…

Yesterday Vic said she doubted whether she would see the end of the year.  She is however adamant to be at Jared’s confirmation…one more goal…

Go Girl!!!

Well, Vic is home.  I am so grateful.  She is conceding that she is too sore and ill to go to hospital…Saturday Jared comes home!!

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One day less


I am glad the day is over.  I am grateful that I am one day closer to being reunited with my precious child.

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Tonight I fulfilled one more of Vic’s wishes.

Twenty five years ago Vic was the bridesmaid at my brother and sister-in-laws wedding.  She looked beautiful in a real grown-up pink dress…  They gave her a string of perfect little pearls which she treasured and wore on very special occasions.

After Vic died I came across the string of pearls with a little note.

The note read: “25 years ago Johan and Henda gave me these because I was their bridesmaid.  I would like to now return it to them…”

She wrote them a note telling them how much she loved them.  She told my brother that he was her hero.  She told my sister-in-law that she was amazing….

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Vic and her precious Uncle Johan

Hospice – friend or foe?


Hospice – friend or foe?

A blogger friend, Terry, is preparing for her beloved brother Al, to move home from an Assisted Living Facility. Al suffers from Parkinson’s disease and his general health condition is extremely precarious. Terry blogged: “I finally heard nothing from the phone. I had done everything I could find to do trying not to have to make the dreaded call to Hospice. I decided not to use the Hospice here in our county. I was very disappointed in them with the lack of care they gave to my father.” http://terry1954.wordpress.com/2013/06/17/al-and-hospice-meet/

Vic wrote this on her Face Book page on the 15th of May 2011… “Today Hospice came to access my Grandfather… They dripped him & made him comfortable. He has lost his swallowing reflex, sleeps most of the day, is completely bedridden & can barely talk… The suddenness of his deterioration is very difficult to comprehend. Could you all say a big prayer for my Gramps and especially my Mom, who lost her best friend of 25 yrs., age 51 to a heart attack last Tuesday. My Mother is one of the strongest, bravest people I know… How do we say goodbye, how do I take my Boys to say their Goodbyes tomorrow, how do we accept that this incredible man has such little time left regardless of the fact that we all know that its best for him. How can I be strong for my babies when my heart breaks all over again, every day when I see him…? Especially my Eunice Friends will all remember how desperately my Gramps and Gran loved and spoilt me and how VERY MUCH they meant to me… I don’t want to live without him even though I realise that that is extremely selfish, but I love my Grandfather so desperately, it’s not fair… All I ask for is compassion… Compassion for Gramps and my Mother… Thank you to everyone for all your love & support through everything… Love Vic…”

I am a great believer in the services that Hospices offer – worldwide. Hospice cared for my Dad in the last week of his life and for Vic the last 5.5 months of her life. My experience was positive.

The hospice movement was started in the 1950’s in London by Dame Cicely Saunders, and the first hospice facility opened in London in 1967. Seven years later the United States opened their first hospice facility in 1974. In America the hospice movement has blossomed and hospice now serves 44.6% of patient deaths. Unfortunately, the median length of service for hospice patients is only 19.1 days, which means many patients did not receive the benefit of hospice care until the end of a difficult illness. In my country only 5% of the dying actually have access to Hospice services.

The original idea of hospice is that once curative treatments are no longer effective, a patient enrols in hospice to receive comfort care. In our culture of “fighting” death illness that should be addressed through ongoing decisions about the risk and benefit of interventions gets turned into a battle that should be won or lost. No one wants to be a loser, so the patient is reluctant to quit curative care until there is absolutely no hope. Many physicians are geared the same way, and their desire to give hope and “beat” disease results in a reluctance to call in hospice even when they know the situation is bleak.

Hospice care is for a terminally ill person who’s expected to have six months or less to live. This doesn’t mean that hospice care will be provided only for six months, however. Hospice care can be provided as long as the person’s doctor and hospice care team certify that the condition remains life-limiting.

The benefits of hospice and palliative care

Research published in the Journal of Pain and Symptom Management found that terminally-ill patients who received hospice care lived on average 29 days longer than those who did not opt for hospice near the end of life.

