Dying is a lonely journey. Not only for the sick person but also for the family. As hard as we may try to avoid death, the truth is that we do a lousy job of it. Science and medicine will certainly postpone it, even staying healthy might seem to delay it, but the harsh reality is that death does not wait for you, it does not ask you, and it does not listen to you. Death ignores your feelings and wants; you do not matter to death…Death is the only certainty in life! We need to remember that our existence here is fragile, and we never have as much time with people as we think we do. If there is someone or someones out there that you love, don’t neglect that and don’t put off engaging with them because waits for no-one… Vic's Journey ended on 18 January 2013 at 10:35. She was the most courageous person in the world and has inspired thousands of people all over the world. Vic's two boys are monuments of her existence. She was an amazing mother, daughter, sister and friend. I will miss you today, tomorrow and forever my Angle Child.
In honour of Mother’s Day I would like to share some of my favorite Mother quotes.
Pilgrim Peace“Pure love is a willingness to give without a thought of receiving anything in return.”
No language can express the power, and beauty, and heroism, and majesty of a MOTHER’s love. It shrinks not where man cowers, and grows stronger where man faints, and over wastes of worldly fortunes sends the radiance of its quenchless fidelity like a star. ~Edwin Hubbell Chapin.
Vic and her boys 1999
A MOTHER is the truest friend we have, when trials heavy and sudden, fall upon us; when adversity takes the place of prosperity; when friends who rejoice with us in our sunshine desert us; when trouble thickens around us, still will she cling to us, and endeavor by her kind precepts and counsels to dissipate the clouds of darkness, and cause peace to return to our hearts.~Washington Irving.
A man loves his sweetheart the most, his wife the best, but his mother the longest. — Irish Proverb.
The natural state of motherhood is unselfishness. When you become a mother, you are no longer the center of your own universe. You relinquish that position to your children. Jessica Lange.
MOTHER’s love for her child is like nothing else in the world. It knows no law, no pity, it dares all things and crushes down remorselessly all that stands in its path. Agatha Christie.
When your mother asks, “Do you want a piece of advice?” it is a mere formality. It doesn’t matter if you answer yes or no. You’re going to get it anyway. –Erma Bombeck
Motherhood is neither a duty nor a privilege, but simply the way that humanity can satisfy the desire for physical immortality and triumph over the fear of death. –Rebecca West
A mother’s love is patient and forgiving when all others are forsaking, it never fails or falters, even though the heart is breaking. -Helen Rice
Today, two years ago my best friend died. On the one hand it feels as if a life time has passed and yet it is as if it was yesterday…
There are only a handful of people who come into your world, and touch your life in a dramatic fashion. Some of the people are just flickers of light during a long life, while others are a consistent glow for years. For me, Marlene was my consistent glow.
I met Marlene 27 years ago. We immediately started chatting and never stopped! For 25 years Marlene and I were inseparable. We would be in one another’s company for hours and within 10 minutes of leaving one another, one of us would remember something else that we forgot to mention and call the other. Our first words would be “Hi Poepies, I forgot to tell you…….. “
Marlene was one of the most beautiful people I have ever known. Nobody looked good next to her. At most we merely enhanced her beauty… Marlene was totally unaware of the effect her beauty had on people. She was very, very hard on herself. I miss that beautiful laughter of hers – nobody could laugh (or cry) like my friend.
25 years of friendship!
Marlene was a human SPCA. It is ironic that her heart, that was so big, eventually let her down.
I was privileged to deliver her eulogy. At her memorial service I saw a sea of faces. Old friends, new friends, school friends, work colleagues, family. Marlene had compassion that was scary… always wanting to help – to do… The word “Love” is a verb; not an adjective…Marlene knew that. She lived that knowledge.
She always made her friends and loved ones designer gifts.
Marlene and I agreed many years ago that we would “make” gifts…I thought we would bake biscuits or something… My birthday was the first “homemade” gift event…my dear friend made me a porcelain doll with photos of Vic, the boys and Danie in a necklace…. How could I ever compete with that???
My porcelain doll
Marlene’s personal best friend had to be the phone…She LOVED speaking on her cell regardless of whether she was driving or not…she spoke on the phone every spare minute she had. Marlene and Sonja spoke from the crack of dawn… I am a late starter, but we spoke until late at night. On the Tuesday of her death I spoke to her at 10:45am – I started phoning her just after 3pm because I was in Marlene chat withdrawal…Needless to say I think Marlene was already chatting to angel Gabriel and boy did she have a lot that she wanted to tell him…
Christmas was Marlene’s favourite time of the year. For decades our families celebrated Christmas together. Her home looked like SANTALAND.. Marlene was an amazing cook. She had a standing rule – everyone had to have two helpings of food to qualify for dessert! She was an amazing hostess.
Marlene helping me “get married”
Marlene had a relationship with God that was a very personal relationship. I don’t know anyone who worked so hard at herself – Marlene strove for perfection…The day she died Marlene was at peace with her God. Marlene is exactly where she has wanted to be for so many years – at the feet of her Heavenly Father.
Marlene was so happy the last couple of weeks of her life – the business had picked up, she had forged beautiful friendships with some of her clients and that was a source of great joy to her; Marlene was at peace in her friendships and was on the brink of a new life with an old friend.
The perfect hostess, the life and soul of a party!
Marlena, I love and miss you. I still feel lost without you. Thank you for a lifetime of chats, unconditional love, all Vic’s school concerts you sat through. Thank you for your loving support with Vic over the years; the times you kept me company when Vic was in hospital. Thank you for “tolerating” my busy house. I KNOW my house drove you crazy with all the grandchildren. Thank you for allowing me to believe that I made better pancakes and fudge than you did…I still don’t trust those statements, but I will give you the benefit of the doubt!
