I want to be an eagle


Photo Credit:  http://www.google.co.za/url?sa=i&source=images&cd=&cad=rja&docid=a4HSdquhxAfXUM&tbnid=bvrLKK8OWwZQ2M:&ved=0CAcQjB0wADivAQ&url=http%3A%2F%2Fdaryl-hunter.net%2Fslideshow%2Feagles-nest-idaho-snake-river%2F&ei=UdAjUYbdBO6a1AWewoAQ&psig=AFQjCNHGyZZ71w_6bQPcV6e5EXHslosATg&ust=1361387985127753
Photo Credit: Google

My late father was pretty advanced in his journey with Alzheimers when I read that AD patients respond well to animals.  We got my Dad a little Maltese Poodle and it was love at first sight.

My Dad absolutely adored Tiger.  He carried Tiger everywhere and Tiger sat with him, ate with him and slept with him.

One day my Dad and I were chatting and I asked him: “If you could be any animal what would you be?”

I fully expected him to say a Lion – he loved the magnificence of lions…I love eagles.  I don’t think Dad quite understood what I was asking and said “You go first…”

“I would want to be an eagle…” I said

“Why?” he asked

“I want to soar high above the sky and experience that total solitude and quiet…” I replied

“Oh” Dad said.  “I would want to be this little guy”

Dad did not remember the name of his beloved dog but he knew that the dog was loved, nurtured and spoilt!

I have always equated the turmoil of teenage and parent relationships as an “Eagle” relationship.  The following is an extract from a site –  http://www.eagleflight.org/cyberstudies/actions-and-attitudes-of-a-growing-church/157-with-eagles-wings.  I have changed some of the headings and removed text that is not relevant but basically the content below belongs to http://www.eagleflight.com

Location is very important to the eagle and it’s young. If possible, eagles build their nests on the face of cliffs. They don’t build a nest in a tree unless they absolutely have to, because a nest in a tree can be easily accessed. They don’t build it on the top of the cliff, either, because on the top of a cliff it can be violated, too. Eagles build their nests in some inaccessible place.

The nest is built with consummate skill—not using little twigs, but great branches woven together in an immensely skillful way. If somehow an eagle’s nest is loosed from its moorings and falls, it rarely comes apart. In fact, eagles’ nests are so big, they have weighed in at half a ton! They’re comfortable, too. Their centers are carefully lined with feathers and leaves, and the eggs are placed there. When they hatch, the mother begins the process of feeding the babies.

After the eaglets get to a certain size, or maturity, everything changes! One day the mother eagle comes back from being gone, but this time there’s no food in her beak, and she doesn’t land on the edge of the nest. Instead, she hovers over the nest.

You may not know this, but an eagle can do almost what a hummingbird can do. Even though they are great birds, they can remain almost motionless in midair with those great wings just undulating in the breeze. They do this about three feet above the nest. I’m sure if little eagles could talk to one another—and maybe they can—one would certainly say, “My, what strong wings Mommy has.”

Why does the mother do this? She is demonstrating that those curious appendages on the babies’ backs have a useful function. Eagles, of course, were meant to fly, but they don’t know that. If we take an eagle and separate it at birth from its parents, it will never learn to fly. It will just grovel around in the dirt like a chicken. It might even look up and see eagles soaring overhead and never guess that it was meant to soar in the heavens.

Eagles have to be taught, and that’s the mother’s job. So first she just demonstrates.

The next thing she does is come down into the nest and surprise her young. One can imagine how warm it must normally be for the little eagles to snuggle with their mother and be enshrouded with her feathers, but this time she puts her head up against one of the little ones, and pushes that little one closer and closer to the edge of the nest. (“Hey mom, mom, what are you doing?”)

All at once she pushes the little one out of the nest, and the eaglet falls down the face of the cliff, surely to be destroyed. But not so! In a flash the great mother eagle flies down, catches the little one on her back, and flies up and deposits it in the nest. (“Whew! Mom, that must have been an accident.”) But it wasn’t an accident. The mother bird pushes the little one out again, and again, over and over.

Why would a mother do that to her young? Does she hates the little one? Not at all. It’s just that those little birds were made to fly, and they don’t know it, so she is going to push them out of the nest. She never lets them hit bottom, but she does let them fall, because they have to learn something they don’t know.

The next time the mother bird comes back she decides to clean house, and so she stands on the edge of the nest. The first things to go are the feathers inside; she drops them over the edge. Then the leaves go over the edge—heave ho! While this is going on, she’s not very talkative, either. (“Mom, what are you doing?”) She pays no attention. Since she built the house, she knows how to take it apart.

Next she decides to take the sticks out of the middle of the nest, and with her great strong beak and feet, she’s able to break them off and stand them straight up. (“Mom, it’s not comfortable in here anymore.”) Then she takes certain key sticks out of the nest and throws them over the edge. (“What are you doing, Mom? You are wrecking my room.”)

She seemingly pays no attention to the concerns of her young as she prepares to pull the nest apart, for she is determined that those little ones will fly, and she knows something they don’t. She knows they will never fly as long as they remain in the nest.

That is why teenagers and mothers fight…so they can learn to fly and “escape” home!

