Chaka’s Rock and bittersweet memories….


Chaka’s Rock is a quaint coastal town on the North Coast of Kwa Zulu Natal.

We have come to Chaka’s for the past 22 years.  Vic loved Chaka’s with a passion and always said that she started missing Chaka’s from the second we packed up until we set foot here the following year.

Vic and her boys 2005

Through every possible circumstance Vic made her way to Chaka’s – with the exception of 2012.  Last year she said “Mommy, I am not going to make it to Chaka’s this year…”

2007
2007

chakas jd

In 2007 Vic had 18 abdominal surgeries.  She developed septicaemia and contracted every superbug in the book.  She was on life support on more than one occasion.  Her kidneys and lungs failed.  Vic developed an intestinal fistula.  It was a high output fistula and she lost up to 7 litres of fecal matter through the fistula daily.  The poor poppet walked around with a machine that acted as a “catchment” for the fecal matter.  Vic was on TPN (Total Parental Nutrition) and not allowed to eat anything.  Her stomach had a gaping wound with fecal matter pouring out of a hole in the intestine.

Vic spent the majority of the year in hospital and reached a stage where she appeared to be like a “lamb being led to slaughter”.  It was such a concern to us that she appeared to have lost her will to live.

Vic at Chaka's Rock - getting ready to have TPN line changed.
Vic at Chaka’s Rock – getting ready to have TPN line changed.
Chaka 2007
Vic in the lounge of the chalet.

It was such a tough decision to make whether we should discharge Vic from hospital to make the trip or not.  The doctors had different views on whether we should go or not.  Two of them felt it would be emotionally uplifting for her to go and a third thought we were “absolutely nuts!”  I am so grateful that we decided to go ahead with our annual pilgrimage, as Vic was able to spend such precious time with us.  Even the bad weather worked in our favour and we spend wonderful days playing Bingo and Trivial Pursuit.

It was extremely difficult to manage Vic’s health in accommodation other than a hospital.  Changing the TPN was a sterile procedure.

On Friday morning, the 29th of June 2007, Vic collapsed was admitted to the ICU at the Albert Luthuli Hospital in Chaka’s Rock.  Vic was transferred back to the Donald Gordon Hospital by ambulance on the Saturday afternoon. 

In a “Get better soon” card that her boys wrote her after our little holiday they thanked her for the most wonderful holiday ever!  Certainly, we had had “better” holidays in our lives but the time that we spent together was so precious.

Vic was only released from the Intensive Care Unit of the Donald Gordon Hospital on the 23rd of July 2007.

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In 2010 I only spent a weekend in Chaka’s with Vic and the boys as I had to fly to the Middle East on business.  .  Lee drove the boys back and Vic flew home.  This is an excerpt out of an email Vic sent me…

“Hi Mommy, boys are great… We had such a great evening last and day today… Jared had Tyron over to visit. We all miss Mommy already!!!! We really hope it goes well there!!! We are all holding thumbs and saying big prayers… Battling with the authorisation for the pain Infusion still. I think I broke another vertebrae on the flight back from Chaka’s. We had a bumpy landing and I am battling to breathe from the pain… I think it’s two above the last fracture.  Can’t believe how much I miss Mommy already.                                    We are all trying to think up a name for Gramps’ new puppy… J-D is still sulking, because I won’t carry her around like Gramp’s does. Can you believe it? Jared said that when we were all in Chaka’s, she didn’t need legs as Gramps’ just carries her everywhere. And I don’t know what she was eating at Moms’ but I know it wasn’t her food, she refuses to eat it, she was so spoilt Jared reckons she lived on sweets and Gramps’ food…                          I wish we were all still in Chaka’s, it was really great to spend the time with Mommy…

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Vic in 2012…well, that is a different post….

Bickering, Fighting and Death….


BNwxajwCUAA1KLnWhy is it that at the time of death arguments and strife will prevail?

Whilst one of the world’s greatest statesmen, Nelson Mandela, is fighting for his life – his family is bickering…  They are bickering about the burial site of the Rainbow Nation’s Icon, their father and grandfather.

The family are torn between Nelson Mandela’s favorite grandson Mandla, who wants him buried at his Mvezo birthplace, and the rest of the family, who feel that his wish to be buried next to his children should be respected.

The chieftain had moved the remains of his father Makgatho, who died of an Aids-related illness in 2005; his aunt Makaziwe, who died in 1948 at only nine months; and uncle Thembekile, who was killed in a car accident in 1969, to Mvezo.  This is making it impossible for Madiba to be buried next to his children because they are buried in Mvezo. Mandela is going to be buried in Qunu. . Mvezo is the birthplace and the traditional home of the Mandelas, and thereby lies its historic and heritage significance.  Qunu is the rural home of Nelson Mandela.

So whilst this brave warrior is edging closer to death his family have to make decisions that may rip the family apart.

Mandela often quoted Henley’s poem, Invictus (Unconquered)

“Beyond this place of wrath and tears
Looms but the Horror of the Shade,
And yet the menace of the years
Finds, and shall find, me unafraid.”

“The passage towards death is a difficult journey,” an ANC activist told Channel 4 News.  “This country needs to celebrate his life, rather than let his death become a source of conflict. There is thing that we all unite on: all of us love Mandela. This nation will sink into deep mourning when he finally leaves us, no matter how prepared we think we might have been.”

Will the Mandela family unite in this time of sorrow or will they bring dishonour to this icon’s name?

In the meantime, South Africans are united in prayer.  United in our desire for this amazing man to be allowed to die with dignity.  That his family will behave with dignity and decorum…. Make Nelson Mandela proud….

Hero to Zero – one year ago….


 A year ago I posted this… I remember Vic’s screams of pain, the agony on her precious face, the raw fear in her eyes.

Vic basking in the winter sun!