Vic’s Kitchen Tea…
My dearest friend, I hope you are resting at the feet of your Heavenly Father; I hope that you are experiencing the peace that you craved on earth. I hope you and Vic have organized a wonderful anniversary party in Heaven celebrating the Ultimate Event in your life.
Thank you for being here when Vic passed. She told me before she lapsed into a coma that her Gramps and you were in her room; that you were there to guide her on her final journey…
Marlene and Vic at Marlene’s 50th birthday Party
I am selfish when I say “I wish you were here”. I miss you little sister and best friend!
My Mom died 15 years and 11 months ago. She was tiny and petite. I remember my school friends telling me that my Mom reminded them of a fairy princess. My Mom dressed beautifully, had perfectly manicured nails and hair…. She taught us the finer things in life.
My parents
My Mom always worked…she was bright and diligent in her profession as a bookkeeper. She was proud to be a career girl. Mom knitted beautifully and made glorious tapestries!
The surprising thing is that we did not ever feel deprived because Mom worked. I was proud of my mom. As a family, we went on wonderful holidays every single year of our childhoods. We were always the well-dressed kids on the block…We got new bicycles, and we had a beautiful home.
As a child, I thought we were rich. Of course, I knew that many of my parent’s friends lived in seriously nice homes, but somehow I never thought those people were wealthier than we were. Today I realize that I grew up in a middle-class home. As a child, I felt protected and RICH! How amazing is that?
My mother was a remarkable lady. She brought us up to be compassionate, honest people; to never let the sun set on an argument; to love unconditionally, to protect our own… We learnt from her strength, her respect for others, her courage, faithfulness and her love for God. Mom was around for the happy and sad times.
My mom as a young woman
“As mothers and daughters, we are connected with one another. My mother is the bones of my spine, keeping me straight and true. She is my blood, making sure it runs rich and strong. She is the beating of my heart. I cannot now imagine a life without her.”
― Kristin Hannah, Summer Islandhttp://denacronholm.com/
My Mom died after she developed septicaemia post-operatively. It was two agonizing weeks! We sat next to her bed willing her to fight, get well…. To die…
When my Mom died I thought my life was over. The grief was overwhelming. It was my first “real” death. My gran had passed many years ago, but that was my mom’s grief… I was young, ambitious and climbing the corporate ladder. My life went on. I remember my Mom crying at silly times because she was missing her mom. I remember thinking “surely it can’t be that bad? Old people die…”
After my mom died I read these words, “A daughter without her mother is a woman broken. It is a loss that turns to arthritis and settles deep into her bones. ” ― Kristin Hannah, Summer Island.My mom grieved for her mom until the day she died.
I must add that my father was an amazing gentleman. He supported my mom on every level. He treated her like a queen and tolerated no less from us children. I adored my dad! But today’s post is about my mom and motherhood.
I only understood my mom’s love for us after I gave birth to Vic. It was an all-consuming love. I held my tiny baby girl in my arms and knew that she needed me for every one of her needs; she could not survive without me… My mom and I were so close after Vic’s birth. We shared a selfless love that only mothers can understand. As mothers, our children come first; nothing is more important than our child’s comfort, happiness and safety.
Mom, my siblings and I
“Womanhood is a wonderful thing. In womankind we find the mothers of the race. There is no man so great, nor none sunk so low, but once he lay a helpless, innocent babe in a woman’s arms and was dependent on her love and care for his existence. It is woman who rocks the cradle of the world and holds the first affections of mankind. She possesses a power beyond that of a king on his throne.
…Womanhood stands for all that is pure and clean and noble. She who does not make the world better for having lived in it has failed to be all that a woman should be.”
― Mabel Hale, Beautiful Girlhood: A Timeless Guide for Christian Adolescence
I know there are mothers out there that really suck… I know because I have been told by friends that they were never protected or defended by their moms. I am so sad for people who do not have a good relationship with their mothers. I was blessed with an amazing mother and that enabled me to be a good mother to my child. My child was an amazing mother to her sons. She loved her boys with every fibre in her body. She suffered excruciating pain and indignity to stay alive… Vic could have given up much earlier in her life. She fought to live right until the end…why??? It is easy – to bring up her beloved boys herself!
Vic reading to her boys
I am so proud of the mother Vic was. She packed a lifetime of parenting into the little time that she had with her boys. Jon-Daniel’s (14 years) BBM message this morning read “I really do miss you Mommy. I miss the laughs we had and the time we spent together, and I miss talking to you. Love you Mommy.”
A moment in the sun in the Hospital courtyard
The boys are level-headed, clean-living boys. They have taken their mother’s words to heart “I am your mother not your excuse”. Academically they are doing well. Emotionally they are coping. They are beautiful boys and truly do Vic’s memory honour.
I am the last mother alive…there will be no next generation mother to carry forward this miracle of motherhood. The boys may become fathers, but I am the last of a long line of great mothers.
I will think of it on Sunday when millions celebrate Mother’s Day all over the world.
I am so honoured to receive this WordPress Family Award from not one bloggerbut two!! How blessed can I be?
Thank you dear Jane @ http://johannisthinking.com and Shaun @ http://prayingforoneday.wordpress.com/ Both Jane and |Shaun are great bloggers, and their follower figures reflect it. Jane has 375 followers and Shaun 696……I think the reason why they have such great stats is because they care!! They comment, email, care and share. Their blogs are filled with real-world life, happiness, sadness, pain, compassion and laughter… They share their joys and sorrows.
So this award is about being part of the Word press Family!
I started blogging almost a year ago. It was just after my BFF and Dad’s one year anniversary and Vic had made the decision to let nature take its course. It was a difficult time for the family. We were helplessly watching Vic die – little by little every day. Her pain was unbearable.