Source: National Hospice and Palliative Care Organization

Hospice care providers offer specialized knowledge and support at the end of life just as obstetricians and midwives lend support and expertise at the start of life. Hospice can reduce anxiety in both the terminally ill patient and his or her family by helping them make the most of the time remaining and achieve some level of acceptance.

When terminally ill patients, who are often already in a weakened physical and mental state, make the decision to receive hospice and palliative care instead of continued curative treatment, they avoid the dangers of over-treatment. In-home care from a hospice team often means the patient receives greater monitoring than he or she would in a hospital. In addition to focusing on the physical health and comfort of a patient, hospice care also focuses on the emotional needs and spiritual well-being of the terminally ill and their loved ones.

The above is all well documented facts. Yet, when a family is faced with that terrible decision to call in Hospice, it is a deeply emotional decision. The phone call is a terrifying telephone call. This is evident from Vic and Terry’s posts…..

It made me realise what a massive challenge lies ahead of us in Stepping Stone Hospice.  We need to educate the community.  We need to dispel the fear of and for Hospice.

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Never Alone


This was my song for Vic.  I played it for her all the time.  We spoke about the words and the meaning of the words.

Today it is 21 weeks since I have been able to touch my child, hold her, brush her hair.  I know that she is around me, but I feel so alone without her.  Vic was my dearest friend, my companion, my daughter, my soul mate.

Yes, Vic is in my heart.  Not a minute goes by that I don’t think of her, miss her…. But I really want her to be with me.  When will this pain end?  When will I come to terms with the fact that I am alone now.

Yes, I know I am surrounded by people who love me…I know they are worried about me… But nobody can fill the void that Vic’s death has left.

I feel alone even when I am surrounded by lots of people, family….

Nothing in the world could have prepared me for this thing called “grief”.  This devastating sorrow.

This weekend I will work in the garden and start preparing Vic’s Angel Garden.  I don’t want my child in a friggin garden – I want her in my home.  I want her sneaking up behind me and kissing me on the cheek.  I want to hear her voice saying “I love you Mommy”.  I want to tell her how much I love her.

I want to hear her talking to her boys.  Telling them she loves them the “mostest in the world”; reminding them to brush their teeth

I don’t want to feel this sorrow and pain.  I want to be happy again.

Rose of Kindness Award


Rose of Kindness Award
Rose of Kindness Award

Today I stumbled across an amazing blog.  It is a blog about kindness…. http://kindnessblog.com

Please pop in there.  Let’s all think about “kindness” and make it our goal to perform just one special act of kindness every day!  It has to be a special act of kindness that actually takes an effort.

Vic was a kind and generous person.  Her legacy is one of kindness and generosity.  So I have come up with an award… The Rose of Kindness Award.  I would like to add that we need to remember that our existence here is fragile, and we never have as much time with people as we think we do. If there is someone or someone’s out there that you love, don’t neglect that and don’t put off engaging with them because death waits for no-one…  Be kind and gentle.  Cherish your relationships remember to be kind….  Pay it forward!

Rules of the Rose of Kindness Award

  1. Add the Rose of Kindness Award on your blog
  2. Thank the person who nominated you and link back to their blog
  3. Nominate 13 (my lucky number) bloggers whose kindness you have experienced
  4. Post why you are nominating each of your nominees
  5. Let the nominees know that you nominated them
  6. Suggest one special act of kindness that the world may benefit from

So I have to nominate some kind people.