Sunday was an amazing day.  Lorraine, my sister, came to visit and it was great having adult company that discussed more than pain control, bowel movements and vomiting.

Lorraine moved a chair into the sun for Vic.  Vic sat basking in the winter sun sipping lots of coffee.  In true form, Vic on her occasional good day, pulled the dam from under the duck.  She was like a little jack-in-the-box.  Needless to say, I was a spoil sport as I kept begging her to slow down…She did at 15:00 when she literally crashed.

Vic sobbed from pain and my poor sister wasreduced to tears.  She is not used to facing the raw pain of a terminally ill patient who breaks through her pain threshold!

Vic dozed on and off  but kept waking from the pain.  Maybe she took some extra painmeds because she seemed disoriented?  Both Danie and Lorraine expressed their concerns that she seemed to have totally lost track of time and events…

Sunday afternoon the boys came home after spending the weekend with their Dad.  Danie took Jared and Kirsten, (Jared’s girlfriend), to church.  Vic kept trying to get out of bed.  She is so darn stubborn.  She hardly ate any dinner so I gave her anti-nausea tablets and only half her normal pain medication.  She kept getting out of bed.  She would just not stay in bed.

I got so angry with her that I said I would fetch Jared from church.  I needed to remove myself from the situation.  Lorraine said “let me stay with Vic” and I said “No!  Come with me”

Minutes after dropping Kirsten off at home I had a phone call from Danie telling me that Vic had a bad fall…

At home she was lying in a crumpled little heap full of blood and screaming from pain.  Jon-Daniel, bless his heart, was lying next to her on the bed trying to comfort her.  Vic went hysterical when I said I was phoning an ambulance.

“No Mommy, No!!! No ambulance!  No ambulance”

We agreed that we would try to get her to hospital in my car.  Jared half carried her out to the car and then the drama began.  We could not swing her legs into the car!  She was screaming with agony.

I phoned the ambulance service but when they arrived it was obvious that they could not lift her onto the spine board and/or bed.  Eventually we repositioned Vic in the car.  Jared sat behind her and cradled her in his arms.  The ambulance escorted us to the hospital.

At the hospital it took at least 15 minutes before the Trauma and Medics staff decided how to move her into the Trauma Dept.  Vic screamed and screamed with pain!  From 21.30 to 03:00 they x-rayed and scanned Vic.  Most of the x-rays were done in the Trauma section.  Vic’s pupils were very dilated and she was VERY confused so they also ran a CT Scan.

Vic in ER

If I was ever given the opportunity to erase 30 minutes from my life it would be the 30 minutes that it took to move Vic from the ER bed onto the scanning table and back, straightening her legs and forcing her to lie on her back…she screamed and cried “Mommy help me, Mommy!!!  Mommy!!  Mommy help me!!!”

The diagnosis – “impacted fracture of proximal metaphysis of right humerus”.  Vic was admitted to the orthopedic ward and scheduled for surgery today.  The orthopod decided that she is too frail and the risk of the sepsis spreading from the spine and abdomen to the arm,  too great, for him to “pin” the arm.  So Vic’s arm is in a sling and will mend, albeit crooked, eventually on it’s own.  She also has a displaced fracture of the fibula, posterior malleolus, (I believe these are all ankle fractures and Lanie, a physiotherapist says if she had to choose a fracture it would be these fractures), an avusion fracture of the calcaneus and several vertebrae …The spine…well what is to do?  Pain control, bed rest…  Oh, did I mention that the staff had mobilized Vic and she had WALKED on her broken ankle because no-one read the X-ray reports???  I only picked it up when I read the reports this afternoon!!!!  I had to report it to the nursing staff!

I would like to point out that this is in a Private Hospital….can you imagine what happens in Government Hospitals?

I am so angry with myself.  This happened because I got angry with Vic.  I should have stayed with her and not reneged my Caregiving duty.  I should have had been there to bulldoze my stubborn child into remaining in bed.  My temper has caused Vic endless, unbearable pain.  Who knows how long it will take her to recover from this trauma…if she indeed ever recovers from this!  I will never forgive myself for this!

Well with the bad comes the good as well.  We have dreaded Jared’s surgery on Wednesday as we know Vic would have insisted on trying to sit at hospital all day.  Actually, the whole week!  Problem solved.  She is too sore to move… And will more than likely still be in hospital on Wednesday.

The nurses just changed her bed linen and she screamed with pain!  How are we going to take care of Vic at home?  My sister offered to come through but two  qualified nursing staff could not move her without causing major distress.  She also cannot walk and needs to be “bed-cared” for. …bed baths etc, etc, etc

For the first time, ever, I am at a loss.  I am so tired.  I don’t know what to do anymore.

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One day less


I am glad the day is over.  I am grateful that I am one day closer to being reunited with my precious child.

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Tonight I fulfilled one more of Vic’s wishes.

Twenty five years ago Vic was the bridesmaid at my brother and sister-in-laws wedding.  She looked beautiful in a real grown-up pink dress…  They gave her a string of perfect little pearls which she treasured and wore on very special occasions.

After Vic died I came across the string of pearls with a little note.

The note read: “25 years ago Johan and Henda gave me these because I was their bridesmaid.  I would like to now return it to them…”

She wrote them a note telling them how much she loved them.  She told my brother that he was her hero.  She told my sister-in-law that she was amazing….

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Vic and her precious Uncle Johan

What do Alzheimer Patients Die from?


After my post https://tersiaburger.com/2013/06/16/what-is-the-difference-between-alzheimers-and-dementia/
I received a couple of emails and comments that I kept private and did not approve for publication. I decided to do this post at the time. Alzheimers is a terminal disease. Alzheimers has no survivors. The harsh truth is that there is no cure. There is no treatment.

Alzheimer’s disease is not just memory loss – Alzheimer’s kills.

