It’s time to let him go….


1030577_850997“I am fundamentally an optimist. Whether that comes from nature or nurture, I cannot say. Part of being optimistic is keeping one’s head pointed toward the sun, one’s feet moving forward. There were many dark moments when my faith in humanity was sorely tested, but I would not and could not give myself up to despair. That way lays defeat and death.”
― Nelson MandelaLong Walk to Freedom: Autobiography of Nelson Mandela

“When someone is dying, everyone has to wait. It takes time. All of us have a different timetable. Some wait mere hours. Some drag on for days, others, weeks. It is a lesson in patience.” Uma Girish – http://grammarofgrief.wordpress.com/2013/06/06/being-with-the-dying/

Today, in South Africa, Gracia Machel, is sitting vigil next to her beloved husband’s bed.  I have no doubt that she is holding his hand, waiting, praying…  Maybe she too feels that the time has come for Madiba to keep his head pointed to the sun and his feet moving forward to eternal peace and rest.

I wonder whether Madiba fears death? I have no doubt that he has fears for his family, his country…  He once said “I learned that courage was not the absence of fear, but the triumph over it. The brave man is not he who does not feel afraid, but he who conquers that fear.”

In this morning Sunday Times Newspaper the headline was “It’s Time to let him go”.  http://www.timeslive.co.za/sundaytimes/  It is an appeal by Andrew Mlangeni, a longtime friend of Nelson Mandela, to his family.  No doubt it will be controversial and elicit a lot of discussion and criticism.

I agree with Andrew Mlangeni, it is time to let Madiba go…  There can be very little joy in his life.  This man has suffered so much in his life – it is time for his suffering to come to an end.

“There is no easy walk to freedom anywhere, and many of us will have to pass through the valley of the shadow of death again and again before we reach the mountaintop of our desires.”  Nelson Mandela

 

Nelson Mandela’s condition is serious but stable…


 

Photo Credit http://mg.co.za/
Photo Credit http://mg.co.za/

Spokesperson Mac Maharaj said Mandela’s situation was serious but stable.

Maharaj told eNCA on Saturday that doctors had confirmed Mandela was breathing on his own.

“That is a good sign, I think,” Maharaj said.

“This morning at about 1.30am his condition deteriorated and he was transferred to a Pretoria hospital,” presidency spokesperson Mac Maharaj said in a statement.

“He remains in a serious but stable condition.”

Maharaj said doctors were doing everything they could to make Mandela “better and comfortable”.

“President Jacob Zuma, on behalf ofgovernment and the nation, wishes Madiba a speedy recovery and requests the media and the public to respect the privacy of Madiba and his family,” Maharaj said. 

Mandela’s wife, Graca Machel, has been by his side since being admitted tohospital.

On April 6, Mandela was discharged fromhospital after spending nine days receiving treatment for a recurring lung infection. The Nobel Peace Prize laureate has suffered lung ailments before and has been in and out ofhospital.

Regular hospital stays
Early in March, he was admitted to a Pretoria hospital for a scheduled check-up and was discharged the following day.In December last year, Mandela underwent an operation to remove gallstones and treat the recurring lung infection. He was discharged after an 18-day stay and placed under home-based high care at his Houghton home in Johannesburg.

In January, the presidency said Mandela had made a full recovery from surgery and continued to improve. In February last year he was admitted tohospital for a stomach ailment.

At the time, the presidency said Mandela underwent a diagnostic procedure to investigate the cause of a long-standing abdominal complaint.

In January 2011, Mandela was taken to Milpark Hospital for routine tests relating to respiratory problems.

Mandela’s last major public appearance was in July 2010, at the final of the Fifa World Cup at Soccer City stadium in Johannesburg.

 Since then he had spent his time between Johannesburg and his ancestral village of Qunu in the Eastern Cape.  http://www.iol.co.za/news/special-features/nelson-mandela/well-wishes-for-madiba

When the world’s greatest statesman is admitted to a hospital at 1.30 in the morning he is very ill…  If his wife has not left his bedside – he is very ill…  If the doctors are making him comfortable – he is very ill…

Nelson Mandela has a world-class medical team with world-class equipment in his Houghton home…  For him to be admitted to a hospital in the early hours of the morning says it all…

I love and admire Nelson Mandela.  I pray that his suffering will end.  I pray for stability in my country when he dies.  I pray that the lessons he taught the world will be remembered.  I pray that his children and the country will bring honour to his legacy after his passing…

I think an icon’s death may be imminent.

Love you Madiba!

 

 

Mommy’s dream is coming true…


Jon-Daniel’s BBM status today was “Mommy’s dream coming true” with this photo…

Jon-Daniel

Your dream is coming true my angel child. Your Stepping Stone Hospice is functioning, and we have received a building as a donation!  Next week construction will start and by the end of the month we will move in! 

Behind the building there is a duck pond and a quaint little chapel.  I look forward to planting some roses in the garden!  We anticipate wheeling our day-care patients into the garden so they can feed the ducks.

Of course we do not have furniture yet.  The boys are donating the furniture for the two Dignity Rooms (dying rooms).  It was their decision!  We want to real make the rooms pretty and lively… We will play gentle music and burn candles like we did for you… It will truly be rooms of love…

Yesterday I was at the site and I was looking at the terrain that they were clearing.  All of a sudden there was this perfect white feather…Another message from you Angel.  Thank you.  I needed a sign…

Stepping Stone Hospice is daunting.  This week an article appeared in the Tames Times.  It opened a floodgate of telephone calls…  An elderly man called.  His voice was raw with grief and despair.  His wife is dying from liver cancer and he is going through all those familiar caregiver anguish.  How will he know when it is time?  But she is still working and in total denial…He did not want help and will put my number on speed dial… I experienced what Arlene must have experienced when I phoned her the first time….  Quite a few new patients this week…so much pain and fear…

We have had wonderful offers of help.  A woman phoned today and said that she did not know how to care for a sick person, but she was prepared to go clean a sick person’s home… We have had offers of help from professional councillors, people from all wards of life…Now we can only hope and pray that people will volunteer furniture and make some financial contributions! 