  1. My treasured friend, Sandra @ http://thedrsays.org/, who is terminally ill and yet has so much kindness in her heart that she still reaches out to me and other people.  This brave and selfless woman has made a difference in my world.  She worries about her loved ones that she will leave behind.  Thank you dear friend for caring when you have so much to deal with!  You are always in my thoughts and prayers!
  2. http://behindthemaskofabuse.com is a heart wrenching blog about a woman’s life of abuse.  She was raised by a narcissistic father, and a mother who rarely protected her from his verbal, mental, emotional and psychological abuse.  She endured molestation, both inside and outside the family setting, raped at the tender age of 11 years old.  This blog is written by an amazing person. A strong person battling recovery, anger and betrayal.   She battles C-PTSD and BDD.  Out of her pain two books were born and are published on Amazon “Buckwheatsrisk-Abuse Survival”, and a poetry book entitled “If I Could Write my Heart.” I salute you dear friend for your resilience and kindness.  Out of your hardship a beautiful kind and caring human being was born.  Thank you dear friend for the kindness you have shown!
  3. http://idealisticrebel.wordpress.com/ – Rebel is amazing and takes on the world! A kind and brave blogger who fights to make the world a better place.  Rebel is a kind and generous friend.
  4. http://jmgoyder.com/ – My precious friend Julie who has so much pain and loss to work through.  Julie writes about the love between her and her ailing husband.  It is the most beautiful love story ever!  Julie is kind and caring.  Thank you for your loving kindness dear friend!
  5. http://valeriedavies.com/  A gutsy, wise lady who is a friend and an amazing writer.  Thank you for your love and support.
  6. Judy is my dear friend who has guided me through this abyss of grief that I am walking…http://myjourneysinsight.com  Judy reaches out to grieving parents.  She offers guidance, advice and love.  Thank you dearest Judy for your kindness and friendship. 
  7. Shirley @ http://justiceforraymond.wordpress.com is a true warrior, fighting for justice yet always ready to extend a hand of friendship and support.  Shirley taken on the judicial world to bring justice to the unsolved and uncleared and uncared for deaths.  Thank you dear Shirley for your words and actions of kindness.
  8. Len @ http://myownheart.me is a precious friend who always has a kind word of support.  Despite her pain after the tragic loss of her precious Klysta Len reaches out a hand of friendship with words of kindness.  Thank you dear Len
  9. This wonderful woman has 1077 followers and yet she has time to read my blog, comment and encourage.  Her words of advice are filled with compassion and kindness.  Thank you dear Diana http://talktodiana.wordpress.com/
  10. Katie Mitchell who suffers debilitating pain yet this brave young woman has made it her mission in life to educate the world on Connective Tissue disorders.  Vic suffered from Osteogenesis Imperfecta, a connective tissue disorder. Katie is a kind and gentle person –very worthy of this award. http://connectivetissuedisorders.wordpress.com/2012/10/01/treading-water
  11. Shaun @ http://prayingforoneday.wordpress.com/ is a kind and cherished friend.  I sometimes feel bad because I know I cause him pain because of my grief.  He reaches out wanting to make my life better.  Thank you dear, kind friend.  I know you don’t accept awards anymore so I truly understand if you don’t accept. 
  12. http://kindnessblog.com/  I would be remiss to not award the blog that inspired this action.  Thank you for the goodness you radiate in your blog.  I could not find your name anywhere but I hope you will accept.
  13. Terry @ http://terry1954.wordpress.com/ is a kind blogger who cares for her brother deeply and passionately.  She is a shiny example of how we should treat our fellow human beings and family – with kindness! 
  14. An extra nomination – My beautiful, brave child who radiated goodness and kindness, this award is for you!  You made the world a better place.  I am proud to be your Mommy.  This award photo is of the rose we planted at the front door…I love you angel child.

My suggested act of kindness:  On Mother’s Day and Father’s Day, remember any friends who have lost a parent the previous year, and check in with them.  Those will be tough days.

Lets start a wave of kindness!

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Bittersweet


100_9077I often wondered exactly what went through Vic’s mind in the final months of her life when she felt death sneaking up on her.  I know she was scared and lonely; she was heartbroken knowing that her boys would grow up without her….I am not stupid.  I know that Vic did not share all her fears and thoughts with me.  She was trying to protect me.