• In 2010, 83,494 Americans died of Alzheimer’s disease – the 6th leading cause of death in the United States overall and the 5th leading cause of death for those aged 65 and older.

• Among 70-year-olds with Alzheimer’s, 61 percent are expected to die within a decade. Among 70-year-olds without Alzheimer’s, only 30 percent will die within a decade.

Deaths from Alzheimer’s increased 68 percent between 2000 and 2010, while deaths from other major diseases, including the number one cause of death (heart disease), decreased.

Change in Number of Deaths
between 2000 and 2010


• Alzheimer’s is the only cause of death among the top 10 in America without a way to prevent it, cure it or even slow its progression.

Dementia is the second largest contributor to death among older Americans, second only to heart failure.

Alzheimer’s disease is the 6th

Today, there are no survivors of Alzheimer’s. If you do not die from it, you die with it.

• One in every three seniors dies with Alzheimer’s or another dementia.

• In 2013, an estimated 450,000 people in the United States will die with Alzheimer’s, meaning they will die after developing the disease.

• Today, over 5 million Americans are living with Alzheimer’s disease, including an estimated 200,000 under the age of 65. By 2050, up to 16 million will have the disease.

• Of Americans aged 65 and over, 1 in 9 has Alzheimer’s, and 1 in 3 people aged 85 and older has the disease.

• Another American develops Alzheimer’s disease every 68 seconds. In 2050, an American will develop the disease every 33 seconds.

Alzheimer’s takes a devastating toll not just on those with the disease – but also on their caregivers. http://www.alz.org/documents_custom/2013_facts_figures_fact_sheet.pdf

Statistics can be extremely misleading. Alzheimer’s disease cannot be definitely diagnosed until after death, when the brain can be closely examined for certain microscopic changes caused by the disease. However, through thorough testing and a “process of elimination,” doctors today can diagnose what they refer to as probable Alzheimer’s disease with almost 90% accuracy.

My father’s death certificate stated “Natural Causes“… In South Africa and most countries, the law requires that a death investigation, or autopsy, be performed when someone dies under mysterious circumstances. Autopsies are usually done if the death was caused by injury, poisoning, infectious complications, foul play (homicide), or when someone dies without an attending physician. If any one of these criteria is present, the local coroner or medical examiner will perform an autopsy to determine the cause of death.

So what do Alzheimers Patients die from?

Stroke is a major cause of death in Alzheimer’s patients

Falling. Slower reaction time, difficulty recognizing changes in the height or depth of a step, can lead to tripping and falling. Changes in balance and coordination combined with poor memory can make it difficult for a person with Alzheimer’s to get from one place to another and avoid hazardous objects at the same time. He may miss a step while looking for a door or trying to listen to someone’s conversation.

Pulmonary aspiration.  Aspiration is the entry of secretions or foreign material into the trachea and lungs.  Alzheimer’s patients forget how to eat and/or swallow and might start choking on their food. The food basically goes down the wrong pipe. A tell-tale sign is when they start coughing whilst eating. This can lead to infection and pneumonia.

Pneumonia is a major cause of death in Alzheimer’s and dementia patients. Decreased mobility and pulmonary aspiration are major causes of pneumonia…

Urinary Tract Infection (UTI). An unidentified UTI can lead to sepsis which can in turn result in organ failure…

Dad in the ambulance en-route to hospital 1

On the 9th of May 2011 my dad had a bad fall. He was taken to hospital by ambulance and admitted to ICU as he required 24/7 care.  On the 10th I met with the medical team.  My Dad appeared to be in a coma.  The Physician said that Dad had pneumonia.  The Neurologist confirmed that Dad was in the Severe advanced stage of Alzheimers.  The Specialist Surgeon wanted to operate on my Dad’s aneurysm….

I made the heart wrenching decision that there would be no aggressive treatment of the pneumonia.  There would be no operation.  The Physician agreed with my decision.

On the 14th of May I took my Dad home.  Hospice evaluated Dad and accepted him as a case.  Hospice started administering Morphine, Dormicum and Serenace subcutaneously and my beautiful dad was comfortable. My Dad battled to swallow and I was pretty distressed about his liquid and food intake.  Dad’s core body temp had dropped to 34.5 degrees C.  Hospice said that Dad’s body had started shutting down and not to worry about his food or liquid intake.  On the 17th my beautiful father cried during a lucid moment because he could not articulate his thoughts and he was mumbling …

Twenty three days after his first fall my Dad lost his battle against Alzheimers when he forgot how to breathe.

Did he die from Alzheimers or pneumonia? Maybe it was the fall or even the aneurysm? His death certificate read “Natural Causes” – my Dad is not an Alzheimer statistic…


What is the difference between Alzheimers and Dementia?


What is the difference between Alzheimers and Dementia?In a nutshell, dementia is a symptom, and AD is the cause of the symptom. When someone is told they have dementia, it means that they have significant memory problems as well as other cognitive difficulties, and that these problems are severe enough to get in the way of daily living…..

Too often, patients and their family members are told by their doctors that the patient has been diagnosed with “a little bit of dementia.” They leave the doctor’s visit with a feeling of relief that at least they don’t have Alzheimer’s disease (AD).

There is great confusion about the difference between “dementia” and “Alzheimer’s disease.” The confusion is felt on the part of patients, family members, the media, and even healthcare providers. This article provides information to reduce the confusion by defining and describing these two common and often poorly understood terms.

What is the difference between Alzheimer’s disease and dementia?

“Dementia” is a term that has replaced a more out-of-date word, “senility,” to refer to cognitive changes with advanced age.

Dementia includes a group of symptoms, the most prominent of which is memory difficulty with additional problems in at least one other area of cognitive functioning, including language, attention, problem solving, spatial skills, judgment, planning, or organization. These cognitive problems are a noticeable change compared to the person’s cognitive functioning earlier in life and are severe enough to get in the way of normal daily living, such as social and occupational activities.