I am amazed at the goodness and generosity of people.  The company that donated the building belongs to a young man, Jaco Schultz.  You would have liked him my angel.  He is really a nice young man with a “white heart”.

 I can hear you asking “Where did you find him Mommy?” 

I did not find him.  He found us!  Long story…here is the short version!

We sell second-hand clothing to raise funds…  El-Marie, Jaco’s sister took 14 bags of clothing to Trix.  Trix (a wonderful woman with a superb sense of humour and a passion for Stepping Stone Hospice) told her what we do with the proceeds of the clothes (we buy medication for the indigent patients).  Two weeks later she dropped off more bags and asked whether we could meet her brother… 

The meeting itself was quite funny.  It was when I had that terrible flu.  The morning of the meeting I hardly had a voice, my head was throbbing and I was certain I would die.  Remember the woman you met, who lives around the corner from us and whose daughter-in-law was paralysed in an accident in December 2012?  She was at the meeting.  I was so scared I would spread my flu germs, and she would contract my flu, that I wore a facemask – I did not want DiL’s death on my conscience.  It must have looked so funny!  Me with this horrible surgical facemask… gasping for oxygen and only breathing in concentrated germs! 

Jaco asked to see the terrain, and we went on a walk-about.  He asked whether a tree could be moved….We had a promise of a building that would have a small day-care centre, two dignity rooms, a treatment room…! As easy as that!

plansWithin weeks the promise is becoming a reality.  Construction starts next week!  I am so excited!  So my Angel Girl, there was a purpose to your suffering after all. I wish it was different but it isn’t. We have been blessed beyond comprehension. 

I believe that God is personally overseeing this project. 

Love and miss you with all my heart Sweetie.

https://tersiaburger.com/2012/11/08/being-prepared-to-die-is-one-of-the-greatest-secrets-of-living-george-lincoln-rockwell/

https://tersiaburger.com/2012/11/16/we-both-laughed-and-the-moment-was-over/

https://tersiaburger.com/2012/12/02/where-to-now/

https://tersiaburger.com/2013/02/13/the-process-of-preparing-for-death/

https://tersiaburger.com/2012/10/15/remission-15-10-2012/

https://tersiaburger.com/2012/10/01/sometimes-the-pains-too-strong-to-bare-and-life-gets-so-hard-you-just-dont-care/

https://tersiaburger.com/2013/05/27/hospice-patients-live-longer/

https://tersiaburger.com/2013/04/24/stepping-stone-hospice/

https://tersiaburger.com/2013/01/03/tomorrow-may-be-better-than-yesterday/

 

 

TWENTY …


Vic as a 20 year old with Danie and I
Vic as a 20 year old with Danie and I

Properties of the number 20


Symbolism

  • Represent the God solar for the Mayas.
  • The number 20 is considered as ominous for saint Jerome because it indicates the universal fight, but it also represents the source of all energy of the world.
  • This number is represented in Hebrew by the letter caph, in form of opened hand, to seize and hold. The eleventh mystery of the Tarot, which corresponds to this letter, and consequently with this number, is “the Force” which expresses energy, the activity, the work, according to R. Allendy.
  • Number associated to the resurrection or to the reincarnation, according to Creusot.

Bible

  • Samson had judged Israel for twenty years. (Jg 16,31)
  • Under the commandment of Elisha, twenty barley loaves are enough to feed hundred persons. (2 K 4,42-44)
  • God asked Moses to make the census of all the community of Israelis being twenty years old and more. (Nb 1,3)
  • Jacob spent twenty years at Laban before to escape. (Gn 31,38)

General

  • One month in the religious calendar Maya contained twenty days.
  • Magic square of 20:

8 6 4 2

4 2 8 6

2 4 6 8

6 8 2 4

  • Number of characters of the alphabet of bards.
  • Anniversary of marriage: weddings of porcelain of China.

Occurrence

  • The number 20 is used 117 times in the Bible.
  • The number 24 is used 20 times in the Bible.
  • The number 20 is used only once in the Koran. (Koran VIII, 66)
  • The names of Cain and Rome are used 20 times in the Bible.

 

It is Friday again.  Twenty weeks ago my beautiful Vic died.  Twenty sounds too “little”.  It feels too “much”.  Twenty was always such a magical figure…Twenty had an allure of its own.  Twenty always felt like the “almost adult” number.  I remember when I was twenty years old I was so excited about turning 21…coming of age!

Now twenty represents the number of weeks that we have wept and longed for the presence of Vic.

A year ago I posted “Life aka Vicky” versus Death.  https://tersiaburger.com/2012/06/07/6-6-2012-3-2/

 I wrote “Mommy, I am sick” Every time Vic opens her eyes she utters these words. 

Will she win what we believe to be the final round?  Life aka Vicky vs. Death… Ten long, long years she has fought with every fibre in her little body.  I sense that she is tired.  Ready to concede defeat…  She says she isn’t scared.  I am!  I am scared of facing life without my baby. 

Now I have already faced 20 weeks of living without my baby.

 

27 November 2003


On the 17th of May 2012 I posted this.  It was my first blog post ever.  I was however something I had written ion the 27th of November 2003

How could I ever think that I want my child back?  It is over.  Vic is at peace and pain free.  The pain has transferred to me…

 My dearest child

My heart breaks when I look at you.  Your eyes reflect your fear, acceptance of the inevitable, rebellion and pain.  The morphine dulls your dark eyes…

It is so difficult seeing you in so much pain…the times when you are bent double from pain.  My heart breaks when I see how you are still trying to care for your family.  If only the boys knew how many tears it takes to make a sandwich…Many a time when you are sobbing from pain I see the boys pretending to sleep – as if shutting their eyes can block out your sobs…  I see the helplessness in Colin’s eyes when he looks at you.   It is soul destroying!!!

It is at times like this that I cry out “How much longer God?  When will her suffering end?”  But then I look at the Christmas tree and the Christmas lights and beg “Just one more Christmas please God!”

With the obstruction I fear that you will not make it.  The morphine aggravates the situation!  When will you develop another fistula?  It is only a matter of time.  How time do we have left?