We all go through this stage with our teenagers.  Most of the time we don’t even realize the process….  But Nature is great and takes over from us.

I was never able to let go of Vic.  I wanted her close where I could hear her breathe.  The movie “Terms of endearment” shows a mother who walks into the nursery and climbs into the cot to make sure that her baby is breathing.  When the baby starts crying she promptly climbs out, marches out and says “That’s better…”

That is the mother I was!  I mothered (smothered) my precious baby until her last breath.  I do not regret that she never learnt to fly.  Hell, she never even learnt to ride a bike!

As a parent we can only do our best.  We love and nurture and then we set them free…

I just feel so lost and empty.

Wings of Stone


Johannesburg-20110817-00156

Reposted from http://sickocean.wordpress.com/2013/02/16/wings-made-of-stones/ – Aarthi is a very talented poet who manages to capture the essence of life and suffering.  Thank you Aarthi for your beautiful words.

she was forever alone
in her endless fights
through life and times
she stood where
she always was

embedded in earth
clad in stones
she was buried half
under the ground
in pain, in suffocation

her strongest wish was
to fly ever high
free herself and
reside in the sky
forever to come

her helplessness grew
her pain deepened
and her struggles rose
to new levels
deep within her soul

and she flapped
ever so hard
ridding herself of all the mud
and all that was keeping her
away from the vast blue above

and when she did come up
she realized that
her wings they were
made up of stones
of mud, of metallic bones

and she realized that
through years perhaps
or because of her birth
she was defined as
a woman made of stones.

i know this poem has a sad end.. and i usually prevent myself from writing this kind, but then the irony of life sometimes is that at some point in our struggles, and very rarely so, it does happen that we might be limited by what we have made ourselves or what we were born with… certain dreams tend to be impossible, certain hopes are meant to be thrashed… and though it is not the end of it, it is certainly an important aspect of life to be realized.  http://sickocean.wordpress.com/2013/02/16/wings-made-of-stones/

I know Vic is flying, feather light and unrestrained by pain.  Fly Angel Child!!

 

Why don’t I just go to sleep and never wake up?


IMG_7151Last year Vic said:  “Why don’t I just go to sleep and never wake up?”

This year – today – I am saying “Why don’t I just go to sleep and never wake up?”

Last year Vic said:  “My boys don’t need me anymore.  I have been sick all my life.  Even my ears hurt. ”

On the 8th of January 2013 Vic said “Mommy my room is full of angels…”

Tonight I reread something a friend sent me as a comment https://tersiaburger.wordpress.com/wp-admin/edit-comments.php?p=383&approved=1

Dear Tersia

I have been following your journey now for some time and my heart goes out to you and your family. It is NOT EASY to care for somebody that is terminally ill. It makes it even more difficult if that person is your child.
I would like to share something with you though. It is vitally important that you take care of yourself in this tiring time. Please accept all the help from family and friends that’s been offered to you. This will give you some breathing space. It will also allow Vic to know that it is okay if Mom is just having a little bit of “me” time. Her energy is very powerful and she proved it to everybody up to now that she wants to survive.

Allow all Angels and guides to assist you with the care that you and your family so much need right now. God allows you to call upon their assistance when you need them. When Jacob was struggling with an Angel he called the Angel Michael to assist him and Michael was there not only to help him, but also to guide him with whatever he was struggling with. There are many stories in the Bible and other scriptures about God’s Angels. What still amazes me is that God found it necessary to create Angels. HE knew that we and all other creatures would need assistance and comfort when we are lonely. It took me a long time to work this out. It was only after my mom passed away and I fell very ill that my awareness of these wonderful creations of God was awakened.

Dear Tersia, know they are there, they are with you. You just need to ask for their guidance and assistance. Please know that Angels come in all forms. It might be your neighbour, your friend, nursing staff or maybe a presence! Nurture yourself. Get all the friends, family and help that you can now and trust people. They will be guided and equiped with the knowledge to help you now. You need to be taken care of now and so does your family.

Your friend

Louise xxx

The angels did come to comfort my child in her most fear-filled day.

We have found many angels in human form.  Friends, family, acquaintances, WordPress Friends, Facebook friends…..

Thank you Louise for opening my eyes to the angels.   Thank you for the angels that comforted my child in her hour of need and thank you for the angels that came and took her by the hand and whisked her away to a pain-free, joy filled place.

https://tersiaburger.com/2013/01/08/gramps-was-here/
https://tersiaburger.com/2012/06/17/i-always-pray-for-you-but-you-dont-seem-to-have-a-guardian-angel-17-6-2012/

29 days – Promises Kept


My beautiful Angle Child

Today it was 29 long miserable days since you stopped breathing.

I have continued to breathe, walk, talk, eat, drink tea; I have attended meetings, cried and even laughed.  My life has continued yet part of me is dead.  I have lost my words today.  I just want to have a cup of tea with you.  I want to tell you how much I love you and how much I miss you.

Promises Kept

I’ve kept my promise,
of what I would do.
To continue to live,
my life without you.

I get up each morning,
I get through the day
struggling past tears,
every step of the way.

I go on with life with,
a forced happy face.
My heart aches badly,
for what I can’t replace.

I don’t know what to do,
to deaden this pain
It’s so hard, here without you,
where I must remain.