A good analogy to the term dementia is “fever.” Fever refers to an elevated temperature, indicating that a person is sick. But it does not give any information about what is causing the sickness. In the same way, dementia means that there is something wrong with a person’s brain, but it does not provide any information about what is causing the memory or cognitive difficulties. Dementia is not a disease; it is the clinical presentation or symptoms of a disease.

There are many possible causes of dementia. Some causes are reversible, such ascertain thyroid conditions or vitamin deficiencies. If these underlying problems are identified and treated, then the dementia reverses and the person can return to normal functioning.

However, most causes of dementia are not reversible. Rather, they are degenerative diseases of the brain that get worse over time. The most common cause of dementia is AD, accounting for as many as 70-80% of all cases of dementia.

Approximately 5.3 million Americans currently live with AD. As people get older, the prevalence of AD increases, with approximately 50% of people age 85 and older having the disease.

It is important to note, however, that although AD is extremely common in later years of life, it is not part of normal aging. For that matter, dementia is not part of normal aging. If someone has dementia (due to whatever underlying cause), it represents an important problem in need of appropriate diagnosis and treatment by a well-trained healthcare provider who specializes in degenerative diseases.

In a nutshell, dementia is a symptom, and AD is the cause of the symptom.

When someone is told they have dementia, it means that they have significant memory problems as well as other cognitive difficulties, and that these problems are severe enough to get in the way of daily living. 

Most of the time, dementia is caused by the specific brain disease, AD. However, some uncommon degenerative causes of dementia include vascular dementia (also referred to as multi-infarct dementia), frontotemporal dementia, Lewy Body disease, and chronic traumatic encephalopathy.

Contrary to what some people may think, dementia is not a less severe problem, with AD being a more severe problem. There is not a continuum with dementia on one side and AD at the extreme. Rather, there can be early or mild stages of AD, which then progress to moderate and severe stages of the disease.

One reason for the confusion about dementia and AD is that it is not possible to diagnose AD with 100% accuracy while someone is alive. Rather, AD can only truly be diagnosed after death, upon autopsy when the brain tissue is carefully examined by a specialized doctor referred to as a neuropathologist.

During life, a patient can be diagnosed with “probable AD.” This term is used by doctors and researchers to indicate that, based on the person’s symptoms, the course of the symptoms, and the results of various tests, it is very likely that the person will show pathological features of AD when the brain tissue is examined following death.

In specialty memory clinics and research programs, such as the BU ADC, the accuracy of a probable AD diagnosis can be excellent. And with the results of exciting new research, such as that being conducted at the BU ADC, the accuracy of AD diagnosis during life is getting better and better.

This contribution was made by Dr. Robert Stern, Director of the BU ADC Clinical Core.

Source BU ADC Bulletin

http://www.alzheimersreadingroom.com/2010/06/whats-difference-between-alzheimers-and.html


Happy Father’s Day…


When I started thinking about Father’s Day this year I just became so depressed.  I felt that I don’t have any reason to celebrate Father’s Day tomorrow.  Today, I was going through Vic’s photos when I realized that it is not true!

My Dad died on the 21st of May 2011 and Vic’s father died on the 5th of November 1999.

Vic and her Gramps 1.4.2011
Vic and her Gramps 1.4.2011

I was single for most of Vic’s young life.  For most of her little life my Dad was her Dad.  Her Gramps taught her how to play cards and have a night cap….When Gramps had a nightcap he had to mix her a “drink” that had the exact same colouring as his…  They adored one another.

Just about the only thing my dad never forgot was that Vic was ill.  He could not remember my name, but he remembered Vic was ill.  He forgot whether she was in hospital or not but knew she was ill… My Dad was the greatest father in the world.  He not only loved his family but cherished us all.

I grew up in a home with a sickly mother.  A childhood back injury lead to many years of suffering and a vicious cycle of back surgery, stomach surgery, back surgery, stomach surgery….  My parents taught us that “love” was a verb – love is an action.  We lived 1 Corinthians 13 in our home.  We were taught to love, honour and respect. My father was the perfect example of what a husband and father should be.

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In my single years I received a couple of proposals.  My mom pressured me – she really wanted me to remarry…  I always said I will remarry when I meet a man like my Dad.  And then I did…

From the day we were married Vic called Danie “Daddy”.  Danie’s four children were her siblings.

Danie was absolutely amazing with Vic and her illness.  When my dad moved in with us, Danie just accepted it as part of our journey.  He was incredibly patient with my Dad who suffered from Alzheimer’s.  His selfless, caring nature has allowed me to care for my dad and my child; to pursue my career and start-up Stepping Stone Hospice.

Danie was a wonderful dad to Vic.  She distinguished between Danie and Tienie (her biological father) by referring to Danie as “Daddy” and Tienie as her father.  She absolutely adored Danie.  Danie loved Vic as if she was his own.

In the final days of Vic’s life she pleaded with him to not leave her.

"Don't leave me Daddy"
“Don’t leave me Daddy”

A couple of days before her death Vic saw her father…  Jared was standing at the bottom of her bed and she said “Look Jared, Oupa Tienie is standing behind you…”   Her dad held her hand as she stopped breathing.  Her father took her hand as she stopped breathing…

When I packed up Vic’s cupboards I found the cardigan she had bought Danie for Father’s Day this year…  This year she will celebrate Father’s Day with her father and Danie will wear his cardigan.

Father’s Day and Mother’s Day were special days for Vic.  She loved spoiling and being spoilt!

Vic was desperately ill last year on Father’s Day.  I cooked a large family lunch and all the Gauteng kids and grandkids came for lunch.  Vic tried to have lunch with us but within minutes she was nauseous.  I remember her eyes filling up with tears when she excused herself from the table.  “I am sorry Daddy” she said.