Today I read a bittersweet post.  I wept when I read the words.  It was as if I heard Vic’s voice…felt her fear…

Bittersweet
June 4, 2013 by sugarmagzz        | 6 Comments
 
It happens from time to time, I get a glimpse of my “old” life and for a fleeting second forget that I am dying of cancer. These moments are simultaneously wonderful and devastating. I might be out with a friend for lunch, pumping gas into my car, shopping for Owen, or doing dishes at my kitchen sink. It’s always random and for that brief moment I feel free, as though I’m flying and nothing is tethering me down. I feel like I did before, able to live my life without a shadow cast overhead. It doesn’t last very long because reality always comes crashing down, dragging me with it in its vice-like grip. In this moment of clarity — when it all comes rushing back to me — I can’t breathe. I’m ten again and I’ve fallen flat on my back off the trampoline — immobile, breathless, terrified.  This time there is no ground to break my fall, and so I’m left to kick and scream in mid-air with no one to hear me, no one to catch me. Alone and falling, falling so fast — past the memories that were supposed to one day be mine. I reach out to touch them and slide my fingers over their sparkling surface…
 
The look on Owen’s face when he sees Disney World for the first time.
 
The birth of our second child, to see again Andrew’s incredible capacity for the patience and self-sacrifice of fatherhood.
 
Owen’s high school and college graduation ceremonies, his wedding.
Ashlei’s wedding, the birth of her children, becoming an Aunt.
 
Retirement — relaxing on the dock looking out over the lake with him, my partner in life…reminiscing about the early days and arguing over chores, still.
 
Grandchildren.
I will not see these momentous occasions, they will occur without my physical presence.
 
I hope that there is more to this life, and that I can be there in some way, spirit or otherwise. I hope that my loved ones will always feel me near as they celebrate those unforgettable moments that life has to offer, but my sorrow at missing out on them is endless. I am so very grateful for the incredible moments I have been blessed to experience and I will hold them close until the end. When my time comes, I will take my last breath knowing that my time here was extraordinary, that during my brief existence I lived and loved as greatly as I could. I know there will be more wonderful memories to make before this happens, but everything for me is tinged with darkness — all of the good moments are bittersweet. Still I fight for them, even though they are broken and imperfect. They may not be the memories I thought they would be, but they will still be special.

Tonight I am doubting myself again.  I wonder – did I comfort my child enough?  Why was this precious child of mine condemned to a life of horrible pain and suffering?  She never truly lived!  Why did she die and bad people continue to live and prosper?  Why was she deprived of a future???  She was such a good person!!!!!

I want to hold her and protect her.  I want to tell her how much I love her.  That she is the best thing that ever happened to me.  That my life is empty without her.  That I understood her fears.  

I WANT MY CHILD BACK!!!

 

“This is to have succeeded”


Vic often said “I must be such a disappointment to you.  I have done nothing with my life!”

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This morning I read these beautiful words and so wished I could have shared it with Vic.

“This is to have succeeded” posted on June 4, 2013 by Dr Bill http://drbillwooten.com/2013/06/04/this-is-to-have-succeeded

“To laugh often and love much; to win the respect of intelligent persons and the affection of children; to earn the approbation of honest citizens and endure the betrayal of false friends; to appreciate beauty; to find the best in others; to give of one’s self; to leave the world a bit better, whether by a healthy child, a garden patch or a redeemed social condition; to have played and laughed with enthusiasm and sung with exultation; to know even one life has breathed easier because you have lived—this is to have succeeded.” ~ Bessie Anderson Stanley

To laugh often and love much – That Vic did.  She always had a smile on her precious face.  Even when she was in dreadful pain she would try to smile.  When she was in a lot of pain her laugh was shrill.  Pain seldom stopped her from laughing… In 2007 I said to Vic that my life was sad.

“That is terrible Mommy.  Why?”

I felt like hitting my head against a wall!  What did the child think?  In 2007 Vic must have had 18 operations; developed every hospital superbug in the book; developed septicaemia, had a high output fistula; developed Acute Respiratory Distress Syndrome; spend months in ICU and survived having the ventilator turned off… Vic was op TPN (Total Parental Nutrition) for months…she had a massive open wound that we could not keep covered with a colostomy bag.  It was too big and positioned very low down.

“I worry about you every second of the day baby.  I worry whether you have vomited and how much you vomited; I worry whether you have been able to eat anything…  I worry about your wound.  I worry about your pain control….”