But I will keep my promise
and I must believe,
That you’ll be there waiting,
when it’s my time to leave.
-unknown

 

So we decided on extra maths…


Jared and I when I was only a grann
Jared and I when I was only a grann

Today I felt as if I was at the end of my tether.  Becoming a mom is a full time job.  Maybe I must just adjust to the different routine and responsibilities.  Up until a week before her death Vic was responsible for the boys.  Sure, I did a lot of running around but Vic was my main responsibility.  I was comfortable with our routine of waking, breakfast, showering, meds, nap, wake, lunch …… Vic would push the boys to do homework and their chores. 

I hate “moaning”….If the boys needed to be pulled into line I would just whisper in Vic’s ear and she would sort them out.  I could “ooch and gooch” and make soothing sounds…. I was the Oumie!!

Now I am the responsible person.  The bucket stops with me!

Don’t get me wrong.  The boys are amazing human beings.  Jared has however started battling with maths and as he wants to study Information Technology, he needs higher grade maths.  His maths mark is pathetic and he will never get accepted into a good university with a low maths mark.  So we decided on extra maths lessons….

Jon-Daniel wants to study medicine and needs a maths mark in the upper 90’s to be accepted as a medical student.  His marks are in the upper 80’s – good but not good enough.  So we decided on extra maths lessons….

4.1.2013 Jon-Daniel, Vic and I exactly 2 weeks before Vic died
4.1.2013 Jon-Daniel, Vic and I exactly 2 weeks before Vic died

So the boys need to spend an extra hour and a half, per day, on maths….  They have busy programs!  Mondays and Wednesday is archery and cricket.  Tuesdays and Fridays extra maths and we try to get to the gym 4 days a week….  Wednesday nights they have to visit their dad.

Long story short – the extra maths is being neglected.  Last week my Saudi partner was here and for 8 days we were in back to back meetings from early morning until late at night.  I did not mark the maths, but Danie promised to do so!  Today to my shock I discovered it had not been done!

I started marking the maths and as I went the angrier I became!  I was angry with the slap-dash manner in which the maths had been done.  I was angry that I was marking ~@£&~# maths papers and not caring for my child.  I was angry with Danie for not doing what he promised to do.  I was angry with the boys for not doing their maths properly, but mostly I was angry with Vic.  I was angry that she died and that I now have to fulfill her role!

This is not frigging fair.  I want our lives back.  I want my child back….

It is not really true.  I am grateful that her suffering is over.  My mind is blocking out the memories of how desperately ill she was.  I am remembering the good moments only.  I am grateful that I blogged or else I would lose my mind.  I read and reread the horror of Vic’s suffering just to wonder “was it really this bad?”  I know it was as bad as I am reading if not worse.

Today I join Steven Callahan, someone who can attest to choosing against the odds.  Steven Callahan, survived 76 days adrift in a broken boat.  He ate barnacles and did yoga, tossed in a leaky boat:   “I now have a choice: to pilot myself to a new life or to give up and watch myself die. I choose to kick as long as I can.”

I must kick!  I MUST survive!  For the boys sake!

The four of us on Christmas Eve 2012
The four of us on Christmas Eve 2012

Valentine’s Day killing


Tonight, there are two mothers in South Africa who is in more pain than I am. One mother is the mother of a beautiful young model,  a law school graduate and an entrepreneur committed to empowering women.  Reeva Steenkamp was a celebrity in her own right.  Reeva was one of FHM magazine‘s 100 Sexiest Women in the World for two years running, appeared in international and South African advertisements and was a celebrity contestant on Tropika Island of Treasure filmed in Jamaica. She was also the South African face of Avon cosmetics.

Photo credit: http://www.usatoday.com/story/sports/olympics/2013/02/14/reeva-steenkamp-oscar-pistorius-murder/1919001/
Photo credit: http://www.usatoday.com/story/sports/olympics/2013/02/14/reeva-steenkamp-oscar-pistorius-murder/1919001/

The second mother is the mother of Oscar Pistorius.  Pistorius made history when he became the first amputee to win a silver medal at the World Athletics Championships in 2011.  The following season he secured two more silver medals, in the men’s individual one-lap sprint and the relay event, at the African Athletics Championships in Benin.  Pistorius again wrote himself into the history books when he became the first amputee to compete on the track at the able-bodied Olympic Games in August 2012.  Pistorius reached the semifinals in the individual 400m event, and also competed in the relay final, with South Africa given a free pass after they were obstructed by the Kenyan team in the heats.  A six-time Paralympic Games gold medallist, the Blade Runner holds the men’s 100m, 200m and 400m world records in the T44 disability class.