Father's Day 2012
Father’s Day 2012

Later that afternoon Danie’s eldest daughter lay next to her in bed. They wept together.  Danie sat with them filled with grief for the pain Vic was going through.

Danie is an amazing grandfather.  He loves Vic’s boys as much as he loves his “biological” grandchildren.  He enjoys spending time with them.  He is teaching them the value of family, goodness and love! 

This beautiful man is more than I deserve.  I love him with every fiber of my body.  I am grateful to him for the gift of his children and grandchildren every day of my life.  I am grateful that he taught me the biggest commandment of all – love!

So tonight I salute two wonderful men.  Happy Father’s Day Daddy.  Danie, you are my best friend.  I love you with every fibre in my body.  Thank you so much for being such a wonderful daddy to Vic and grandfather to the boys.

Vic's beloved Daddy and Gramps
Vic’s beloved Daddy and Gramps

Vic, I hope you have fun in Heaven tomorrow with Gramps and your father.  I know you will be surrounded and ensconced in love.  We will miss you on Father’s Day and every other day in our lives.

http://www.youtube.com/watch?v=c9ZMDPf9hZw&feature=colike

“Amare et fovere” to love and cherish…


“Amare et fovere” to love and cherish….

“Amare et fovere” to love and cherish…


3425.LoveWords

I have never consciously given thought to the difference between the words “love” and “cherish.”

Today I did.

The definition of love is as follows:

            Love/ləv/
Noun
An intense feeling of deep affection: “their love for their country”.
Verb
Feel a deep romantic or sexual attachment to (someone): “do you love me?”.
Synonyms
noun. affection – fondness – darling – passion
verb. like – be fond of – fancy – adore

The definition of cher•ish is as follows:
/ˈCHeriSH/
Verb
Protect and care for (someone) lovingly: “he cherished me in his heart”.
Hold (something) dear.

Synonyms
nurse – nourish – foster

The Latin phrase for Cherish is Alo (alui Altum), Alo (alui Altum) is defined as: nourish, cherish, support, sustain, maintain, keep.

To cherish someone means to treat them with affection and tenderness, to hold them dear – close to our hearts. To me “cherish” implies gentleness, tenderness, respect and friendship; purity of emotion….

We feel cherished when we feel precious….Feelings of being cherished takes me back to my childhood. When my parents loved me unconditionally and I was ensconced in this amazing feeling of being treasured, protected, cared for….safe. 

We all crave to be cherished by our friends, family and loved ones. When we are cherished we have a warm, “safe” feeling within the relationship.

It explained to me why I felt safe in some friendships… There are relationships where I feel loved and then there are relationships where I feel cherished. I am tough. A friend once said I was as strong as the rock of Gibraltar. Little did he know how vulnerable I was at that stage of my life….
I suppose we feel loved by the ones who do not necessarily look out for us and protect us and cherished by those who go the extra mile and have our backs.

Love is easy. We love family because we are bound by blood, DNA of the heart, memories, intellectual and physical attraction. We love our car, our homes, our pets… We cherish our children, some friends, our memories…

Yet there are many people who will not allow others to cherish them —for example, someone who exhausts herself helping others, but when she needs help herself quickly says, “No thank you, I’m fine.”

The irony is that often these people experience a kind of elemental disbelief when they feel uncherished and think someone has let them down. “Oh no! It can’t be! Why am I not loved?” A sense of loss, a basic anxiety, grips them. 

I know that I will move the world for my loved ones. Yet I find it hard to allow people close enough to me, to “cherish” me…I am a do-er. I get embarrassed when people “do” things for me…

I recall once Lani wanted to give me a hand massage…I was too embarrassed to allow it…. I stayed busy to avoid the intimacy of being cherished by someone I love dearly…

There is a difference between cherish and love.  I find it hard to allow people to cherish me because that means I have to trust them with my heart and soul.  Love is less intimidating…

I am grateful that I am able to love and cherish.  I am grateful that people have patiently hacked away at my defences and love and cherish me…

Today I miss my precious child whom I love and cherish and who loved and cherished me….

I am a Shidu… I am a Shidu…


When a parent dies, you lose your past; when a child dies, you lose your future.

 

http://www.sinous.com
http://www.sinous.com

There are more than 100 million single (only) children in China, Xinhua, the state-run news agency, reported in February. That translates into more than 200 million parents of single children.

Until 2012, there were “at least” one million families in China that had lost their only child, Xinhua wrote in a separate report carried by the Jinghua Times. About 76,000 families are added to the sad roster each year, it said.

There is a special term for the parents that has lost their only child….”shidu” family.

In the rest of the world the average woman gives birth to 2.75 children.

I gave birth to one.  My only birth child has died. I am a “shidu”

Today I am (again) desperately missing my child.  I feel as if I have lost my future.  I only have my past.  But I know that is not true.  I have Vic’s two amazing son’s to care for; 4 precious stepchildren; 9 step grandchildren that I love like my own…

Many years ago when Danie proposed I asked God for a clear sign.  I prayed so hard so direction… I explained to God that I was so scared of making a mistake that would affect so many people’s lives.  I asked for a clear scripture!

I opened my Bible and the scripture that jumped up at me was Ecclesiastes 4:9-12 “9 Two are better than one, because they have a good reward for their toil. 10 For if they fall, one will lift up his fellow. But woe to him who is alone when he falls and has not another to lift him up! 11 Again, if two lie together, they keep warm, but how can one keep warm alone? 12 And though a man might prevail against one who is alone, two will withstand him—a threefold cord is not quickly broken.”

I immediately went back on my knees and prayed again.  “God, thank you for the scripture you gave me but what about all the children?”