I wish I could just hold you and protect you against the pain and death.  If it was a bullet I would take it for you but how do I protect you against your own body?  How can your body betray you like this?

In my mind’s eye I see you lying on a bed, strapped in,poison flowing through your veins… You are dying

Image

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Bittersweet


100_9077I often wondered exactly what went through Vic’s mind in the final months of her life when she felt death sneaking up on her.  I know she was scared and lonely; she was heartbroken knowing that her boys would grow up without her….I am not stupid.  I know that Vic did not share all her fears and thoughts with me.  She was trying to protect me.

Today I read a bittersweet post.  I wept when I read the words.  It was as if I heard Vic’s voice…felt her fear…

Bittersweet
June 4, 2013 by sugarmagzz        | 6 Comments
 
It happens from time to time, I get a glimpse of my “old” life and for a fleeting second forget that I am dying of cancer. These moments are simultaneously wonderful and devastating. I might be out with a friend for lunch, pumping gas into my car, shopping for Owen, or doing dishes at my kitchen sink. It’s always random and for that brief moment I feel free, as though I’m flying and nothing is tethering me down. I feel like I did before, able to live my life without a shadow cast overhead. It doesn’t last very long because reality always comes crashing down, dragging me with it in its vice-like grip. In this moment of clarity — when it all comes rushing back to me — I can’t breathe. I’m ten again and I’ve fallen flat on my back off the trampoline — immobile, breathless, terrified.  This time there is no ground to break my fall, and so I’m left to kick and scream in mid-air with no one to hear me, no one to catch me. Alone and falling, falling so fast — past the memories that were supposed to one day be mine. I reach out to touch them and slide my fingers over their sparkling surface…
 
The look on Owen’s face when he sees Disney World for the first time.
 
The birth of our second child, to see again Andrew’s incredible capacity for the patience and self-sacrifice of fatherhood.
 
Owen’s high school and college graduation ceremonies, his wedding.
Ashlei’s wedding, the birth of her children, becoming an Aunt.
 
Retirement — relaxing on the dock looking out over the lake with him, my partner in life…reminiscing about the early days and arguing over chores, still.
 
Grandchildren.
I will not see these momentous occasions, they will occur without my physical presence.
 
I hope that there is more to this life, and that I can be there in some way, spirit or otherwise. I hope that my loved ones will always feel me near as they celebrate those unforgettable moments that life has to offer, but my sorrow at missing out on them is endless. I am so very grateful for the incredible moments I have been blessed to experience and I will hold them close until the end. When my time comes, I will take my last breath knowing that my time here was extraordinary, that during my brief existence I lived and loved as greatly as I could. I know there will be more wonderful memories to make before this happens, but everything for me is tinged with darkness — all of the good moments are bittersweet. Still I fight for them, even though they are broken and imperfect. They may not be the memories I thought they would be, but they will still be special.

Tonight I am doubting myself again.  I wonder – did I comfort my child enough?  Why was this precious child of mine condemned to a life of horrible pain and suffering?  She never truly lived!  Why did she die and bad people continue to live and prosper?  Why was she deprived of a future???  She was such a good person!!!!!

I want to hold her and protect her.  I want to tell her how much I love her.  That she is the best thing that ever happened to me.  That my life is empty without her.  That I understood her fears.  

I WANT MY CHILD BACK!!!

 

Red Light


This poem is about a teenager who is killed by a drunk driver. Anyone who gets behind the wheel of a vehicle while intoxicated is a potential killer!!!! Don’t drink and Drive!!!
images (16)

Red Light

©Brittney Elizabeth

He was the most loved with a million friends.
Football star with so many wins.
He had the cutest smile that you would ever see.
He was the funniest person that you would ever meet.
He had a full scholarship from a college in another state,
but he loved football so he couldn’t wait.
A week after graduation, his girlfriend and some friends had a celebration.
He was excited because it was the last party of the year,
he kissed his mom goodbye as she told him not to drink any beer.
He smiled at her and said, “relax mom, I won’t, I’ll be home around midnight.”
She told him she loved him and to have a good time.
As he cruised down the street he thought of how much he would miss his friends and he thought of his girlfriend and how good things had been.
He slowed to a stop as the light turned red,
but the car behind him didn’t seem to see the stop ahead.
He flew from the windshield and on to the ground.
He could see, but he couldn’t look around.
He tried to call for help, but his words wouldn’t speak.
His heart got slower and his body grew weak.
Family and friends flashed in his mind, he thought about his girlfriend one last time.
The medics worked on him to give him breath,
but he was fading fast
so close to “death”.
His neck was broken, and his bones were cracked….
So hard to be identified because his face was smashed.
Time passed by and he opened his eyes to see a man.
There wasn’t a scratch on him, but he could barely stand.
“I didn’t mean for this to happen,” he said with slurred words.
The officer asked, “have you been drinking sir?”
The man looked at the boy and nodded his head.
And the boy closed his eyes remembering what his mother had said.
A tear ran down his face as the light turned red, and around midnight, he was pronounced dead.

Photo Credit:  Google Images
Photo Credit: Google Images

“This is to have succeeded”


Vic often said “I must be such a disappointment to you.  I have done nothing with my life!”

100_8092 (2)

This morning I read these beautiful words and so wished I could have shared it with Vic.

“This is to have succeeded” posted on June 4, 2013 by Dr Bill http://drbillwooten.com/2013/06/04/this-is-to-have-succeeded

“To laugh often and love much; to win the respect of intelligent persons and the affection of children; to earn the approbation of honest citizens and endure the betrayal of false friends; to appreciate beauty; to find the best in others; to give of one’s self; to leave the world a bit better, whether by a healthy child, a garden patch or a redeemed social condition; to have played and laughed with enthusiasm and sung with exultation; to know even one life has breathed easier because you have lived—this is to have succeeded.” ~ Bessie Anderson Stanley

To laugh often and love much – That Vic did.  She always had a smile on her precious face.  Even when she was in dreadful pain she would try to smile.  When she was in a lot of pain her laugh was shrill.  Pain seldom stopped her from laughing… In 2007 I said to Vic that my life was sad.