Photo Credit:  http://www.google.co.za/imgres?imgurl=http://images.worldnow.com/AP/images/2193637_G.jpg&imgrefurl=http://www.cbsatlanta.com/story/21193902/pistorius-involved-in-shooting-at-home-woman-dead&h=238&w=360&sz=12&tbnid=aLVESX2boMLwpM:&tbnh=80&tbnw=121&prev=/search%3Fq%3Doscar%2Bpistorius%2Bgirlfriend%26tbm%3Disch%26tbo%3Du&zoom=1&q=oscar+pistorius+girlfriend&usg=__ZkoSVh-KZ6Crr8OVTGPEqy5lBX4=&docid=ncYAlob0NGIuxM&hl=en&sa=X&ei=STQdUaKTCsSJhQeH8YHgAQ&ved=0CEAQ9QEwBA&dur=4471
Photo Credit: http://www.google.co.za/imgres?imgurl=http://images.worldnow.com/AP/images/2193637_G.jpg&imgrefurl=http://www.cbsatlanta.com/story/21193902/pistorius-involved-in-shooting-at-home-woman-dead&h=238&w=360&sz=12&tbnid=aLVESX2boMLwpM:&tbnh=80&tbnw=121&prev=/search%3Fq%3Doscar%2Bpistorius%2Bgirlfriend%26tbm%3Disch%26tbo%3Du&zoom=1&q=oscar+pistorius+girlfriend&usg=__ZkoSVh-KZ6Crr8OVTGPEqy5lBX4=&docid=ncYAlob0NGIuxM&hl=en&sa=X&ei=STQdUaKTCsSJhQeH8YHgAQ&ved=0CEAQ9QEwBA&dur=4471

At this stage it is unclear whether Reeva snuck into Oscar’s home in the early hours of the morning to surprise him on Valentines Day and was mistaken for a burglar or whether she was cold bloodedly shot by her lover.

Oscar, South Africa’s golden son, is in prison tonight.  Reeva, one of South Africa’s golden daughters, is lying on a cold slab in a mortuary.

In at least two homes mothers are grieving their children.

Whose loss is the greatest?  The mother whose 29-year-old daughter is dead or the mother of the shooter who happens to also be one of the most determined and talented athletes in the world?

I do know I would not change places with either one of them at all!  I know my child suffered long and hard and her remains rest in a little wooden box…but her death was honorable, peaceful and “dignified”.  Her character will not be assassinated in the press or in a court of law… I do not have to worry whether she will spend the rest of her life in prison, whether she will go to bed with a full tummy, safe from other killers and rapists.

Tonight I will pray for the two mommy’s who both lost their children today.

The process of preparing for death


My beautiful baby girl
My beautiful baby girl

A while ago I read the following “When you, a friend, or a loved one is diagnosed with a terminal illness, a process is begun: the process of preparing for death. For many, this time of preparation can be transformed into a rewarding, comforting ending, giving meaning to life, and dignity to death.” Terminal Illness – Preparing for Death – Dealing with Illness

Today a mere 24 days after my child stopped breathing I re-examined this statement.

“When you, a friend, or a loved one is diagnosed with a terminal illness, a process is begun: the process of preparing for death.”  This is so true.  In one foul sweep everything changes!  The way one approach every day; every birthday, Christmas and New Year… One sets small goals.  You learn to appreciate the small things in life – having a cup of coffee with a friend, celebrating another Mother’s Day, living long enough to see the newborn of a loved one…

Last will and testament … setting up trusts for the children; sorting out photos; tidying up cupboards; making decisions whether to have a funeral or cremation….Just close your eyes and feel the terror of planning your own memorial service….  Feel the terror of knowing that your organs are shutting down….feel the terror of knowing that you will have to say goodbye to your loved ones – that they will walk out of your room and you will never see them again, feel the touch of their gentle hands, never hold your sons again…..  Imagine knowing that your life is running out.  Knowing that soon you will breathe your last breath!

This is what my Vic experienced.  She kept asking her BFF, Angela, “How do I say goodbye?”  Vic would cry  and hold onto Angela.  “Don’t go!  Please stay”.

Imagine being on death row with the execution date set.  The process has begun…. The condemned gets to make a will, meet his family for the last time, write his last letters, order his last meal and wonder what death will feel like…

Vic was scared.  She feared death.  She feared not knowing how death would feel….she feared closing her eyes and not ever seeing her loved ones again.

“For many, this time of preparation can be transformed into a rewarding, comforting ending, giving meaning to life, and dignity to death”….  What a load of hogwash!  No matter how much love surrounds the dying person there is no dignity in death.  How can death be rewarding?

It is however an amazing experience to witness the transition of the body when the soul leaves!

This time of preparation is a time filled with trepidation and fear.  Nobody KNOWS what lies beyond your final breath.  What is the Catholics are correct and you head for purgatory?  No one is sin free….What if Islam is correct and you are a Christian?  Then you are doomed to hell!  Hopefully the Christian faith will allow us entry into Heaven…. We will only know when we die!

Comforting time?  What comfort can there be in dying?  No more pain? Sure!  That is certainly comforting but what about the terrible, terrible knowledge that one will be separated from your loved ones?  The love that enshrouded you all your life will be plucked from your existence!  The love will continue but there is a divide between life and death that cannot be crossed!

Meaning to life?  Yes that is true I suppose if you are distant and removed from your family or loved ones or if you had a “purposeless” life.  Dying does give an opportunity to live each day, not waste time procrastinating or living in anger.

Dignity in death?  There is no dignity in a lingering death.  Bit by bit the terminally ill lose their dignity.  Every day there is some new loss to mourn.  The final days, if they are lucky, they will be sedated.  If not they will writhe in pain, choking on their own phlegm and gasping for breath, their hearts racing and delusional from fever.