I opened my Bible and it fell open on page 793 of the Old Testament.  Isaiah 54:1-17 “Sing, O barren one, who did not bear; break forth into singing and cry aloud, you who have not been in labor! For the children of the desolate one will be more than the children of her who is married,” says the Lord. “Enlarge the place of your tent, and let the curtains of your habitations be stretched out; do not hold back; lengthen your cords and strengthen your stakes. For you will spread abroad to the right and to the left, and your offspring will possess the nations and will people the desolate cities. “Fear not, for you will not be ashamed; be not confounded, for you will not be disgraced; for you will forget the shame of your youth, and the reproach of your widowhood you will remember no more. “

My answer was a prophesy…  Not only is my life filled with these precious people but I now also have Izak, Reuben, Nonthanthle and Shekinah to love.  I am blessed.

Does this however fill the void that Vic’s death has left?

I feel ungrateful for being in this well of despair whilst I am not alone.  I am motherless not childless.  The fact remains that I desperately miss my child.  My life is empty.  I have lost my future.

I am a Shidu

https://tersiaburger.com/2012/10/05/danie-the-wind-beneath-my-wings/

 

 

Impossible Love


 

 Nelson Mandela: Is it time for South Africa to let him go?

By Pumza FihlaniBBC News, Johannesburg

Many people still see Nelson Mandela as the antidote to current social ills.

Photo Credit: http://www.bbc.co.uk/news/world-africa-22845268

Photo Credit: http://www.bbc.co.uk/news/world-africa-22845268

So deep is the affection in South Africa for the country’s first black President, Nelson Mandela, that the thought of his passing seems incomprehensible.

But deep down the millions who adore him know that that day is inevitable.

Following a string of health scares in the recent past, South Africans are beginning to come to terms with the mortality of their 94-year-old icon.

Still, this in an uncomfortable topic here.

Somadoda Fikeni, head of the South African Heritage Resources Agency (Sahra), puts it this way: “We no longer have an icon on his level, not only here in South Africa but in the world.

“People see him as the antidote to the current social ills we are faced with. That is why people are still holding on to him.”

According to Isintu – traditional South African culture – the very sick do not die unless the family ‘releases’ them spiritually”

South Africans see Mr Mandela as the glue that is holding the country together and believe that the social challenges of crime, poverty, corruption and unemployment can only be overcome if they have him to inspire the country’s leaders to greatness.

It might be too high an aspiration to place on one individual, but in the eyes of many here, Mr Mandela is no mere individual.

Nevertheless, for the first time it seems that the tone surrounding Mr Mandela’s increasingly frail health is beginning to change.

The Sunday Times newspaper at the weekend led with the headline: “It’s time to let him go.”

A blunt phrase bound to cause discomfort for the family and indeed many others in South Africa.

 

 

The usual response to Nelson Mandela’s illnesses is a call to prayer

But these were not the words of someone who is nonchalant about what Mr Mandela represents to this country. These were the words of a dear friend and fellow Robben Island prisoner, Andrew Mlangeni, upon hearing that Mr Mandela had again been admitted to hospital.

“The family must release him so that God may have his own way with him… once the family releases him, the people of South Africa will follow,” Mr Mlangeni was quoted as saying.

Many are fully aware of Mr Mandela’s poor health and advanced age, but almost in the same breath they say they want him to live for many more years.

It’s an extraordinary relationship, an impossible love.

It may be that squabbling within his family is troubling him and that needs to be addressed while he is still here. He may not be well received on the other side until these issues have been resolved”

Somadoda FikeniSouth African Heritage Resources Agency

At dinner tables South Africans talk about the Nobel Laureate’s need to rest but none utter the phrase that could change it all: “Siyakukhulula tata” – Xhosa for “We release you, father”.

According to Isintu – traditional South African culture – the very sick do not die unless the family “releases” them spiritually – only then will they be at peace in surrendering to death.

Culturally, this practice is seen as “permission” to die and this permission needs to be given by the family; it is reassurance from loved ones that they will be fine.

Mr Fikeni says that the other reason a person fights death is because they have unfinished business.

“It may be that squabbling within his family is troubling him and that needs to be addressed while he is still here. He may not be well received on the other side until these issues have been resolved.”

This may be a reference to a recent court case which has seen an attempt by Mr Mandela’s daughters, Makaziwe and Zenani, to oust three of his aides from companies linked to him.

It is not easy to get people to speak about Mr Mandela’s passing.

The BBC contacted three other cultural experts who refused to comment for fear of a backlash from the family or indeed fellow South Africans.

The press has been less fearful. Local and international media have reported on his four hospital visits since late last year. They camp outside hospitals for days eager to get an update on his health.

During the periods of his illness, the common theme in headlines is to call on South Africans to pray for his speedy recovery – further testimony that many are not ready to lose him.

But Mr Mandela’s visits to hospital have become lengthier and his care more specialised.

President Jacob Zuma and a number of top officials from the governing African National Congress visited him at his Houghton home in Johannesburg shortly after his last release in April. Mr Mandela was seen sitting on a beige couch with a blanket on his legs.

He had a blank expression on his face. On his cheeks, the marks of where a hospital oxygen mask had been. The images were widely criticised.

This time around all we know is that he is in intensive care, and he is being treated for a recurring lung infection.

The presidency is juggling the need to inform South Africans and the world, while respecting the family’s request for privacy. It is an unenviable task.

“The best way to honour him will be to carry on his values of tolerance and conversation”

Anyone who has loved a father or grandfather can attest to wanting that person to live forever – people here see Mr Mandela as the greatest father there ever was.

He after all averted civil war, many South Africans believe, when he called on black and white people to reconcile amid marked racial tension, a time when South Africa seemed on the brink of collapse, destined to descend into anarchy like so many fellow African countries.

But the country still faces division; racism rears its head every so often, the ANC is more divided now than it has ever been.

A culture of tribalism is slowly creeping into the fibre of the new South Africa – some experts say this is due to a lack of firm leadership from the liberation movement.