“That is terrible Mommy.  Why?”

I felt like hitting my head against a wall!  What did the child think?  In 2007 Vic must have had 18 operations; developed every hospital superbug in the book; developed septicaemia, had a high output fistula; developed Acute Respiratory Distress Syndrome; spend months in ICU and survived having the ventilator turned off… Vic was op TPN (Total Parental Nutrition) for months…she had a massive open wound that we could not keep covered with a colostomy bag.  It was too big and positioned very low down.

“I worry about you every second of the day baby.  I worry whether you have vomited and how much you vomited; I worry whether you have been able to eat anything…  I worry about your wound.  I worry about your pain control….”

“Mommy, that is so sad.  At least once a week the boys and I laugh so much that my tummy hurts from it…”

Vic in 2007
Vic in 2007

Vic loved unconditionally and with every fibre of her body.  She gave everything!  She was a wonderful daughter, mother, friend…She loved her family, her siblings, her friends and her boys.  She LIVED love.

Her last words ever were “I love you Mommy”

… to win the respect of intelligent persons and the affection of children;  Worldwide, intelligent people, respect and admire Vic for her courage, tenacity…  We called Vic the “baby whisperer”.  Children loved her.  She loved children.  Her only ambition as a toddler and teenager was to be a Mommy.  She loved her sons beyond comprehension…

The Baby Whisperer
The Baby Whisperer

…… to earn the approbation of honest citizens and endure the betrayal of false friends; Vic suffered a lot of betrayal in her little life.  People got tired of waiting for her to die.  “Friends” spoke about her “addiction” to pain medication behind her back… They used her illness as a weapon against her when she was at her most vulnerable.  False friends (and loved ones) spoke their “minds” and condemned and judged Vic for choices she made… Because she was ill people thought they could say what they wanted, when they wanted.

….. to appreciate beauty; to find the best in others;  My precious child was so naïve.  She refused to see the bad in people!  The only time she got irritated and miserable was in hospital.  She always found the good in people.  She did not speak badly of people.  When I was angry with someone she would placate me…point out their good points… She knew that if she voiced her own anger it would have driven me over the edge.  Vic taught me unconditional love, forgiveness and tolerance.  Vic brought out the best in me and the most other people.

…..to give of one’s self; Vic was a people pleaser.  She would turn down MY bed!!!!  She made sacrifices for each and every person in her life.  Even in death she worried about other dying people who were less privileged than she was.  I promised her 2 am one morning that I would start Stepping Stone Hospice!  She kept talking to me about Stepping Stone until she lapsed into a coma.

IMG_9511

…..to leave the world a bit better, whether by a healthy child, a garden patch or a redeemed social condition; Vic left the world a better place.  Her sons are monuments of the person she was; her dream of a Hospice has been realized.

The boys taking Vic for a walk at the Donald Gordo

……to have played and laughed with enthusiasm and sung with exultation;  With the 2010 Soccer World Cup Vic went crazy with enthusiasm; she bought every gimmick that hit the shops; she went of the “soccer train” in her wheelchair, she watched every single soccer game.

Vic loving World Cup 2010
Vic loving World Cup 2010

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……to know even one life has breathed easier because you have lived     Vic’s legacy will live on through her sons and Stepping Stone Hospice.  Long after I have died, people will continue to benefit from Vic’s dreams and goodness.

—this is to have succeeded.”  My angel child – you succeeded!  You succeeded in life and with living.  You made the world a beautiful place filled with goodness and hope.  I am so proud of you.  You lived life to the full.  You made a difference!  You lived a greater and more successful life than most people.  You have put the world to shame.  You are my hero!

Vic and her monuments
Vic and her monuments

https://tersiaburger.com/2012/10/16/and-the-winner-is/

https://tersiaburger.com/2012/06/09/9-6-2012/

Compassionate friends say…


Sixteen years ago today, my beloved mother lost her battle against the septicaemia ravaging her tiny little body.  I woke up this morning thinking “well at least this year Mom has Dad and Vic with her…”

Christmas many years ago...
Christmas many years ago…
Vic and her Gramps and Moekie
Vic and her Gramps and Moekie

It was very hard for me to come to terms with my Mom’s death.  I spoke to her every day of my life regardless of where I was in the world.  I was a real “Mommy’s Girl”.  Mom adored Vic.  They were so close.

I was cruising (I know “surfing” is the correct terminology) the web looking at bereavement sites when I saw that on the 9th of December 2012  it was  Compassionate Friends 16th Worldwide Candle Lighting.  The 9th of December is my birthday.  It was a special birthday – my last with my precious child.  Worldwide bereaved parents were lighting candles for their dead children…This year I shall join them in sorrow – lighting up the world.…

I found a section “To the Newly Bereaved”.  It is now 4 months and seventeen days or 137 days since Vic died.  Am I still a newly bereaved parent or am I becoming a seasoned bereaved parent?

When your child has died, suddenly it seems like all meaning has been drained from your life. When you wake in the morning, it’s difficult to get out of bed, much less live a “normal” life. All that was right with the world now seems wrong and you’re wondering when, or if, you’ll ever feel better.

We’ve been there ourselves and understand some of the pain you are feeling right now. We are truly glad that you have found us but profoundly saddened by the reason. We know that you are trying to find your way in a bewildering experience for which no one can truly be prepared.