My blog started off cautiously focussing on Vic’s pain. Tracy @ http://ohwhatapain.wordpress.com/ opened my eyes Vic’s pain – I could “feel” Vic’s pain after I met Tracy; Katie Mitchell @http://connectivetissuedisorders.wordpress.com/ – an incredibly brave young woman who encouraged me when she is in so much pain of her own… I could “see” life through an ill person’s eyes…”feel” her pain through the eyes and words of other Chronic Pain Sufferers.
I grew more comfortable sharing and started blogging more about my fears and emotions… Ultimately about Vic’s death and our grief as a family.
Today I have 210 followers. Many of them have become my cyber family! They love and care for me, my family and my precious Vic. They offer hugs, love, compassion, sympathy and advise. They care unconditionally. They do not criticize my writing, punctuation, spelling or grammar…
I have found friendships and love in cyberspace that I did not know existed. It has also opened my eyes to the fact that there are good people in the world. People who care…. It enabled me to open my heart and life to real life friends too…
I love my blogging family! Love you guys.
I know there are slightly more than 10 nominations. I PRAY I did not omit a precious friend’s blog. If I did, please do not be offended. Blame it on the flu.
Now for a description of the award in the words of the Creator Of The Award:
This is an award for everyone who is part of the “WordPress Family” I started this award on the basis that the WordPress family has taken me in, and showed me love and a caring side only WordPress can show. The way people take a second to be nice, to answer a question and not make things a competition amazes me here. I know I have been given many awards, but I wanted to leave my own legacy on here by creating my own award, as many have done before. This represents “Family” we never meet, but are there for us as family. It is my honor to start this award.” from Shaun @ http://prayingforoneday.wordpress.com/
The Rules:
1. Display the award logo on your blog.
2. Link back to the person who nominated you.
3. Nominate 10 others you see as having an impact on your WordPress experience and family.
4. Let your 10 Family members know you have awarded them. There is a real problem here since this award spread like wildfire but I think I can find ten who should be recognized
5. That is it. Just please pick 10 people who have taken you as a friend, and spread the love.
I am finding it difficult to see what I am typing. My dear friend Dennis McHale posted this beautiful poem as ‘n tribute to Vic. I am touched that this talented man would take the time to do this. Dennis has been such a great friend. http://dlmchale.com/2013/05/02/in-memory-of-vicky/
Today has been such a mixed day. I have been filled with the deepest sadness and sorrow and yet I have felt at peace that Vic’s suffering is over. I miss her terribly.
I am feeling flu-ish and fell asleep on the sofa. Jon-Daniel covered me with a blanket, and I woke when he gently kissed me on the forehead. The way his mommy used too…
I want my child back! It is too hard trying to live without her.
Dennis thank-you for your beautiful words. Thank you for your love and support over the past year. I am too teary to write so I shall post this beautiful poem for the world to read and enjoy.
I love you my Angel Child. You have touched people all over the world.
This poem is dedicated to my dear friend “tersiaburger” In memory of her beloved daughter, Vicky.
——————————————————————-
You and I
are touched by one star.
Wherever you are
we stand together in one light
which no depth or height or distance
can ever dim.
Wherever you are
your light shines;
past time and space
past flesh to thought,
I feel your power.
Wherever you go
the day will dawn
and the star will appear;
for you are a child of this light
and it fosters your heavenly dreams.
In this light, I have found ways
to heal, to bind up,
to tear down the feeble structures
of fear of your absence has
carelessly constructed within me.
You and I
are touched by one star.
In its glowing embrace
we find our true selves;
we find our peace.
Today I may stand alone,
missing you with all my heart
be I stand strong.
Through the corridors of our courage
you have helped me to
discover those eternal lines
of love within myself;
my birthright discovered because
Today I read the post of a very dear blogger friend. She is an unbelievably strong and resilient woman who is dying from congenital heart failure. She is a medical professional who served her country bravely. Sandra is married to an amazing man, and she loves his children dearly. They are a great source of joy to her.
I have just re-read most of Sandra’s old posts. It filled me with sadness reading her brave posts, an almost intellectual outlook on death… My friend is not a stranger to death. As a medical professional she encountered death often. Death in every form, indiscriminate of age, colour or creed.
Sandra posted : how to die? I have watched many die over the years and the range is as you would imagine. there were those that just could not let go and suffered every indignity to their body and soul. of course others went quietly with love around them. I have not decided if I want to be alone or with loved ones by my side. is there a way to make it easier for them? would they rather receive a phone call with the news or be at bedside? either way it will hurt them, not me of course as I am the one leaving. I would be lying if I said I don’t think of how I will miss so much. the thing is I have had so much, so much more than others and it seems selfish to complain. what they will go through is tremendous compared to what I will go through. I will sleep eternally and they will live. the best I can hope for them is peace of mind and future happiness. I want them to think of me and smile as I do now thinking of them. http://thedrsays.org/2011/03/25/
When I read this post I recognised the same almost detached approach to death that Vic had…As emotionally intelligent people Vic and Sandra look at death and know that their loved ones are the ones who will suffer the loss. Vic so often expressed her concern for her loved ones who would be left behind. My friend does the same in her posts…
Sandra wrote:
I believe and hope that I will die with dignity,
we are not born with fear and so we can die without fear. I think a lot of us are not so much afraid of dying as we are of not being remembered. it is only human to hope that our kids will have some fond memory, our grandkids, friends and maybe even some people who just passed through on the way to somewhere else. I would like to think there will be some fond memories of me. Chris is going to have a memorial at our home (I think) for me. I have asked for a celebration of my life. remember me as I am a real person with some good some bad and some … that should maybe stay in the vault:)
Today she posted: “for tonight i am not going to lie to you. i feel death coming closer, i hear the bear growl. at times i think i may see her but then she moves a little and we continue down this path. the toxins are working their way through my body to the skin where they are sores that itch and bleed. i have these toxins because my liver and kidneys are not working the way they should. my liver is enlarged and causes great pain. it is like having the worst charlie horse you have ever experienced just under your ribcage on the right side of your body. of course the spleen takes up its chorus on the left side and the kidneys can be felt in more places than you think and may be different in different people. i am so weak at times that just standing takes a monumental effort. my arms and legs can turn to shaking jello. sometimes my eyes won’t focus and my mind is hard to clear. forget about reading or even looking at the temp control on the wall.” http://thedrsays.org/2013/04/29/sex-lies-and-videotapes/
I am re-living Vic’s final journey with this precious, brave woman.