People around the dying become scared and start praying for their deaths…I know because I did!  People stop visiting because they want to remember the dying person as a healthy, happy person….The terminally ill cease to exist to most of the world long before they die.

Stepping Stone Hospice has 26 patients.  We have had 12 deaths to date – Vic being the first.  Stepping Stone has allowed the dying to die pain-free.  Maybe the rewarding ending is for the living?

 

 

 

 

 

“Live like you were dying” – Tim McGraw


Vic and Esther 8.1.2013
Vic and Esther 8.1.2013

I read this post today –  http://daysnet.wordpress.com/2013/02/03/we-need-to-step-back-and-just-breathe/   I always remember the Tim McGraw song

“LIVE LIKE YOU WERE DYING

He said   “I was in my early forties
With a lot of life before me
And a moment came that stopped me on a dime
I spent most of the next days
Looking at the x-rays
Talkin’ ’bout the options
And talkin’ ’bout sweet time”
I asked him
“When it sank in
That this might really be the real end
How’s it hit you
When you get that kind of news?
Man, what’d you do?”

He said
“I went skydiving
I went Rocky Mountain climbing
I went 2.7 seconds on a bull named Fu Man Chu
And I loved deeper
And I spoke sweeter
And I gave forgiveness I’d been denying”
And he said
Someday I hope you get the chance
To live like you were dying”
He said
“I was finally the husband
That most of the time I wasn’t
And I became a friend a friend would like to have
And all of a sudden going fishin’
Wasn’t such an imposition

And I went three times that year I lost my dad
I finally read the Good Book, and I
Took a good, long, hard look
At what I’d do if I could do it all again

It dawned on me that we have been luckier than most.  We have lived as if Vic was dying all our lives.  We lived every second.  Vic lived every second.  Only the last week of her life she went into dying mode.  Only once she was sedated did she succumb to dying.  The rest of her life she lived; we lived her life.  Every single birthday we celebrated Vic’s life.

We have a family tradition, (which the kids hate), of having eulogy speeches on everyone’s birthday.  So on our birthdays we would go around the table and everyone gets to say something nice of the birthday boy/girl…  We call it our “Living Eulogy”…  So often we only speak well of the dead.  We treat the living with contempt and disregard; we do not acknowledge their achievements and goodness…We are so focussed on success.  Success by our own terms!

I am grateful for our family tradition and I will not allow it to die off…  I am grateful Vic knew how much we revered her….

Vic did not have a career or a degree, fame or fortune.  Yet she has touched thousands of people’s lives worldwide and will continue to do so through Stepping Stone Hospice.  I am grateful that she heard how much we loved and respected her.   The most common words were “You are the bravest person I know…”

Vic was an amazing mother.  She loved and nurtured her boys.  I wonder whether they ever witnessed her tears of pain when she cooked for them or made their lunch for school…. I did.

We will continue to honour Vic’s life through our actions and words.

There is no limit


I have received many words of encouragement and support from so many people.  Some just say “hugs” and other’s offer advice.  One of my most loyal supporters is a lady called Miss Morgan’s Mom – She lost her 16-year-old daughter in a senseless accident.  She lives her loss and grief pours from her posts.  I remember one of her first posts I ever read on her blog she was counting the days (still does) and her grief was so raw and all-encompassing.  I recall thinking “Oh God, is this what awaits me?”  At the time I could only comment “hugs”….  A couple of posts ago she wrote that 14.5 months after Morgan’s death she is finding it more difficult to blog.  People want her to move on….  get on with life.  
 
Last week, a mere 3 weeks after my most precious child’s death I was told by people “Let her rest….Concentrate on the boys” ; “don’t let the boys see you cry…”
 
On Thursday I cried in front of the boys as I did this morning in the supermarket.   I will not apologise for my tears.  My child deserves my tears.
 
I realize people want me to move on because I scare them when I am sad.  They are used to me being strong, fighting for Vic’s life, always laughing, always in control.
 
On Saturday Esther, Vic’s sis, asked me “So what does Google say?  When do sisters start feeling better?”  I replied “Never.  you just get used to the pain”
 
I read this amazing post and had to share it.  Reposted  http://missmorgansmom.wordpress.com/2013/02/04/there-is-no-limit-to-ones-time-for-grief/
 