When you’re newly bereaved, suddenly you find yourself on an emotional roller-coaster where you have no idea what to expect next. Here are thoughts on some of what you may be experiencing or feeling (many of these will apply to bereaved siblings and grandparents):

Psychological

  • You’re in shock from what has happened and a numbness surrounds you to help shield you from the pain.   I thought I was going to lose my mind when Vic died.  The pain was unbearable.  Now numbness has settled in.  It is a survival mechanism.
  • You find yourself in denial. Your child cannot be dead. You expect to see your child walk through the door any moment.  No – I have passed this stage.  Vic is dead.  She will never shuffle down the passage again.
  • You see your child in the faces of others walking down the street.  No – Vic was uniquely beautiful.  I wish I could see her face on a walking body because that may erase some horrible memories from my mind.
  • You wonder how someone can feel this much pain and survive.  Absolutely!
  • Thoughts of suicide briefly enter your mind. You tell yourself you want to die—and yet you want to live to take care of your family and honor your child’s memory.  Absolutely!
  • You want to know how the people around you can go about their day as if nothing has happened—don’t they understand that your life—everything that meant anything to you—has just ended? Your purpose in life is gone.  Absolutely
  • You are no longer afraid of death as each day that passes puts you one day closer to being with your child.  Absolutely yes!!!!
  • Thoughts of “what ifs” enter your mind as you play out scenarios that you believe would have saved your child.  Yes
  • Your memory has suddenly become clouded. You’re shrouded in forgetfulness. You’ll be driving down the road and not know where you are or remember where you’re going. As you walk, you may find yourself involved in “little accidents” because you’re in a haze.  Absolutely
  • You fear that you are going crazy.  I fear I am…
  • You find there’s a videotape that constantly plays in an endless loop in your mind, running through what happened.  I try very hard not to think about it
  • You find your belief system is shaken and you try to sort out what this means to your faith.  Yes
  • Placing impossible deadlines on yourself, you go back to work, but find that your mind wanders and it’s difficult to function efficiently or, some days, at all. Others wonder when you’ll be over “it,” not understanding that you’ll never be the same person you were before your child died—and the passage of time will not make you so.  Absolutely correct!
  • You find yourself reading the same paragraph over and over again trying to understand what someone else has written.  Yes – it is scary.  I watch TV programs and cannot remember the show afterwards.

Emotional

  • You rail against the injustice of not being allowed the choice to die instead of your child.  ABSOLUTELY CORRECT!!!!
  • You find yourself filled with anger, whether it be at your partner, a person you believe is responsible for your child’s death, God, yourself, and even your child for dying.   ABSOLUTELY CORRECT!!!!
  • You yearn to have five minutes, an hour, a day back with your child so you can tell your child of your love or thoughts left unsaid.  No, I have no unspoken words or emotions.  I just want her back with me!
  • Guilt becomes a powerful companion as you blame yourself for the death of your child. Rationally you know that you were not to blame—you most certainly would have saved your child if you’d been given the chance.  Thank God this phase has passed.
  • You feel great sadness and depression as you wrestle with the idea that everything important to you has been taken from you. Your future has been ruined and nothing can ever make it right.  My life will never be the same again.  I wonder whether I will ever experience true happiness again.

Physical

  • Either you can’t sleep at all or you sleep all the time. You feel physical exhaustion even when you have slept.  Have these people moved into my home?  This is absolutely true.
  • You no longer care about your health and taking care of yourself—it just doesn’t seem that important anymore.  Maybe….
  • You’re feeling anxiety and great discomfort—you’re told they’re panic attacks.  No
  • The tears come when you least expect them.  Absolutely
  • Your appetite is either gone or you find yourself overeating.  Oh yes! 

Family & Social

  • If you have surviving children, you find yourself suddenly overprotective, not wanting to allow them out of your sight. Yet you feel like a bad parent because it’s so difficult to focus on their needs when you’re hurting so bad yourself.  I am petrified of not being with the boys all the time.  I hate not being with them!  I am stressed when they are with their father or friends.  I am terrified of leaving them to go overseas…
  • You find that your remaining family at home grieves the loss differently and you search for a common ground which seems difficult to find.  Yes
  • You’ve been told by well-meaning people, even professionals, that 70-80-90 percent of all couples divorce after their child dies. You are relieved to find that new studies show a much lower divorce rate, from 12-16%, believed to be caused by the “shared experience” aspect of the situation.  We have gone through a very rough time in our marriage.  We have worked through it.  But I can see that it is a distinct possibility in a newly bereaved situation.
  • Old friends seem to fade away as you learn they cannot comprehend the extent or length of your grief. No…they faded away when Vic was ill and she did not die soon enough
  • Things you liked to do which seemed so important before now seem meaningless.  Absolutely correct
  • Others say you’ll someday find “closure,” not understanding that closure never applies when it is the death of your child.  Darn right! 
  • Fleeting thoughts of pleasurable activities bring about feelings of guilt. If you child can’t have fun, how can you do anything that brings you enjoyment?  Maybe
  • New friends come into your life who understand some of your grief because they’ve been there themselves.  Absolutely!  I have also opened up and made myself “accessible”.  Before, Vic consumed my life.   http://www.compassionatefriends.org/Find_Support/Personal-Note/To_the_Newly_Bereaved.aspx

Tomorrow I will share  “Finding the ‘new me’…”

https://tersiaburger.com/2012/12/10/another-birthday/

http://www.compassionatefriends.org

When the soul leaves the body


When the soul leaves the body.

When the soul leaves the body


http://www.youtube.com/watch?v=auoJV4re3nU
http://www.youtube.com/watch?v=auoJV4re3nU

When a child is born we laugh, cry with joy and celebrate; when a loved one dies we cry with heartbreak and mourn.  We spend a lifetime celebrating life.  Grief too deserves time, attention, honour and embracing.

Grief is painful, yet it gives us a glimpse of Heaven – afterlife… Life after death…

I have seen a quite a few people die.  Mostly very close family… my mom, my mother-in-law, my dad and my precious child.  I have seen strangers die – patients in TB hospitals, AIDS patients in hospital; a young man burning to death after a car accident…

My Mom died when she developed septicaemia from surgery.  She was confused from the raging fever and the infection ravaging her little body.  Mom knew that it would be her last surgery.  She said that she would not survive the operation and was prepared for death.  Mom died with my dad and us kids standing around her bed – taking turns to pray for her.  Like Vic she fought for life until death won the battle.

The day my mom-in-law died I sat next to her bed.  It was just the two of us.  I asked her whether she was scared.  She smiled and shook her head.  I know that she looked forward to death…to the afterlife.  Hours later when this gracious lady just stopped breathing her children and I were standing around her bed.  We were singing her favourite hymn.  Her death was gentle and dignified.