These divisions are forcing South Africans to take a closer look at Nelson Mandela’s dream of the “rainbow nation” and ask whether it is still alive – and whether it will live on after him.

Some still believe South Africa can surmount its challenges.

“It’s a shared idea that what we have now is better than what he had in the past. All we need to do is hold on to this shared vision of a better South Africa,” says political analyst, Ralph Mathekga.

Fears that Mr Mandela’s passing will lead to anarchy are “unrealistic”, he says, adding that South Africans need to focus on how they can continue the legacy.

“The best way to honour him will be to carry on his values of tolerance and conversation,” says Mr Mathekga.

 

 

 

It’s time to let him go….


1030577_850997“I am fundamentally an optimist. Whether that comes from nature or nurture, I cannot say. Part of being optimistic is keeping one’s head pointed toward the sun, one’s feet moving forward. There were many dark moments when my faith in humanity was sorely tested, but I would not and could not give myself up to despair. That way lays defeat and death.”
― Nelson MandelaLong Walk to Freedom: Autobiography of Nelson Mandela

“When someone is dying, everyone has to wait. It takes time. All of us have a different timetable. Some wait mere hours. Some drag on for days, others, weeks. It is a lesson in patience.” Uma Girish – http://grammarofgrief.wordpress.com/2013/06/06/being-with-the-dying/

Today, in South Africa, Gracia Machel, is sitting vigil next to her beloved husband’s bed.  I have no doubt that she is holding his hand, waiting, praying…  Maybe she too feels that the time has come for Madiba to keep his head pointed to the sun and his feet moving forward to eternal peace and rest.

I wonder whether Madiba fears death? I have no doubt that he has fears for his family, his country…  He once said “I learned that courage was not the absence of fear, but the triumph over it. The brave man is not he who does not feel afraid, but he who conquers that fear.”

In this morning Sunday Times Newspaper the headline was “It’s Time to let him go”.  http://www.timeslive.co.za/sundaytimes/  It is an appeal by Andrew Mlangeni, a longtime friend of Nelson Mandela, to his family.  No doubt it will be controversial and elicit a lot of discussion and criticism.

I agree with Andrew Mlangeni, it is time to let Madiba go…  There can be very little joy in his life.  This man has suffered so much in his life – it is time for his suffering to come to an end.

“There is no easy walk to freedom anywhere, and many of us will have to pass through the valley of the shadow of death again and again before we reach the mountaintop of our desires.”  Nelson Mandela

 

Nelson Mandela’s condition is serious but stable…


 

Photo Credit http://mg.co.za/
Photo Credit http://mg.co.za/

Spokesperson Mac Maharaj said Mandela’s situation was serious but stable.

Maharaj told eNCA on Saturday that doctors had confirmed Mandela was breathing on his own.

“That is a good sign, I think,” Maharaj said.

“This morning at about 1.30am his condition deteriorated and he was transferred to a Pretoria hospital,” presidency spokesperson Mac Maharaj said in a statement.

“He remains in a serious but stable condition.”

Maharaj said doctors were doing everything they could to make Mandela “better and comfortable”.

“President Jacob Zuma, on behalf ofgovernment and the nation, wishes Madiba a speedy recovery and requests the media and the public to respect the privacy of Madiba and his family,” Maharaj said. 

Mandela’s wife, Graca Machel, has been by his side since being admitted tohospital.

On April 6, Mandela was discharged fromhospital after spending nine days receiving treatment for a recurring lung infection. The Nobel Peace Prize laureate has suffered lung ailments before and has been in and out ofhospital.

Regular hospital stays
Early in March, he was admitted to a Pretoria hospital for a scheduled check-up and was discharged the following day.In December last year, Mandela underwent an operation to remove gallstones and treat the recurring lung infection. He was discharged after an 18-day stay and placed under home-based high care at his Houghton home in Johannesburg.

In January, the presidency said Mandela had made a full recovery from surgery and continued to improve. In February last year he was admitted tohospital for a stomach ailment.

At the time, the presidency said Mandela underwent a diagnostic procedure to investigate the cause of a long-standing abdominal complaint.

In January 2011, Mandela was taken to Milpark Hospital for routine tests relating to respiratory problems.

Mandela’s last major public appearance was in July 2010, at the final of the Fifa World Cup at Soccer City stadium in Johannesburg.

 Since then he had spent his time between Johannesburg and his ancestral village of Qunu in the Eastern Cape.  http://www.iol.co.za/news/special-features/nelson-mandela/well-wishes-for-madiba

When the world’s greatest statesman is admitted to a hospital at 1.30 in the morning he is very ill…  If his wife has not left his bedside – he is very ill…  If the doctors are making him comfortable – he is very ill…

Nelson Mandela has a world-class medical team with world-class equipment in his Houghton home…  For him to be admitted to a hospital in the early hours of the morning says it all…

I love and admire Nelson Mandela.  I pray that his suffering will end.  I pray for stability in my country when he dies.  I pray that the lessons he taught the world will be remembered.  I pray that his children and the country will bring honour to his legacy after his passing…

I think an icon’s death may be imminent.

Love you Madiba!

 

 

Mommy’s dream is coming true…


Jon-Daniel’s BBM status today was “Mommy’s dream coming true” with this photo…

Jon-Daniel

Your dream is coming true my angel child. Your Stepping Stone Hospice is functioning, and we have received a building as a donation!  Next week construction will start and by the end of the month we will move in! 

Behind the building there is a duck pond and a quaint little chapel.  I look forward to planting some roses in the garden!  We anticipate wheeling our day-care patients into the garden so they can feed the ducks.