“Mommy, that is so sad.  At least once a week the boys and I laugh so much that my tummy hurts from it…”

Vic in 2007
Vic in 2007

Vic loved unconditionally and with every fibre of her body.  She gave everything!  She was a wonderful daughter, mother, friend…She loved her family, her siblings, her friends and her boys.  She LIVED love.

Her last words ever were “I love you Mommy”

… to win the respect of intelligent persons and the affection of children;  Worldwide, intelligent people, respect and admire Vic for her courage, tenacity…  We called Vic the “baby whisperer”.  Children loved her.  She loved children.  Her only ambition as a toddler and teenager was to be a Mommy.  She loved her sons beyond comprehension…

The Baby Whisperer
The Baby Whisperer

…… to earn the approbation of honest citizens and endure the betrayal of false friends; Vic suffered a lot of betrayal in her little life.  People got tired of waiting for her to die.  “Friends” spoke about her “addiction” to pain medication behind her back… They used her illness as a weapon against her when she was at her most vulnerable.  False friends (and loved ones) spoke their “minds” and condemned and judged Vic for choices she made… Because she was ill people thought they could say what they wanted, when they wanted.

….. to appreciate beauty; to find the best in others;  My precious child was so naïve.  She refused to see the bad in people!  The only time she got irritated and miserable was in hospital.  She always found the good in people.  She did not speak badly of people.  When I was angry with someone she would placate me…point out their good points… She knew that if she voiced her own anger it would have driven me over the edge.  Vic taught me unconditional love, forgiveness and tolerance.  Vic brought out the best in me and the most other people.

…..to give of one’s self; Vic was a people pleaser.  She would turn down MY bed!!!!  She made sacrifices for each and every person in her life.  Even in death she worried about other dying people who were less privileged than she was.  I promised her 2 am one morning that I would start Stepping Stone Hospice!  She kept talking to me about Stepping Stone until she lapsed into a coma.

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…..to leave the world a bit better, whether by a healthy child, a garden patch or a redeemed social condition; Vic left the world a better place.  Her sons are monuments of the person she was; her dream of a Hospice has been realized.

The boys taking Vic for a walk at the Donald Gordo

……to have played and laughed with enthusiasm and sung with exultation;  With the 2010 Soccer World Cup Vic went crazy with enthusiasm; she bought every gimmick that hit the shops; she went of the “soccer train” in her wheelchair, she watched every single soccer game.

Vic loving World Cup 2010
Vic loving World Cup 2010

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……to know even one life has breathed easier because you have lived     Vic’s legacy will live on through her sons and Stepping Stone Hospice.  Long after I have died, people will continue to benefit from Vic’s dreams and goodness.

—this is to have succeeded.”  My angel child – you succeeded!  You succeeded in life and with living.  You made the world a beautiful place filled with goodness and hope.  I am so proud of you.  You lived life to the full.  You made a difference!  You lived a greater and more successful life than most people.  You have put the world to shame.  You are my hero!

Vic and her monuments
Vic and her monuments

https://tersiaburger.com/2012/10/16/and-the-winner-is/

https://tersiaburger.com/2012/06/09/9-6-2012/

Compassionate friends say…


Sixteen years ago today, my beloved mother lost her battle against the septicaemia ravaging her tiny little body.  I woke up this morning thinking “well at least this year Mom has Dad and Vic with her…”

Christmas many years ago...
Christmas many years ago…
Vic and her Gramps and Moekie
Vic and her Gramps and Moekie

It was very hard for me to come to terms with my Mom’s death.  I spoke to her every day of my life regardless of where I was in the world.  I was a real “Mommy’s Girl”.  Mom adored Vic.  They were so close.

I was cruising (I know “surfing” is the correct terminology) the web looking at bereavement sites when I saw that on the 9th of December 2012  it was  Compassionate Friends 16th Worldwide Candle Lighting.  The 9th of December is my birthday.  It was a special birthday – my last with my precious child.  Worldwide bereaved parents were lighting candles for their dead children…This year I shall join them in sorrow – lighting up the world.…

I found a section “To the Newly Bereaved”.  It is now 4 months and seventeen days or 137 days since Vic died.  Am I still a newly bereaved parent or am I becoming a seasoned bereaved parent?