My Dad was not aware of the fact that he was dying… He developed Alzheimer’s pneumonia and gently lapsed into a coma.  My dad just forgot how to breathe.  If he was aware of the fact that he was dying I think he would have been surprised.  He did not “know” he was dying.  I know he would have been grateful that he had been spared that final indignity of Alzheimer’s.  He died the way he lived – with dignity and gentleness…

My precious child died fighting.  She had so much left to do.  She had children to raise.  Vic, like my mom, did not know how to not fight to live another day…

I suppose we all have pre-conceived ideas of how people should handle death emotionally and spiritually.  For years I would ask Vic whether she had asked God for forgiveness and mercy before she went into theatre for more surgery…Later in life I thought how stupid of me.  Vic lived a life, obedient to the greatest commandment – To love God with mind, body and soul….and her neighbour… I knew that Vic had made peace with God.  In death Vic requested Last Communion…  Her spiritual rituals were taken care off.

Vic said her goodbyes.  It was heart-breaking for everyone who loved her.  She needed to hear that we would honour her memory, not forget what she represented in life.  She needed to hear that her sons would remember her as their Mother and not use her as an excuse.  She thanked people over and over for their friendship and love; their caring and loyalty…

Nothing was left unsaid.    I read somewhere “something said or not said, something you wish you had done differently, can stick inside you like a splinter.”

The scenes of death that I have witnessed and lived through were sacred.  I saw souls depart from the bodies of my loved ones… I saw that there is more than life-sustaining organs to a body.  There is a soul…There is no comparison to the appearance of the body after the soul has left the body.

I saw Vic’s father’s soul leave his body five days before he was declared brain-dead.  I was standing next to his hospital bed asking him for forgiveness.  I realised standing there that I was not the only one who suffered from our divorce.  I realised that I too had caused him pain.  I spoke to him about God and Heaven – I prayed for him.  One bloody tear ran down his check.  He continued to breathe on the ventilator, but I felt his soul leave his body.

The willingness to sit at death’s bedside – to embrace the loss experiences in our lives – opens a window into Heaven.  I do not fear death.  I know when my time comes I will embrace death knowing that I will be reunited with my child, my parents, loved ones, friends…the ones I leave behind will eventually follow and join us.   When something leaves it goes somewhere.  It is a displacement of energy.

Now I am between birth and death.  Heaven awaits.

Some of my related posts and other great reads:

https://tersiaburger.com/2012/10/29/one-bloody-tear/
https://tersiaburger.com/2012/08/03/happy-birthday-mommy-3-8-2012/
https://tersiaburger.com/2012/07/18/487/
http://humansarefree.com/2011/03/russian-scientist-consciousness.html
http://www.youtube.com/watch?v=auoJV4re3nU
http://jimmyakin.com/when-the-soul-leaves-the-body
http://www.arachimusa.org/Index.asp?ArticleID=61&CategoryID=359&Page=1

 

ALZHEIMER’S – A SPECIAL POEM


The best father in the world...
The best father in the world…

 

My beautiful dad died of Alzheimer’s.  

 This poem is for you Daddy.  You are my hero; the best father in the world.  You loved unconditionally.  you held onto your dignity with superhuman effort….

I was so proud of you.  You clung to your old-fashioned manners and values until death.

I am glad you died with your dignity intact.  I loved you every day of your life and will continue to love you every day of my life.

A special Poem
 
Do not ask me to remember.
Don’t try to make me understand.
Let me rest and know you’re with me.
Kiss my cheek and hold my hand.
 
I’m confused beyond your concept.
I am sad and sick and lost.
All I know is that I need you
To be with me at all cost.
 
Do not lose your patience with me.
Do not scold or curse or cry.
I can’t help the way I’m acting,
Can’t be different ‘though I try.
 
Just remember that I need you,
That the best of me is gone.
Please don’t fail to stand beside me,
Love me ’till my life is done.
 
– Unknown
My Dad a month before his death....it was such a wonderful day!
My Dad a month before his death….it was such a wonderful day!
My dad and I on my wedding day
My dad and I on my wedding day
Simply the best
Simply the best
Vic adored her Gramps and he adored her!
Vic adored her Gramps and he adored her!

IMG_2538 (2)

My hero!
My hero!

Terms of Endearment


images (14)

I have often compared Vicky and my lives with the lives of Aurora Greenway (Shirley MacLaine) and her daughter Emma (Debra Winger).  Terms of Endearment cover three decades in the lives of widow Aurora Greenway (Shirley MacLaine) and her daughter Emma (Debra Winger).

Fiercely protected by Aurora throughout childhood, Emma runs into resistance from her mother when she marries wishy-washy college teacher Flap (Jeff Daniels). Seventy five minutes into the movie Emma discovers that she has terminal cancer. http://www.rottentomatoes.com/m/terms_of_endearment/

The final third of the movie is about Emma dying and the family’s journey coming to terms with it.

Aurora, the mother, is a sharp-tongued, controlling mother who is fiercely protective of her only daughter.  Emma, the daughter, is a rebel…  Just like Vic and I were.

I was distraught, like Aurora, when I found out Vic was pregnant.  I hated the foetus that was growing in her body… I knew it could kill her.  The second I lay eyes on Jared, I experienced a rush of love that has never been equalled…Don’t misunderstand me – I love all my grandchildren equally.  But, when I first saw Jared I knew I was capable of perfect love.

Aurora grows to love her grandchildren with that perfect love.

Aurora and I are not the touchy types.  Vic and Emma would hug and hold on forever.  I was often uncomfortable with the “excessive” display of emotion.  Vic and I always held hands but I get uncomfortable with long hugs….being that close to another person for a “long” time.  Vic thought I was the worse hugger ever.  There was a day that Vic said “You have not gone all stiff Mommy.  That was a perfect hug.”  In the movie there is a scene where mother and daughter hug.  Emma Horton says: “Momma, that’s the first time I stopped hugging first. I like that.”

100_7451 images (11)

Then of course there is the dreadful hospital scenes where Emma is in so much pain.  Aurora is calm, matter of fact and placating when she talks to her beloved daughter.  She loses her calm exterior the minute that she walks out of the room into the nurses’ station.