The purpose of my post is to thank Sandra for her friendship, support, guidance, compassion and advice over the past year. Often when I vented about Vic being stubborn or ill Sandra would gently advise me from a terminally ill person’s point of view. She opened my eyes to so much of my child’s emotions and personal struggle… She knows because it is her journey too.
My friend is a medical professional and KNOWS what is happening in her body. Vic knew too…
In November 2012 Vic started saying that death was close…she would not bounce back this time…and now my friend says “I feel death coming closer…”
Oh my friend what can I say? I know the emotional agony that Vic went through when she was where you are now. I wish I could give you some of my health. I wish I could wave a magic wand, and you would have more time. We both know I cannot do any of this.
Please know I hold you in my heart. I am sad that your journey is almost over. I am so sad for the dreadful pain you are in. I hope you are having pro-active symptom control.
I want to thank you today whilst you are strong enough to hear my words. Thank you for your friendship, compassion and support over the past couple of months.
I think you are incredibly brave, and you remind me of Vic…Stubborn, compassionate, intelligent…amazing! I hope that you will meet her when it is your time to cross over. Please know that I treasure you as a dear friend.
I pray for a miracle, that you will have lots of time, pain-free days. Know that you are loved and admired. I wish we had met.
I am not saying goodbye – just thank you for being a wonderful friend
To all my blogger friends out there – please pray for Sandra and Chris….
When my brave daughter planned her memorial service she specified these words of wisdom to be in the funeral letter. It was a personal note from Vic to us. I wonder how many people actually realized it?
Reason, Season and Lifetime …
People always come into your life for a reason, a season, or a lifetime. When you figure out which it is, you know exactly what to do. …
When someone is in your life for a REASON, it is usually to meet a need you have expressed outwardly or inwardly. They have come to assist you through a difficulty, or to provide you with guidance and support, to aid you physically, emotionally, or even spiritually. They may seem like a godsend to you, and they are. They are there for the reason you need them to be. …
Then, without any wrong doing on your part or at an inconvenient time, this person will say or do something to bring the relationship to an end. …
Sometimes they die. Sometimes they just walk away. Sometimes they act up or out and force you to take a stand. What we must realize is that our need has been met, our desire fulfilled; their work is done. The prayer you sent up has been answered and it is now time to move on. …
When people come into your life for a SEASON, it is because your turn has come to share, grow, or learn. They may bring you an experience of peace or make you laugh. They may teach you something you have never done. They usually give you an unbelievable amount of joy. Believe it! It is real! But, only for a season. And like Spring turns to Summer and Summer to Fall, the season eventually ends. …
LIFETIME relationships teach you lifetime lessons; those things you must build upon in order to have a solid emotional foundation. Your job is to accept the lesson, love the person/people (anyway); and put what you have learned to use in all other relationships and areas in your life. It is said that love is blind, but friendship is clairvoyant.
Thank you for being part of my life.
Love
Vicky
When I read this the first time I categorized people in to the Reason; Season and Lifetime categories… I clearly remembered and recognized the “Reason” and “Season” friends… I found that the “Reason” people were people who crossed my path early in my life… I almost felt that it was old work colleagues, school friends, childhood neighbours. Character defining people who either moved on or were left behind by me.
A “Season” can be defined as an hour, day, week, year, or several years. Maybe even part of a lifetime, but it will at some time fade out and for no real reason. The “Seasoners” will bring you an unbelievable amount of joy. Believe it. It is real. But only for a season. The season relationship is not something to force or cling to… It dies naturally and through no fault of either person.
Lifetime friendships offer not only good times, but also survives bad times, offers times for growth and challenge. The friendship grows over time, and a deep abiding bond develops – a love which sustains both people in the friendship. They become members of your family. They may be people with whom you’ve grown up or met yesterday, but they will be there “until death do us part”.
I stood in front of the church flanked by my grandsons when I delivered my precious child’s eulogy. I looked at the people and recognised the “Reasoners, Seasoners and Life timers…”
I saw so many Life Timers who truly loved Vic until death saved her from more pain and suffering. Friends that never abandoned her, patiently waited for a good day to see her… Friends quietly crying tears of deep sorrow and loss….
I remembered why Vic chose this poem, in 2003, to be in her funeral letter. She wanted to thank each and every person for the role they played in her life. She wanted people to know that she clearly saw and accepted this truth. She felt great sorrow when someones time with her ended. It’s only natural when we come to love someone to want them to be there forever. Vic clung to relationships and friendships way past their “expiry” date. She mourned her losses.
Vic did however learn that very valuable life lesson – to be grateful for whatever time she was granted with those she cared about. Vic clung to life to extend her time with the “life timers”…
My beautiful Vic
Death had to pry her fingers from Life and her Life Timers…
Does time really heal all wounds? Mothers who have lost a child to death assure us that “it will get better.” Friends and loved ones have started telling me that “it is time to get over it and get on with life.”
Researchers say that a mother never ceases mourning the death of her child. I believe this finding.