THERE IS NO LIMIT TO ONES TIME FOR GRIEF

broken heart When someone is grieving i believe in my heart that many if not all outsiders have the best intentions to help I truly do, but understandably  they have no real concept  on how long and how often the mourning need support or just understanding. People that lose loved ones, I have come to find that there is no limit to the time it takes for each individual to find their new normal. I think that sometimes when people view the lives of the sorrowful, they think that the person or people grieving should have come to terms with their loss after a certain amount of time. I have found  this not to be true, I have sadly gained the knowledge that every moment to everyday is different. It is so hard to help people understand that we need to grieve as long as it may take. We all seem to have our own way to do this, whether it is to submerse our time into our work so that our mind has little time to feel the pain, or that we become some what of a recluse trying to understand our torture. There is no right or wrong way to grieve, there are no rules.  I personally try to battle the pain by writing my feelings at that moment. I think some may not understand and my God am I thankful for that because I would not wish this on anyone. It is so important to me to put out there that when you see someone struggling and they may seem as if their path is destructive, it might not always be as it seems, sometimes we must  look outside the box! This is  because anyone who is grieving that keeps having emotions whether negative or positive has not given up the fight. I cannot identify my grief with anyones else, I have learned to accept the death of my father and step mother and although it still hurts, I have learned to move forward. I have found that burying a child is a completely different kind of grief for me anyway. I am moving forward, I am fighting to become a new normal.   I have found that  not just me but all other parents who are trying to win the fight are on this similar  path and they may feel like there is no end, keep fighting. I want to post this link for those that may be fighting this fight to maybe offer support that you are not alone. I also want to post this for people who may just want to understand some of the process grieving parents may be going through. I am also posting some writings from this site that have heart felt meaning to me. https://www.facebook.com/pages/Grieving-Mothers/162680380444494 no limitDear Clueless I would like to share with you my pain but that isn’t possible unless you have lost a child yourself and that I wouldn’t want you to have to experience. So with that being said, I would like to say this. I will try to my best to understand you if you try to understand me. I lost my child. My life will never be the same. I will never be the same again. I will be different from now on. I no longer have the same feelings about anything. Everything in my life has changed from the moment my child left to go to heaven. I will, on some days be very sad and nothing you say will changes that so don’t feel like it is your job to make me feel better on those days, just allow me to be where I am. When you lose a child you not only lose your reason for living, you lose the motivation to go on. You also lose your sense of self. It takes a long time to come to some kind of understanding for why this has happened, if ever. Of course we who have lost children know we have to go on but we don’t want to hear someone else tell us too. Especially from someone who has not lost a child. It makes me and anyone who has lost a child want to say who are you to tell me that? Did you bury your child? I don’t want this to sound like I don’t appreciate everything you say because I know you mean well, but I just want you to appreciate where I am coming from too. I want you to understand that some of the things you say hurt me and others like me without you really knowing it. I know it must be pretty hard to talk to people like myself, not knowing what to say. That is why I am writing this letter. If you don’t know what to say, say nothing or just say I’m sorry. That always works for me. If you want to talk and say my child’s name feel free I would love to hear her name anytime. You not saying her name didn’t make me forget it, or what happened to her. So by all means say her name. When special dates come or holidays come please forgive me if I’m not myself. I just can’t keep it up on those days. I may wish to be by myself so I can think about my child without putting on a front. Most of all I want you to know I’m having a hard time with the death of my child and I am trying my very best to get back into life again. Some days it may look like I have accomplished that, and other days like I am at square one. This will happen the rest of my life periodically. There are just no words to explain the living hell this feels like. There are no words that could ever do it justice. So please bear with me and give me time and don’t put your own timetable on my grief and let me be the person I am now and not have to live up to the person you think I should be. Allow me my space and time and accept me for me. I will try my best to understand you. Love, Your Friend in Grief forward

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Children are so fragile…..


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Christmas 2013

Day 22 has finally arrived.  Day 21 dragged on and on…  I waded through a haze of misery today.  Jared had an horrible day.  I could see he had cried.

Jon-Daniel has a friend sleeping over.  He is a young boy of 14 who lost his dad to a drug overdose a year ago.  I asked whether he had been for counselling.  He said he had but that it had not really helped.

“I had to get over it by myself” this old soul said.

“The shrink kept telling me I must forgive my dad.  I hated my father for using drugs.  So I stopped going.  He wasn’t listening to me so there was no point…”

I have to travel to an exhibition in the UAE from the 16th – 21st of February.  Upon my return the boys and I will go and see the Hospice psychiatrist again. I think we would have worked through enough grief to be able to cope with this part of our journey.

Children are so fragile.  On the surface they appear to be coping yet the pain lies shallow…

Last night Jon-Daniel cried.  Today Jared battled to breathe.

now and forever


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Today at times I felt as if I was suffocating.  It felt as if the grief had grabbed me by the throat and was strangling life out of me.  My heart physically ached.

In the infamous words of Queen Elizabeth 11 “Grief is the price we pay for love.”

Vic was an only child.  I spent the first 16 years of her life dedicated to Vic and only Vic.  Vic’s dad and I separated early in our marriage.  Even in the years that we were married he studied part-time and only got home from University after 10 at night.  Weekends – well that was busy…

When Vic was 16 I married Danie.  He became her dad and she embraced the fact that she now had siblings.  Danie loved Vic with the same pure unconditional love that she had for her boys.  Vic admired, respected and loved Danie for the wonderful dad that he was to her.

Tonight I cannot help but think and remember all the love and nurturing that went into Vic’s life, caring for her, raising her, nursing her when she was sick and taking her to the doctors, teaching her all the things she needed to know to keep her safe in this crazy world, teaching her the art of shopping, watching her get married, fall pregnant – twice, survive 81 abdominal surgeries, fighting for her life every single day.  I loved the mother that Vic was.  Caring and nurturing.