When your child has died, suddenly it seems like all meaning has been drained from your life. When you wake in the morning, it’s difficult to get out of bed, much less live a “normal” life. All that was right with the world now seems wrong and you’re wondering when, or if, you’ll ever feel better.

We’ve been there ourselves and understand some of the pain you are feeling right now. We are truly glad that you have found us but profoundly saddened by the reason. We know that you are trying to find your way in a bewildering experience for which no one can truly be prepared.

When you’re newly bereaved, suddenly you find yourself on an emotional roller-coaster where you have no idea what to expect next. Here are thoughts on some of what you may be experiencing or feeling (many of these will apply to bereaved siblings and grandparents):

Psychological

  • You’re in shock from what has happened and a numbness surrounds you to help shield you from the pain.   I thought I was going to lose my mind when Vic died.  The pain was unbearable.  Now numbness has settled in.  It is a survival mechanism.
  • You find yourself in denial. Your child cannot be dead. You expect to see your child walk through the door any moment.  No – I have passed this stage.  Vic is dead.  She will never shuffle down the passage again.
  • You see your child in the faces of others walking down the street.  No – Vic was uniquely beautiful.  I wish I could see her face on a walking body because that may erase some horrible memories from my mind.
  • You wonder how someone can feel this much pain and survive.  Absolutely!
  • Thoughts of suicide briefly enter your mind. You tell yourself you want to die—and yet you want to live to take care of your family and honor your child’s memory.  Absolutely!
  • You want to know how the people around you can go about their day as if nothing has happened—don’t they understand that your life—everything that meant anything to you—has just ended? Your purpose in life is gone.  Absolutely
  • You are no longer afraid of death as each day that passes puts you one day closer to being with your child.  Absolutely yes!!!!
  • Thoughts of “what ifs” enter your mind as you play out scenarios that you believe would have saved your child.  Yes
  • Your memory has suddenly become clouded. You’re shrouded in forgetfulness. You’ll be driving down the road and not know where you are or remember where you’re going. As you walk, you may find yourself involved in “little accidents” because you’re in a haze.  Absolutely
  • You fear that you are going crazy.  I fear I am…
  • You find there’s a videotape that constantly plays in an endless loop in your mind, running through what happened.  I try very hard not to think about it
  • You find your belief system is shaken and you try to sort out what this means to your faith.  Yes
  • Placing impossible deadlines on yourself, you go back to work, but find that your mind wanders and it’s difficult to function efficiently or, some days, at all. Others wonder when you’ll be over “it,” not understanding that you’ll never be the same person you were before your child died—and the passage of time will not make you so.  Absolutely correct!
  • You find yourself reading the same paragraph over and over again trying to understand what someone else has written.  Yes – it is scary.  I watch TV programs and cannot remember the show afterwards.

Emotional

  • You rail against the injustice of not being allowed the choice to die instead of your child.  ABSOLUTELY CORRECT!!!!
  • You find yourself filled with anger, whether it be at your partner, a person you believe is responsible for your child’s death, God, yourself, and even your child for dying.   ABSOLUTELY CORRECT!!!!
  • You yearn to have five minutes, an hour, a day back with your child so you can tell your child of your love or thoughts left unsaid.  No, I have no unspoken words or emotions.  I just want her back with me!
  • Guilt becomes a powerful companion as you blame yourself for the death of your child. Rationally you know that you were not to blame—you most certainly would have saved your child if you’d been given the chance.  Thank God this phase has passed.
  • You feel great sadness and depression as you wrestle with the idea that everything important to you has been taken from you. Your future has been ruined and nothing can ever make it right.  My life will never be the same again.  I wonder whether I will ever experience true happiness again.

Physical

  • Either you can’t sleep at all or you sleep all the time. You feel physical exhaustion even when you have slept.  Have these people moved into my home?  This is absolutely true.
  • You no longer care about your health and taking care of yourself—it just doesn’t seem that important anymore.  Maybe….
  • You’re feeling anxiety and great discomfort—you’re told they’re panic attacks.  No
  • The tears come when you least expect them.  Absolutely
  • Your appetite is either gone or you find yourself overeating.  Oh yes! 