In those immediate hours, after my precious child’s death, time stopped. My life ground to a halt.
At Vic’s Memorial Service I was amazed that people rushed off after the service and tea to meetings, to pick up children from school…I remember thinking that everyone had already moved on…
I stood next to the hearse not wanting it to leave. I rested my hand on the wood of the casket…I wanted to pull my child out of that darn coffin and wrap her in my arms. I was not ready to say goodbye.
Today it is 100 days filled with searing pain and longing since Vic left home for the last time.
I have begun to mark time differently. I count the number of days, weeks and months that I have mourned and missed my child.
I know that every day that passes is one day closer to me being with my beloved child again. I know that Vic’s suffering is over; I know that it is for the best that Vic’s dreadful pain filled life is over…. It does not make my mourning less.
So today I am burning candles for my child. I am praying that my child is at peace. I am praying for grace to endure this longing. I pray that I will have the strength to continue honouring Vic’s memory….
I pray that I will be worthy of the trust she put in me to look after her precious boys.
On the surface it appears as if the boys are coping well. I heard a comment from a teacher this week saying that, despite the trauma they went through with Vic’s death this year, they are actually doing better than last year.
It was so difficult watching her suffering!
So today, once again, I say “Rest in Peace my beautiful Angel Child”
Today it is the 14th sad Friday since Vic died. Will I ever experience a Friday without sadness again?
It is 99 days today… Tomorrow it will be 100 long, tear filled days…
Sweetie, I love you as much as I did the day you stopped breathing. I miss you more than I could ever have imagined. I miss your gentleness, your unconditional love, your caring, your friendship and your voice.
Today was an amazing day. I desperately miss my beautiful child.
I woke up early this morning remembering that I had a 8am meeting with the Hospice Bereavement Councillor or psychiatrist, whatever you prefer to call Alan. I looked at the time on my cell phone (can’t read my watch without my glasses) and thought to myself
“Hmmm, I need 45 minutes travelling time, 30 minutes to shower, dress, do my make-up and 15 minutes for breakfast and tea…”
I lay there in my war bed and decided I would be very rude and I would LIE – I would let Alan know I am stuck in the traffic… Writing this I am so ashamed for blatantly lying to this good man but it is done! I cannot undo the lie or my decision not to go… I will however confess if I see him again.
My first business appointment of the day was at 11am so I decided to lie in and check my emails in bed. There was a comment on one of my first posts…I reread the post and the next and the next and the next… I reread every one of the 335 posts I had written.
Other times, when I reread any of my journal entries or blog posts, I teared up. Today I did not. I was filled with relief.
I reread my baby girl’s journey filled with unbearable pain, suffering, discomfort, loneliness and indignity. The more I read the more I realised how selfish I was being. I took cognisance of the fact that in the early days of my blog I was careful with my words… Today I realised how much was never written. I was shocked at how little I had actually written of Vic’s pain… I remembered my child’s screams of pain and tears … I remembered how I prayed that her dreadful journey would end.
Today I was grateful that her suffering was over!
Does that mean I am “over” the death of my child? No! No! No! But I am at peace today that Vic is free of pain…
I missed her today as I will tomorrow, the day after tomorrow, next year and forever!
Vic and I
23.5.2012
At about 01:00 this morning Vic came into my room and got into bed with me. Her tummy was cramping badly and she was scared. She just lay with me for a long time, sobbing and talking about her fears.
E.H.Chapin said: “Out of suffering have emerged the strongest souls, the most massive characters are seamed with scars”…
Sobbing her little heart out she expressed her fear of how Danie and I will cope with her death… She asked me to remind Jon-Daniel of how he made her laugh when she was sad, Jared how much he helped her…
She told me I will have to be stricter with the boys after she is gone… She asks me to deliver her eulogy at her funeral…
Today was a day out of hell for Vicky. She is deadly pale – she actually has a ghost like appearance. She was so ill that she was unable to take pain medication and now her pain is out of control.
It is 20:00 and Vic has been fed, changed, powdered and medicated. She screamed with pain when I changed her. Seeing my child sick and in pain, every day of her life , kills me. I am dying, painfully slowly from my child’s pain. https://tersiaburger.com/2012/07/09/i-am-dying-9-7-2012/
12.8.2012
Vic is still a very sick little girl. The fact that her pain is better controlled does not mean that she is well. If any of us had spent the amount of time vomiting and cramping that she has this week we would be in bed hooked up to an IV and praying for death. This week Vic’s amazing resilience again amazed me. She is strong beyond comprehension!
My heart bleeds for her that her fragile body has once again failed her incredible will to live. It is clear that she is merely holding onto life, as she knows it, with her fingertips……
I will go to the meeting with Prof Froehlich and continue my fight for Hospice to become involved. Vic will never function on any level again. She is confined to bed relying on medication to keep her sane. Maybe she will have a good couple of days here or there but her sentence has not been commuted. https://tersiaburger.com/2012/08/12/mommy-i-broke-my-back/
Schedule 6 medication – 28 days supplyRest of Vic’s medication – decanted
21.8.2012
Every day of her life countless indignities are heaped upon her. She is dependant for everything from medication, care, food and money. Poor poppet! Death is always in the foreground of her mind. Either fear of dying and at times fear of not dying.
I don’t really know what I set out to articulate in this blog but writing has once again reminded me what a pitiful life Vic has. My poor, poor little baby! No-one in the world deserves her life! But we will never abandon her – ever!
This evening she asked if she could have her injection a little earlier. Jared is going back to theatre tomorrow morning to have his stent removed. “Mommy, I need to try and sleep so I can be with my son tomorrow”
It is as if her wish triggered an avalanche of events.
Vic has been projectile vomiting since, and the perspiration is pouring off her. Her heart is racing, and her blood pressure is all over. Her abdomen is so distended and extremely tender on the abscess side!