Tonight I remember Vic’s trademark – getting dressed in clothes every day before the boys came home from school, waking up to see them off to school every morning, arranging a party if she had one ounce of strength left!  Vic appreciated seeing the light of day, getting out of bed, seeing the faces of her children.  Every day she breathed was a day that mattered to her.  Every day she used to make memories with her sons, family and friends.

Every day was one more than she had the day before.

She loved driving her little car.  (Vic was a terrible driver!).  Vic was the take-out queen.  She LOVED take-outs!  The last meal she ate was a bit of a Steers hamburger….

Vic was a good, honest, compassionate, caring person who loved loyally and deeply!  She was strong-willed and fought for what she wanted.  She did not tolerate disloyalty in any form.

Vic toured Egypt in a wheelchair and with a cane!  Her biggest wish was to attend Jon-Daniel’s honours evening (4 days before she died) and to travel to Italy.

Vic was brave!  She NEVER complained.  She accepted that pain was part of her life; that being ill was her life.  She seldom questioned the cards she was dealt.  She accepted her life stoically.

I KNOW how hard it was for Vic to get out of bed.  I know how easy it would have been for her to curl up and die very early in her life.  She held on to life until the bitter end because giving up was not an option!

I thought I was well prepared for this period in my life.  I prayed so long that God would release her tortured little body from the hell she lived every day.  I spent years waiting and wondering how it will be.  I have been told that I, of all people, should have been prepared for her death. After all I lived with my child’s terminal diagnosis for 10 years.

The short and the tall of the matter is that there is no way to be prepared.  Researching the stages of death, the grieving process and even preparing her memorial service’s PowerPoint Presentation, in anticipation, could not prepare me for the pain that struck the second that my child died.. 

When I heard Vic’s breathing change I knew she was going.  I knew that within minutes my child would be dead…  Yet in the end, her death was still a terrible shock to me.  How did it happen so quickly?

How do I go on?

Just as there are only some people we can really talk to about our children while they are alive, it seems that there are only a few people we can talk to about them once they have died.

When you lose a child you lose so much more that you may have been prepared to lose.  I have lost my identity as a mom.  I am no longer a Mommy.   I may be a back-up mom to four wonderful young people who love me dearly, unconditionally and deeply but I am no longer a “real Mommy”.  Mother’s Day will come and go…The four kids will celebrate the women who gave birth to them.  The boys will not have a mom to buy a gift for and I will not have a child to wish me.  I do know everyone will try very hard to make it easier for me.  But Vic will not be here to wish me a happy Mother’s Day.

I have a hole in my heart.   My heart physically aches.  I want to die.

Tonight, 21 days after my baby girl’s death I remember a love and bond that was beyond description.  I will continue to breathe; I will honour my promises to my child; I will bring up her beautiful boys; I will cherish her memories; I will grieve for my child.  She was worthy of my love – she is worthy of my tears.

Sweetie I love you now and forever.

 

Vic’s pearls


Vicky dripping in pearls...
Vicky dripping in pearls…

Today I wore Vic’s pearls and perfume.

Her favourite perfume, Beautiful – Estee Lauder, reacts differently to my skin but I could smell “her smell” on me the whole day.

My meetings went well.  I am happy with the outcome.  It is as if my soul is removed from my body – I feel as if I am looking in from the outside.  I see and hear a confident, poised person talking in a matter of fact tone of voice.  I hear myself asking intelligent questions and yet it is a shell sitting there.

No-one sees my sadness and grief.

I miss Vic more and more as each day passes by.  I am starting to realise that Vic is truly never coming home!  The house is big and empty!

You Will Never Get Over it


Vic as a little girl
Vic as a little girl

I have subscribed to a club…The Grief Club”.  I will share the very first post I read with you.

You Will Never Get Over it

By

Corinne Edwards, Guest Author

 

We had a shocking loss of a young person in the family.  My 21 year old son died in an accident. The next day, a friend came to see us.  His son had been killed by a drunk driver. His words surprised me.  They didn’t sink in until much later.

“You will never get over this.  If you know this in advance, you won’t try.  You will not struggle and condemn yourself for not succeeding.”

He was right.  His words became a consolation.  I stopped trying. That’s why I decided to write this article.  I wanted to share my friend’s words with  you. The old normal is gone.  There’s  a hole in your heart and your being that will never be filled.

I related to so many things the women confided.  I read their stories – did the same things.  I also felt my son around all the time.  I went to psychics to try to contact him.  I even attended a séance. I prayed for messages.  I dreamed about him often. I imagined I saw him in a crowd of people.   I wouldn’t let him go.

One psychic told me that those who have gone on to the other side are allowed to stay around for a while to help and comfort, but they won’t be here forever. I started feeling him less and less.  I dreamed about  him only once in a while.  But  he’s never left my heart.

After a period of intense pain, you’ll be different.  The person you were is gone.  It is an amputation.  Eventually, a new person will emerge.  It will be the new normal. A new life will start to take shape, but the limb you  lost won’t grow back.  You will have something in common with a soldier who bravely runs a marathon despite having a prosthesis for a leg.

As my friend said, you’ll never get over it.

This new person will have a life which includes peace, love  and even laughter, community and new friendships.  It can and will happen in your own time.

I believe there is a tiny gift inherent in every unspeakable tragedy. One is compassion.  I could not have written that article for widows if I hadn’t experienced the grief of losing my husband.  I would not have been able to connect.