Family & Social

  • If you have surviving children, you find yourself suddenly overprotective, not wanting to allow them out of your sight. Yet you feel like a bad parent because it’s so difficult to focus on their needs when you’re hurting so bad yourself.  I am petrified of not being with the boys all the time.  I hate not being with them!  I am stressed when they are with their father or friends.  I am terrified of leaving them to go overseas…
  • You find that your remaining family at home grieves the loss differently and you search for a common ground which seems difficult to find.  Yes
  • You’ve been told by well-meaning people, even professionals, that 70-80-90 percent of all couples divorce after their child dies. You are relieved to find that new studies show a much lower divorce rate, from 12-16%, believed to be caused by the “shared experience” aspect of the situation.  We have gone through a very rough time in our marriage.  We have worked through it.  But I can see that it is a distinct possibility in a newly bereaved situation.
  • Old friends seem to fade away as you learn they cannot comprehend the extent or length of your grief. No…they faded away when Vic was ill and she did not die soon enough
  • Things you liked to do which seemed so important before now seem meaningless.  Absolutely correct
  • Others say you’ll someday find “closure,” not understanding that closure never applies when it is the death of your child.  Darn right! 
  • Fleeting thoughts of pleasurable activities bring about feelings of guilt. If you child can’t have fun, how can you do anything that brings you enjoyment?  Maybe
  • New friends come into your life who understand some of your grief because they’ve been there themselves.  Absolutely!  I have also opened up and made myself “accessible”.  Before, Vic consumed my life.   http://www.compassionatefriends.org/Find_Support/Personal-Note/To_the_Newly_Bereaved.aspx

Tomorrow I will share  “Finding the ‘new me’…”

https://tersiaburger.com/2012/12/10/another-birthday/

http://www.compassionatefriends.org

When the soul leaves the body


http://www.youtube.com/watch?v=auoJV4re3nU
http://www.youtube.com/watch?v=auoJV4re3nU

When a child is born we laugh, cry with joy and celebrate; when a loved one dies we cry with heartbreak and mourn.  We spend a lifetime celebrating life.  Grief too deserves time, attention, honour and embracing.

Grief is painful, yet it gives us a glimpse of Heaven – afterlife… Life after death…

I have seen a quite a few people die.  Mostly very close family… my mom, my mother-in-law, my dad and my precious child.  I have seen strangers die – patients in TB hospitals, AIDS patients in hospital; a young man burning to death after a car accident…

My Mom died when she developed septicaemia from surgery.  She was confused from the raging fever and the infection ravaging her little body.  Mom knew that it would be her last surgery.  She said that she would not survive the operation and was prepared for death.  Mom died with my dad and us kids standing around her bed – taking turns to pray for her.  Like Vic she fought for life until death won the battle.

The day my mom-in-law died I sat next to her bed.  It was just the two of us.  I asked her whether she was scared.  She smiled and shook her head.  I know that she looked forward to death…to the afterlife.  Hours later when this gracious lady just stopped breathing her children and I were standing around her bed.  We were singing her favourite hymn.  Her death was gentle and dignified.

My Dad was not aware of the fact that he was dying… He developed Alzheimer’s pneumonia and gently lapsed into a coma.  My dad just forgot how to breathe.  If he was aware of the fact that he was dying I think he would have been surprised.  He did not “know” he was dying.  I know he would have been grateful that he had been spared that final indignity of Alzheimer’s.  He died the way he lived – with dignity and gentleness…

My precious child died fighting.  She had so much left to do.  She had children to raise.  Vic, like my mom, did not know how to not fight to live another day…

I suppose we all have pre-conceived ideas of how people should handle death emotionally and spiritually.  For years I would ask Vic whether she had asked God for forgiveness and mercy before she went into theatre for more surgery…Later in life I thought how stupid of me.  Vic lived a life, obedient to the greatest commandment – To love God with mind, body and soul….and her neighbour… I knew that Vic had made peace with God.  In death Vic requested Last Communion…  Her spiritual rituals were taken care off.