Aurora Greenway: It’s past ten. My daughter is in pain. I don’t understand why she has to have this pain. All she has to do is hold out until ten, and IT’S PAST TEN! My daughter is in pain, can’t you understand that! GIVE MY DAUGHTER THE SHOT!

Whilst I was with Vic I smiled, I encouraged and placated…the minute I walked out of Vic’s hospital room God help the sister or doctor I got hold off…  Doctors made U-Turns when they saw me waiting for them; Brendan actually said he was scared of me and would not want to bump into me in a dark passage.

images (6)  images (12)

But that is what Mother’s do.  We fight for our children.  We protect them at all costs and with total disregard to the rest of the world.

Living with a terminally ill child is devastating.  I wanted to fold Vic into my arms, lock out the world and the disease, and protect her from pain.  In the real world we fight with our dying child to keep on fighting, look after themselves, to do what we believe is right… We fight for them, with them…..We fight for their lives.

This fragile balance and relationship is beautifully depicted in Terms of Endearment when the mother (Aurora Greenway) says: I just don’t want to fight anymore.

Emma Horton: What do you mean? When do we fight?

Aurora Greenway: WHEN do we FIGHT? I always think of us as fighting!

Emma Horton: That’s because you’re never satisfied with me.

Vic often used similar words.  She would never “space” herself.  Half a breath of oxygen in her lungs and she was driving and organising a party.  I would fight and remind her that driving (under the influence of humungous quantities of morphine) invariably lead to a fractured vertebrae or two…

“Don’t fight with me Mommy” she would say.

4th of January 2013
4th of January 2013

The most moving scheme in the movie is when Emma says goodbye to her sons.  In the two years, before her dying, her eldest son had withdrawn from her. IMG_8569

saying goodbye

Emma Horton: I know you like me. I know it. For the last year or two, you’ve been pretending like you hate me. I love you very much. I love you as much as I love anybody, as much as I love myself. And in a few years when I haven’t been around to be on your tail about something or irritating you, you could… remember that time that I bought you the baseball glove when you thought we were too broke. You know? Or when I read you those stories? Or when I let you goof off instead of mowing the lawn? Lots of things like that. And you’re gonna realize that you love me. And maybe you’re gonna feel badly, because you never told me. But don’t – I know that you love me. So don’t ever do that to yourself, all right?

Vic was so worried about Jon-Daniel.  He withdrew during her very ill spells.  I remember the one night when she crawled into bed with me.  She was crying bitterly.  https://tersiaburger.com/2012/05/23/23-5-2012/  She spoke about how Jon-Daniel would suffer from guilt after she died.  “Tell him I say thank-you for making me laugh”

Jon-Daniel and his brave Mommy - January 2013
Jon-Daniel and his brave Mommy – January 2013

In the dying scene Emma folds her hand under her chin.  Vic always slept with her little hand under her chin.

https://tersiaburger.com/2013/02/28/the-boys/

https://tersiaburger.com/2012/05/23/23-5-2012/

Terms of Endearment quotes – http://www.imdb.com/title/tt0086425/quotes

Vic and I
Vic and I

Fruit and cancer


I am posting two interesting articles.  These are not medical opinions.  The first on fruit I reposted this from an email that I received.  The originator is apparently a Dr Stephen Mak who makes wild claims of curing 80% of all cancers with a fruit diet.  I don’t believe that at all.  But that is my personal opinion.  I love fruit and could quite honestly live on fruit.  I did find it interesting that one should only eat fruit on an empty stomach.

I know that grated apple and celery on an empty stomach is a 100% cure for constipation.

Eating Fruit on an empty stomach

EATING FRUIT… 

Phot Credit:  Google
Phot Credit: Google

We all think eating fruits means just buying fruits, cutting it and just popping it into our mouths. It’s not as easy as you think. It’s important to know how and when to eat.

What is the correct way of eating fruits? 

IT MEANS NOT EATING FRUITS AFTER YOUR MEALS! * FRUITS SHOULD BE EATEN ON AN EMPTY STOMACH. 
If you eat fruit like that, it will play a major role to detoxify your system, supplying you with a great deal of energy for weight loss and other life activities. 

FRUIT IS THE MOST IMPORTANT FOOD. Let’s say you eat two slices of bread and then a slice of fruit.  The slice of fruit is ready to go straight through the stomach into the intestines, but it is prevented from doing so.  In the meantime the whole meal rots and ferments and turns to acid. The minute the fruit comes into contact with the food in the stomach and digestive juices, the entire mass of food begins to spoil…. 

So please eat your fruits on an empty stomach or before your meals! You have heard people complaining — every time I eat watermelon I burp, when I eat durian my stomach bloats up, when I eat a banana I feel like running to the toilet, etc — actually all this will not arise if you eat the fruit on an empty stomach. The fruit mixes with the putrefying other food and produces gas and hence you will bloat! 

Graying hairbaldingnervous outburst, and dark circles under the eyes all these will NOT happen if you take fruits on an empty stomach. 

There is no such thing as some fruits, like orange and lemon are acidic, because all fruits become alkaline in our body, according to Dr. Herbert Shelton who did research on this matter.  If you have mastered the correct way of eating fruits, you have the SECRET of beauty, longevity, health, energy, happiness and normal weight.

When you need to drink fruit juice – drink only fresh fruit juice, NOT from the cans. Don’t even drink juice that has been heated up. Don’t eat cooked fruits because you don’t get the nutrients at all. You only get to taste. Cooking destroys all the vitamins. 

But eating a whole fruit is better than drinking the juice.  If you should drink the juice, drink it mouthful by mouthful slowly, because you must let it mix with your saliva before swallowing it. You can go on a 3-day fruit fast to cleanse your body. Just eat fruits and drink fruit juice throughout the 3 days and you will be surprised when your friends tell you how radiant you look! 

KIWI:  Tiny but mighty. This is a good source of POTASIUM, MAGNESIUM, VITAMIN E & FIBER.   Its VITAMIN C content is twice that of an orange.   