Another gift is knowing how to help someone who’s in  extreme pain.

The world doesn’t give you much time.  You hear platitudes like “Life goes on” and “Thank God you have other family.”  They say it as if another person can  replace the one you  lost.  You get about two months to get over it. The truth is, they don’t know what to say.  What they don’t know is that all they need to do is listen.

Part of the gift is giving someone else your time to listen far beyond the window  normally allowed.  You know they have no one to talk to.  You reach out more. You know how important it is to tell the story, over and over.

The sharing of this gift, when you are able, will comfort you. You’ll stop struggling to get over it.  You’ll trust that if you’re  still on this earth, there must be a reason. The new normal person will find that reason.  It may not  exist yet, but every day it becomes more real..

© Corinne Edwards

http://www.personal-growth-with-corinne-edwards.com

I have so far to go!  

Owkay mommy I will….


The boys and I visiting Vic in hospital last year.
The boys and I visiting Vic in hospital last year.

It has been a day filled with back to back meetings.  I coped well (I think) and managed to focus.  It was strange not checking my phone every couple of minutes to see whether Vic is okay or not.

I sent the boys’ text messages early evening as the meetings continued into the night.

Me to Jared:  “Hi baby – you okay?”

Jared:  “Hey Oumie.  I’m okay thanks and you?”

Me:  “Missing you”

Jared:  “Missing you too Oumie.  This house feels empty”

Me:  “Will phone later just in a meeting”

Jared: “Owkay Oumie”

Me:  “Sleep tight angel!  Pse wake me so I can see you tomorrow”

Jared “Owkay mommy I will!!! Love you!!! Missing you too Oumie”

Breathe in, breath out, breathe in, breathe out…. I could not look up.  I was petrified that that my colleagues would see the tears that formed in my eyes.

These poor boys!  They are stoic in their grief.  They carry on bravely at school and with all their extramural activities.  They are so young to have gone through so much pain and loss.  They lost their childhoods to Osteogenesis Imperfecta and doctor error; they have watched their mother suffer horrific pain, lose her dignity…Yet they witnessed their incredibly beautiful mother fight every second of her life to stay alive…  She showered them with love and taught them independence.  She was strict and her favourite words to them was “I am your Mother not your excuse”

The boys are brave like their warrior mother!  A credit to her!

I wish I could wipe the pain from their hearts and memories.  There is however no Ketamine Infusion for emotional pain, only for physical pain. I wish I could protect them for pain and loss but I cannot.  I must continue with the phenomenal work their mother started in their upbringing.  I must help them to continue growing and individuals on this path Vic put them on…

I miss my child more than I ever thought I would.  I honestly thought, because of the extended “Anticipatory Grief” period, that we went through, the grief would be less after Vic’s death.  That anticipatory grief is however NOTHING compared to the pain we are experiencing 17 days after Vic’s death.  I don’t know whether I will ever get used to this void in my heart.

Will I ever be able to breathe without pain again?  Will I ever sleep again?  Will I ever laugh spontaneously with joy again?

I actually just don’t want to live with this pain…..

I miss being Mommy


My beautiful Vic
My beautiful Vic

I so desperately need to articulate my pain and yet I cannot.  Words are inadequate and empty.  There are not enough adjectives in the english language to describe my indescribable pain and longing for my precious child.  Yet, my cyberfriend Judy has articulated my emotions pretty accurately.  So in the absence of my own words I am posting Judy’s email to me.

Thank you Judy.  Your words do help.  What a horrible area to be experienced in – the world of grief….  

Judy is right.  I just want my child to be with me.  I miss her more than I ever imagined I would.  The void is like a never-ending well of despair.  I miss being a grandmother and I miss being a Mommy….I am only a back-up mother now.  An empty vessel.

Thank you all for your love and support.

Tersia,

I am not telling you that I know how you feel. I cannot know. Grief was so isolating and lonely that even when I had people caring about me, I remember my mind screaming that I would give anything to have my child back! It was such a horror. I could not concentrate upon anything. I could not read a single paragraph and know what I had just read. I could not sleep. I did not want to be alive anymore.
 
You are so supported – I see message after message flying across cyberspace to hug you. I see a lot of messages telling you to stay strong. I think what is typical for being a caregiver is the constant suppression of emotion. You were Vic’s caregiver for decades. You learned how it was important for you to be strong.  I see how concerned you are about staying strong for everyone around you. I remember when I decided I wasn’t able to be strong anymore.
 
So staying strong might pose a conflict for you. At some point, all of your emotions might start to surface. It is terrifying. I was tired of hearing how my child’s suffering was over. Inside I screamed, “Why did my child ever have to suffer!!?” That was the beginning of my feeling very angry. Anger was a difficult place to be in, but it is a stage of grief. Men and woman grieve very differently, too. Navigating that was more than I could handle, so I retreated to be with other grieving mothers. 
 
I’m wondering if my words are helpful. I guess I just want you to know that you are on a road that you will survive. You know that. Life will never be the same. You know that. Some people cannot enter the doorway of grief. They succumb to it. You have entered the doorway and are plunging ahead into the darkness. It hurts so much!
 
Love, Judy