Vic will not be at her son’s side tomorrow when he is readmitted to hospital.
Life has ground to a slow, agonizing halt… Vic floats from one pain filled day in bed to the next. When she has a good and busy day, like yesterday, she pays the price for weeks. Vic has not been out of bed today. She is deadly pale and drawn.
It is hard for her not having privacy. Vic is embarrassed that I hold her hair or wipe her face when she is vomiting. Yet she needs me with her….
We are however in this together as a family. It is a rough journey for everyone.
“I am so sorry Mommy…” …it echoes through my heart.
We have already had so many “extra” years. But the fact remains that Vic is ill. Today she is more ill than yesterday or even last week or last month. It is not an UTI causing the pain and fever. Her pain control is good enough to mask symptoms. Waves of severe nausea and cramping remain…
I don’t even want to consider the possibility that the pain is caused by Vic’s organs slowly starting to shut down….. One organ after another…. I have read that it feels “uncomfortable”. It is called terminal agitation.
There have been times in the past couple of months that all Vic can do is lie in bed and breathe. Completing simple tasks is a cause for celebration….if Vic is able to get out of bed, showers and put on clothes, all in the same day, it is a major achievement. There have been days (few and very far in-between) that she has been well enough to pick up the boys from school, take them for a milk shake. She attended Jared’s confirmation and Jon-Daniel’s prize giving… We are so grateful for the good days!
Vic is going through a grieving stage where she (once again) is experiencing profound grief for the life that she had known and which has been lost forever. Vic is feeling lost and confused. She is on the down ride hurdling to who knows what stage of her journey.
Vic is so sad that she is unable to actively participate in her children’s lives. Most friends have stopped calling. Her sense of identity is blurred. She has been reduced from being a wife and mother to “a child”. https://tersiaburger.com/2012/10/21/vics-roller-coaster/
Mothersday 2012
14.11.2012
Vic had a night out of hell! The nausea was vicious and unrelenting. Pain reduced Vic to a whimpering bundle of human flesh.
Vic’s palliative Care physician, Dr Sue, visited Vic this morning. I think she was a little taken aback by Vic’s condition.
Sue is an amazing person. She was so gentle with Vic. Vic’s heart rate is fast and her blood pressure is 101/58. Vic has a bronchial infection, her liver is taking severe strain and the sepsis has flared up – badly. Her oxygen saturation levels are low – 90%.
Sue gently explained that although Vic is running a fever her body’s “warning systems” have started shutting down….. Vic is very warm to the touch, yet the thermometer only reflects a temperature of 36.8⁰.
Vic is having a lousy day. She is exhausted and very swollen. Despite the injections she has been nauseous all day. This evening she had another vomiting bout. Tomorrow we will see Dr Sue again. Just maybe there is a 3rd anti-nausea type injection available
Vic also complained of a terrible “acidic” feeling.
Hospice has just fitted a subcutaneous driver – again. Vic’s pain has spiralled out of control over the past couple of days.
Vic was in absolute excruciating pain during the night. She battled to breath.
“Help me Mommy! I can’t stand the pain anymore…”
I lay next to her and put constant pressure on the area that hurt most. It was just below her ribcage – liver. “Oh Mommy, it is so sore. Can you feel how sore it is?
As a little girl Vic used to believe that I could “feel” her pain…
“Feel how sore my toe is Mommy…”
As I lay there with my hand on her “sore” I wished with every fibre in my body that I could lay my hand on her sick body and soak up the pain and disease. It cannot be so I look for a new spot on her bum to stick in a needle. https://tersiaburger.com/2012/11/27/mommy-can-you-feel-how-sore-it-is/
3.12.2012
Today I looked at her and fear struck at my heart. My child is slowly slipping away. Her little body is tired of the pain. Her little organs are enlarged and diseased. Her bones weak….
And the realisation hit home…. We need another miracle.
Sue gave us a script for Pethidine. We will alternate the morphine and Pethidine six-hourly. The poor pharmacist…. She went into shock when she heard that the morphine is NOT being replaced by the Pethidine… that it is in addition to the morphine.
Now it is only a matter of time. Vic’s organs are slowly shutting down. My child is gently being eased into death.
The entire day it echoed through my mind “we cannot stop this. It is happening”
Vic is calm and serene.
“Next year my mom and I are going to Italy” she told Sue today.
12:42am and Vic is sleeping peacefully. She had a “good” day. In between her naps she had lunch with a friend, a visit from Esther and a walk in the garden with Jared!
Vic’s legs are growing very weak. The cellulitis on her arm has worsened despite the antibiotics. It is now oozing pus. Sr Siza will see her tomorrow, and I believe Vic will have to go onto IV antibiotics. She had a violent vomiting spell just after she took her antibiotic tablets tonight. It is very difficult for her to keep tablets and food down. Despite the six-hourly anti-nausea injections she has…. And of course there is the problem of the poor absorption.
Vic’s arm is very painful. The antibiotics have not started working yet. Dr Sue will come and see her tomorrow morning, and we will then decide whether it warrants hospitalization. Obviously Vic need intravenous antibiotics and her tissue is too poor….
I ran down the passage knowing that my poor child had vomited again. The poor little thing was standing in the shower covered in her 7 pm dinner and antibiotic tablets. The food had not digested at all. She was shivering and crying.
I cleaned up whilst Vic showered.
“I am sorry Mommy. I am so sorry Mommy”… Vic sobbed.
“I can’t do this anymore Mommy. I don’t want to live like this anymore….”
I eventually got into bed at 5am. Three hours sleep used to be enough sleep when I was younger. I think I am getting old. I need more than 3 hours. Maybe it is time to look at a night nurse…..