Vic said her goodbyes.  It was heart-breaking for everyone who loved her.  She needed to hear that we would honour her memory, not forget what she represented in life.  She needed to hear that her sons would remember her as their Mother and not use her as an excuse.  She thanked people over and over for their friendship and love; their caring and loyalty…

Nothing was left unsaid.    I read somewhere “something said or not said, something you wish you had done differently, can stick inside you like a splinter.”

The scenes of death that I have witnessed and lived through were sacred.  I saw souls depart from the bodies of my loved ones… I saw that there is more than life-sustaining organs to a body.  There is a soul…There is no comparison to the appearance of the body after the soul has left the body.

I saw Vic’s father’s soul leave his body five days before he was declared brain-dead.  I was standing next to his hospital bed asking him for forgiveness.  I realised standing there that I was not the only one who suffered from our divorce.  I realised that I too had caused him pain.  I spoke to him about God and Heaven – I prayed for him.  One bloody tear ran down his check.  He continued to breathe on the ventilator, but I felt his soul leave his body.

The willingness to sit at death’s bedside – to embrace the loss experiences in our lives – opens a window into Heaven.  I do not fear death.  I know when my time comes I will embrace death knowing that I will be reunited with my child, my parents, loved ones, friends…the ones I leave behind will eventually follow and join us.   When something leaves it goes somewhere.  It is a displacement of energy.

Now I am between birth and death.  Heaven awaits.

Some of my related posts and other great reads:

https://tersiaburger.com/2012/10/29/one-bloody-tear/
https://tersiaburger.com/2012/08/03/happy-birthday-mommy-3-8-2012/
https://tersiaburger.com/2012/07/18/487/
http://humansarefree.com/2011/03/russian-scientist-consciousness.html
http://www.youtube.com/watch?v=auoJV4re3nU
http://jimmyakin.com/when-the-soul-leaves-the-body
http://www.arachimusa.org/Index.asp?ArticleID=61&CategoryID=359&Page=1

 

Mirella cannot do PT…


 

Gr 2 year.  Vic's birthday party
Gr 2 year. Vic’s birthday party

I read this lovely post that truly brought a smile to my face. – Thank you Kate!  This post brought a smile to my face and a lovely memory moment to my heart.  I am not going to spoil this funny post by telling you what it is about as I would encourage you to pop over and read it personally.  I cannot do it justice.  http://kateswaffer.com/2013/05/28/tuesday-humour-is-god-a-woman/

For one or other reason this post reminded me of a funny incident when Vic was in Gr 2 at a Convent.

Vic was a very bright little girl and a natural-born leader.  She was an excellent little speller.  Vic was never allowed to participate in any Physical Training lessons at school.  The poor little poppet had to sit and watch her little friends running around, honing their developmental skills through exercise.

It is not clear what the reason was, but one of her little friends decided that she would join Vic on the benches – just watching.  Maybe she forgot her PT clothes at home, maybe she wanted to keep Vic company – who knows?  Mrs Bowling was the PT teacher.  The kids were pretty scared of her… She had a booming voice and intimidating stature.

When I arrived at school that afternoon I was taken aside by Vic’s class teacher, Sr Norbitt.  In a hushed tone she told me that I had to see the principal… There had been an “incident”.  Dear Sr Norbitt’s face had a disapproving scowl on it, but she did assure me that Vicky was not ill or hurt…

I was asked to take a seat in the principal’s office.  I was really very concerned that something serious had happened.

Mother Superior proceeded to tell me that Vic’s little friend had presented a letter to Mrs Bowling excusing her from PT.  She took out the note and I immediately recognised Vic’s baby handwriting…big, perfectly rounded letters saying…

“Dear Mrs Bowling
Mirella can not do PT.  She is sick.  She has X-Rays
Mirella Mommy”

When the girls were confronted with this very obvious forgery, they admitted that Vic had written the letter because she was the best speller in the class and knew about diseases because she was always sick…  Vic wanted to really impress the girls but the only “sick” word she could spell was….. X-Rays!

They were given a week’s detention.

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