Photo Credit: Wise Geeks
Photo Credit: Wise Geeks

APPLE:  An apple a day keeps the doctor away?  Although an apple has a low VITAMIN C content, it has antioxidants & flavonoids which enhances the activity of VITAMIN C thereby helping to lower the risks of colon cancer, heart attack & stroke

STRAWBERRY:  Protective Fruit.  Strawberries have the highest total antioxidant power among major fruits & protect the body from cancer-causingblood vessel-clogging free radicals

ORANGE:  Sweetest medicine.  Taking 2-4 oranges a day may help keep colds away, lower cholesterol, prevent & dissolve kidney stones as well as lessens the risk of colon cancer

WATERMELON:  Coolest thirst quencher.  Composed of 92% water, it is also packed with a giant dose of glutathione, which helps boost our immune system.  They are also a key source of lycopene  —  the cancer fighting oxidant.    Other nutrients found in watermelon are      VITAMIN C & POTASIUM. 

Photo Credit: www.bhmpics.com
Photo Credit: http://www.bhmpics.com

GUAVA & PAPAYA:   Top awards for vitamin C.   They are the clear winners for their high VITAMIN C content…  Guava is also rich in FIBER, which helps prevent constipation.       PAPAYA is rich in CAROTENE; this is good for your eyes. 

Drinking Cold water after a meal = CANCER!   Can u believe this????   For those who like to drink cold water, this article is applicable to you.   It is nice to have a cup of cold drink (water or juice)  after and/or during a meal.  However, the cold water will solidify the oily stuff that you have just consumed.    It will slow down the digestion.  Once this ‘sludge’ reacts with the acid,  it will break down and be absorbed by the intestine faster than the solid food.  It will line the intestine.  Very soon, this will turn into fats and lead to cancer.   It is best to drink hot soup or warm water after a meal. 

Photo Credit www.teddyhariadi.com
Photo Credit http://www.teddyhariadi.com

A serious note about heart attacks……..   HEART  ATTACK  PROCEDURE’:            (THIS IS NOT A JOKE!)   Women should know that not every heart attack symptom is going to be the left arm hurting.   Be aware of intense pain in the jaw line.  You may never have the first chest pain during the course of a heart attack.   Nausea and intense sweating are also common symptoms.   Sixty percent of people who have a heart attack while they are asleep do not wake up.  Pain in the jaw can wake you from a sound sleep. Let’s be careful and be aware.   The more we know the better chance we could survive.   

Photo Credit: Westmidlands Health UK
Photo Credit: Westmidlands Health UK

The 1 minute stroke test – By  WebMD Health News

 Feb. 13, 2003 (Phoenix) — A team of stroke researchers has devised a one-minute test that can be used by ordinary people to diagnose stroke — and the test is so simple that even a child can use it. Such an easy, quick test could potentially save thousands of stroke sufferers from the disabling effects by allowing faster treatment.

 “It is just three simple steps” says Jane Brice, MD, assistant professor of emergency medicine at the University of North Carolina-Chapel Hill School of Medicine. Brice tells WebMD that the test is based on a scale developed by researchers at the University of Cincinnati. The three-part test, called the Cincinnati Pre-Hospital Stroke Scale (CPSS), can be used to diagnose most strokes, says Brice.

Brice and her colleagues measured the accuracy of the test by first teaching it to 100 healthy bystanders. The bystanders then performed the test on stroke survivors. To diagnose a stroke, the bystanders performed the following three steps:

1. Bystander told the patients, “Show me your teeth.” The “smile test” is used to check for one-sided facial weakness — a classic sign of stroke.

 2. Then the patients were told to close their eyes and raise their arms. Stroke patients usually cannot raise both arms to the same height, a sign of arm weakness.

 3. Finally, the patients were asked to repeat a simple sentence to check for slurring of speech, which is another classic sign of stroke. “In Cincinnati, the researchers asked patients to say, ‘The sky is blue in Cincinnati,'” says Brice. But in the study, the researchers varied four simple phrases such as “Don’t cry over spilled milk.”

Overall, 97% of the bystanders were able to accurately follow the directions for giving the test, says Amy S. Hurwitz, a medical student at UNC who helped design the study.

The bystanders were 96% accurate at detecting speech problems and 97% accurate at spotting one-sided arm weakness. They were less accurate at detecting facial weakness — with only a 72% accuracy rate for this test. But Hurwitz says, “It is difficult to detect differences in the smile of a stranger. We are hoping that in most cases the ‘bystander’ will actually be someone who knows the patient and so an unusual smile will be apparent.”

A cardiologist says if everyone who gets this mail, sends it to 10 people, you can be sure that we’ll save at least one life.

 

Date of cremation….


I am busy with my child’s estate.  It is absolutely horrible!!!!!!

Today, 131 days after Vic died, I have to complete an insurance form.  The question I cannot answer is “Date of Cremation”.  I did not want to know!  This is another date that will stick to my memory until the day I die….  I had to send an email to the undertaker.  I await his reply.

I held my child death certificate and Notice of Death form DHA-1663A in my hands… On page 1 of 3 is Vic’s tiny little thumbprints, on page 2 of 3 – my thumbprint.  I am listed as the “informant”.  On page 3 of 3 the thumbprint of the Undertaker…

Form number DHA-1663A
Form number DHA-1663A

The darn certificates are smudged with tears now.  Oh well, tough luck!!

No parent should ever have to do, whatever executors have to do, for their child…  It feels as if my heart was ripped out of my chest! 

To-do list: OUTSTANDING FORMS TO SUBMIT

  1. DEATH NOTICE – FORM J294
  2. PARTICULARS OF NEXT-OF-KIN FORM J192
  3. INVENTORY – FORM J243
  4. ACCEPTANCE OF TRUST AS EXECUTOR
  5. CREDITORS LIST
  6. AFFIDAVIT RE EXECUTORSHIP
  7. SPECIAL POWER OF ATTORNEY
  8. INSURANCE POLICY CLAIMS

I DON’T EVEN KNOW WHO TO SUBMIT THESE STUPID DARN FORMS TO!!  I suppose there will be a website somewhere that will tell me.

I WANT MY CHILD BACK!!!!!