Hospice called early this morning. The antibiotics have been changed to IM injections. We cannot put up an IV drip. Sr Siza told Vic she should be admitted to hospital to have the abscess lanced and drained. Vic refused. “No more hospitals. Mommy you promised…”
Monday morning Dr Sue will come to the house and do the procedure here.
Today has been a very, very bad day. Sr Siza was here when Vic had a violent vomiting spell. Yesterday Vic fractured a vertebra again. Her pain is out of control. Her breathing was shallow.
“I don’t want Jon-Daniel to see me now Mommy. It freaks him out when I can’t breathe” Vic pleaded
I lay behind her back, gently holding her whilst the tears wracked through her little body.
“I don’t want to die Mommy. If only I can live for another year….. But I am so tired!” Vic softly cried
Vic has been vomiting non-stop. The acid has burnt the inside of her mouth. Her derriere is so lumpy, black and blue from the constant injections. Sr Siza popped in. She examined Vic and started drawing up a Clopamon and Morphine injection.
“Please Sister, not my bum. Please do it on my thigh.”
Vic no longer has an appetite. She is sleeping at least 20 out of 24 hours. Vic is very warm to the touch and appears flushed. The thermometer reflects a temperature of 37 degrees C.
“Do you understand what your body is telling you Vic?” Siza asked
Jon-Daniel telling his Mommy he received his honours blazer
2.1.2013
Vic is having a strange day… Her blood pressure is all over; her heart races and then slows down.
“Something is wrong mommy.”
This evening Vic double checked with me whether I remembered which hymns had to be sung at her memorial service. She cried when she (again) named her pallbearers. “Please don’t let me lie in a refrigerator for a long time Mommy…Let them cremate me as quickly as possible” https://tersiaburger.com/2013/01/02/sisters-by-heart/
Jared just quietly sitting with his mommy
1.7.2012
Vic worries about the family’s ability to cope with her illness and eventual death. When Jared whispered to her “Mommy, I want your face to be the first thing I see when I wake up from the operation” he validated her fears…
Vic often says “You know Mom I worry how Daddy is going to cope with my death…” or “Mommy, do you think the boys will cope without me?” or “Promise me you will go for counselling when it is over…”
No amount of reassurance will comfort her…Vic in time will have to let go. She knows how deeply we love her and what void her passing will leave in all our lives. If you lose a marriage partner it is possible to find another partner and experience love again but if you lose a child or parent…how do you replace a child or parent?
Vic is quite hard on the boys (for their own good I must add). She always says “I am your Mother not your excuse”
And then on the 10 th of September 2012 I blogged the words that I want to repeat today…
So baby, if you read this post, know that we will miss you. We don’t want you to leave us behind but we want your suffering to end. We will continue to love you until we are reunited one day. You have to trust us that you will always be “my baby” and the boys’ mummy. But know that we will be grateful when your little body is freed from its pain and suffering. You will be at peace… You will not suffer more pain after death. We will mourn you, but we will also be at peace… We will think of you and smile…
On the 1st of January 2013 we started Stepping Stone Hospice & Care Services in my suburb. We operated from my home with one highly skilled Palliative Care Nurse, a Palliative Care Doctor, a network of caregivers, a four women steering committee, one car and a lot of enthusiasm and energy.
Vic was our first death. Stepping Stone was borne out of her pain and her desire to “pass it (Hospice Care) forward”. Many years ago, I promised her that I would start a Hospice in her honour…. It would be her legacy. When Siza looked after my Dad in his final days we “connected”. She is a beautiful, compassionate, efficient person. She has a gentle yet confidence inspiring disposition, and she delivered on her promise to Vic on day one. When she came to set up the subcutaneous driver the first time she promised Vic that she would take care of her pain needs. This she did to the best of her ability.
I blogged on this new lease of life Hospice gave Vic. We have at least two and a half wonderful months where Vic was able to “live”… go out for milkshakes with her boys.
We have been so blessed. Six weeks ago we were able to move into an office on the premises of an amazing charity organization called Amcare. We now have a donated desk, laptop and printer. We have quite a lot of donated equipment such as wheelchairs, walkers etc. We only have one dilapidated chair but our work is in people’s homes not in offices!
People have generously donated second-hand clothes which more than provides for the pain medication that is needed to treat our indigent patients. Through generous donations by a couple of people we have managed to pay Siza’s salary, fuel and cell phone costs. We have been able to buy a software program that will allow us to invoice the medical aids, of patients, that have terminal care cover.
Today Trix received a phone call from a lady, our of our second-hand clothing benefactors, who asked whether we could meet with her brother….he wants to donate a building to Stepping Stone Hospice!!
Our God is a faithful God. We have not advertised nor marketed aggressively at all.
I am speechless with the wonder of people’s generosity and love!
Please pray that this will indeed happen!
Vic, your legacy will live on. Thousands of people will be able to live and die with dignity because you had a dream. I love you Angel Child. I know you are our guardian angel!!
Many years ago I had to travel to Paris, on business, with two male clients. The one middleaged man, advised me that his wife would accompany us. I thought it was strange but did not give it much thought. We had to attend the Eurostatory exhibition. It may sound like fun, but exhibitions are hard work!! We also had to travel to a neighbouring city to visit a manufacturer of products… One arrives at the exhibition at 9am and you leave at 5 pm. It is a lot of slow walking and standing.
Add the frustration of the Paris traffic and commuting between the exhibition centre and hotel….
Dinner is followed by falling into the bed and just “dying”…
My first thought was that this was a jealous wife who did not trust her husband on a business trip with a female colleague… the only other reason would be that she thought it would be a very sociable trip, lots of sightseeing and shopping. Oh what the hell – as long as I was not expected to keep her company or take her shopping!