Of course we do not have furniture yet.  The boys are donating the furniture for the two Dignity Rooms (dying rooms).  It was their decision!  We want to real make the rooms pretty and lively… We will play gentle music and burn candles like we did for you… It will truly be rooms of love…

Yesterday I was at the site and I was looking at the terrain that they were clearing.  All of a sudden there was this perfect white feather…Another message from you Angel.  Thank you.  I needed a sign…

Stepping Stone Hospice is daunting.  This week an article appeared in the Tames Times.  It opened a floodgate of telephone calls…  An elderly man called.  His voice was raw with grief and despair.  His wife is dying from liver cancer and he is going through all those familiar caregiver anguish.  How will he know when it is time?  But she is still working and in total denial…He did not want help and will put my number on speed dial… I experienced what Arlene must have experienced when I phoned her the first time….  Quite a few new patients this week…so much pain and fear…

We have had wonderful offers of help.  A woman phoned today and said that she did not know how to care for a sick person, but she was prepared to go clean a sick person’s home… We have had offers of help from professional councillors, people from all wards of life…Now we can only hope and pray that people will volunteer furniture and make some financial contributions! 

I am amazed at the goodness and generosity of people.  The company that donated the building belongs to a young man, Jaco Schultz.  You would have liked him my angel.  He is really a nice young man with a “white heart”.

 I can hear you asking “Where did you find him Mommy?” 

I did not find him.  He found us!  Long story…here is the short version!

We sell second-hand clothing to raise funds…  El-Marie, Jaco’s sister took 14 bags of clothing to Trix.  Trix (a wonderful woman with a superb sense of humour and a passion for Stepping Stone Hospice) told her what we do with the proceeds of the clothes (we buy medication for the indigent patients).  Two weeks later she dropped off more bags and asked whether we could meet her brother… 

The meeting itself was quite funny.  It was when I had that terrible flu.  The morning of the meeting I hardly had a voice, my head was throbbing and I was certain I would die.  Remember the woman you met, who lives around the corner from us and whose daughter-in-law was paralysed in an accident in December 2012?  She was at the meeting.  I was so scared I would spread my flu germs, and she would contract my flu, that I wore a facemask – I did not want DiL’s death on my conscience.  It must have looked so funny!  Me with this horrible surgical facemask… gasping for oxygen and only breathing in concentrated germs! 

Jaco asked to see the terrain, and we went on a walk-about.  He asked whether a tree could be moved….We had a promise of a building that would have a small day-care centre, two dignity rooms, a treatment room…! As easy as that!

plansWithin weeks the promise is becoming a reality.  Construction starts next week!  I am so excited!  So my Angel Girl, there was a purpose to your suffering after all. I wish it was different but it isn’t. We have been blessed beyond comprehension. 

I believe that God is personally overseeing this project. 

Love and miss you with all my heart Sweetie.

https://tersiaburger.com/2012/11/08/being-prepared-to-die-is-one-of-the-greatest-secrets-of-living-george-lincoln-rockwell/

https://tersiaburger.com/2012/11/16/we-both-laughed-and-the-moment-was-over/

https://tersiaburger.com/2012/12/02/where-to-now/

https://tersiaburger.com/2013/02/13/the-process-of-preparing-for-death/

https://tersiaburger.com/2012/10/15/remission-15-10-2012/

https://tersiaburger.com/2012/10/01/sometimes-the-pains-too-strong-to-bare-and-life-gets-so-hard-you-just-dont-care/

https://tersiaburger.com/2013/05/27/hospice-patients-live-longer/

https://tersiaburger.com/2013/04/24/stepping-stone-hospice/

https://tersiaburger.com/2013/01/03/tomorrow-may-be-better-than-yesterday/

 

 

TWENTY …


Vic as a 20 year old with Danie and I
Vic as a 20 year old with Danie and I

Properties of the number 20


Symbolism

  • Represent the God solar for the Mayas.
  • The number 20 is considered as ominous for saint Jerome because it indicates the universal fight, but it also represents the source of all energy of the world.
  • This number is represented in Hebrew by the letter caph, in form of opened hand, to seize and hold. The eleventh mystery of the Tarot, which corresponds to this letter, and consequently with this number, is “the Force” which expresses energy, the activity, the work, according to R. Allendy.
  • Number associated to the resurrection or to the reincarnation, according to Creusot.

Bible

  • Samson had judged Israel for twenty years. (Jg 16,31)
  • Under the commandment of Elisha, twenty barley loaves are enough to feed hundred persons. (2 K 4,42-44)
  • God asked Moses to make the census of all the community of Israelis being twenty years old and more. (Nb 1,3)
  • Jacob spent twenty years at Laban before to escape. (Gn 31,38)

General

  • One month in the religious calendar Maya contained twenty days.
  • Magic square of 20:

8 6 4 2

4 2 8 6

2 4 6 8

6 8 2 4

  • Number of characters of the alphabet of bards.
  • Anniversary of marriage: weddings of porcelain of China.

Occurrence

  • The number 20 is used 117 times in the Bible.
  • The number 24 is used 20 times in the Bible.
  • The number 20 is used only once in the Koran. (Koran VIII, 66)
  • The names of Cain and Rome are used 20 times in the Bible.

 

It is Friday again.  Twenty weeks ago my beautiful Vic died.  Twenty sounds too “little”.  It feels too “much”.  Twenty was always such a magical figure…Twenty had an allure of its own.  Twenty always felt like the “almost adult” number.  I remember when I was twenty years old I was so excited about turning 21…coming of age!

Now twenty represents the number of weeks that we have wept and longed for the presence of Vic.

A year ago I posted “Life aka Vicky” versus Death.  https://tersiaburger.com/2012/06/07/6-6-2012-3-2/

 I wrote “Mommy, I am sick” Every time Vic opens her eyes she utters these words. 

Will she win what we believe to be the final round?  Life aka Vicky vs. Death… Ten long, long years she has fought with every fibre in her little body.  I sense that she is tired.  Ready to concede defeat…  She says she isn’t scared.  I am!  I am scared of facing life without my baby. 

Now I have already faced 20 weeks of living without my baby.