About a week before we left I found out that the couple had lost their son a couple of weeks before in a car accident. I felt sad for them, made a phone call, asked my secretary to send flowers. My life carried on…
I met the client and his wife at the airport. Their eyes were so incredibly sad. It made me feel very uncomfortable. I remember telling them that the trip would be “healing”… They nodded and said nothing.
We arrived in Paris on the Friday morning. I told them that as soon as they has unpacked and freshened up we would start our adventure. We would head out to Sacre Ceour…one of my favourite places!
Our first stop was the Sacre Ceour Cathedral. We entered the cathedral and everyone was in awe of the beauty of the cathedral. They asked why people were lighting candles. I explained that people were lighting candles for loved ones who had died.
The husband and wife walked off wordlessly and went to light a candle for their dead son. I was touched and sad for them.
Over the years we have become ‘distant’ friends…we stay in contact, we exchange notes on our grandchildren, he phoned me when his daughter was diagnosed with cancer. We cried together. He said “You are the only one who will understand my fear…” He knew Vic was ill.
I saw him today for the first time in about 18 months. We spoke about business and a potential co-operation on a new project. He said nothing about Vic. He asked no questions.
Eventually, I said “Vic died three months ago you know…”
He said “I heard. I tried to phone you, but you did not answer your phone.”
“I spoke to no-one” I said
“She is in a better place you know” he said.
“So let’s talk about how we are going to tackle this project” I said
I remembered the sadness in their eyes. I remembered all the candles they lit for their son. I remember not understanding their grief.
Today was a particularly bad day. For the first time since Vic’s memorial service I attended a Church Service. I dreaded the arms of comfort and gentle words of sympathy that was inevitable. Danie went with me. As we walked into the doors the arms were there…hugging and patting! Our entry caused a little stir among the congregation..
Danie took my hand and led me to our old place in the pews. People actually got up from where they were sitting to come and say “Hello” and “I am praying for you”…. Tears just ran down my cheeks and I COULD NOT stop crying! All I could see in my mind’s eye was my beautiful, precious child’s coffin in the front on the church – surrounded by white candles and St Josephs lilies.
The worship team started singing, and I could not even see the words on the screen through my tears.
As the service went I calmed down. I kept telling myself to “get a grip” which I eventually did.
After the service I cried in the embrace of my minister, church friends and acquaintances.
This evening I opened my emails and found a beautiful email from Jane@ http://johannisthinking.com/. I wanted to post some of it with the beautiful picture and went into her blog to copy her blog address when I found this amazing poem that I am going to share with you.
Jane’s writes in her Email:-
You are NOT alone—-there is LIGHT all around YOU! When I found this…I thought….Yes, this is Tersia! …and your daughter is surrounding YOU with love and light! BELIEVE it!You deserve to live in the LIGHT…..and it is NOT wrong to be happy….Vic is at peace and living in the LIGHT……and one day you will find her again…….until then…be gentle to YOU…..what would you tell her to do IF the situation was reversed? What if you were the ONE who had to leave this Mother Earth ? What would you say to your daughter? You say you “two are ONE”—-and I do believe it is true——— so speak to your inner child as you would speak to her! WE ALL NEED YOUR VOICE!
I cried again. I am so grateful that the goodness and the light that surrounded Vic and radiated from her, is seen by the world. Thank you dear Jane for telling me. Thank you for your words, your poetry and above all the Angel of Light. Thank you for caring!!
Dedicated to Tersia Burger***between the deep sighstears fall one by one
ridding the pitchblende
ever so slowly they formquietly…silentlydescendwater tearscascading
will they ever endwater crystal healersnature taking care of youhelping you transcendfreeing youuntil…you find yourselfhome again…
ice-kaleidoscope (Photo credit: JeremyO\K)
So, today was emotional but healing! I was surrounded by love and compassion. For the first time in a long time I did not feel isolated in my grief.
So to every one who comments and emails; I thank you for your love and support in my journey of mourning my child. For many years I have had a fear of allowing people close to me – I truly fear that they will betray my trust and friendship. I KNOW I must allow people close
to me. Blogging is allowing me see that there is kindness, goodness and unconditional caring out there….
Ah, I have been surrounded by angels this week! Yesterday my friend Trix, just popped around with a beautiful bunch of roses…yellow and orange. Vic would have loved the flowers and the gesture! Vic’s eldest sibling too dropped off a beautiful bunch of flowers.
Yesterday we burnt candles for Vic. We all cried. We all desperately missed Vic.
Trix is a “new” friend. She is part of the Stepping Stone Hospice steering committee. Trix is funny, fit, bright, dynamic and very intelligent! She is absolutely amazing, and no amount of effort or work for Stepping Stone Hospice is too much effort. Trix posts these amazing comments on Facebook throughout the day. Her posts are philosophical, funny and radiates her love of life and people.
Trix has become such an important part of my life in a short period of time. She has a way of saying “Do what you must do to cope with today…” She is not the huggy/kissy type friend… Under her chirpy exterior lies one of the most positive and honest people I have ever had the privilege of knowing.
Now my friendship with Trix is one of the few goods things that came out of Vic’s illness… If Vic had not dreamt of a Hospice and Trix had not lost a husband to cancer in a Hospice In-Patient unit we may never have met…
Another new friend is Wendie Deacon http://deaconfamilyblog.wordpress.com/an-angel-named-vic/ Wendie is a nice person who is truly gifted. Wendie has challenges of her own and the way she has handles these challenges are so brave! She messages and says such beautiful things of Vic… That on it’s only is enough to truly endear her to me. Wendy wrote a beautiful poem for Vic… Thank you dear Wendie for honouring Vic with your words!
If only Vic could read Wendie’s beautiful poem… Do you think angels can read? I wish Vic could read these words…
Vic's Final Journey 